To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
758 total results
Comments (720)
I am about the same stage of PMR as you 8 months in, on 5mg mornings...
I am about the same stage of PMR as ... levels about the same as you. ... in morning, didnt have that before PMR ... feels more like osteo pain than PMR ... pain.
Posted: Apr 10, 2024
My very first injection of Actemra was on January 1st, 2019. I thought it was appropriate...
I was diagnosed with PMR only and not ... I had plenty of facial pain and vision ... The facial pain was a vascular problem ... If PMR symptoms were the only concern ... issue was mostly the low cortisol level
My husband was diagnosed with PMR in May 2023 and Giant Cell Arteritis (GCA) in February...
My husband was diagnosed with PMR in ... headaches, swollen temples, temple pain ... , scalp tenderness, jaw pain, his face ... , and his inflammation levels are within ... He is pain free.
Welcome @jkristinsson2014, The average starting dose if PMR is suspected is 12 to 25 mg prednisone....
jkristinsson2014, The average starting dose if PMR ... My PMR is in remission now but I&#39 ... following discussion helpful: --- PMR ... Do you keep a daily log with your level ... of pain when you wake up and the prednisone
"Would you mind sharing what medication you took to take off the Prednisone? Do you still...
what I thought I knew about cortisol levels ... should stay on 3 mg while my cortisol level ... her standpoint because my cortisol level ... The pain was consistent with PMR although ... 1 medication for high cholesterol levels
This is an interesting comment. Can you elaborate more about why you feel this way? In...
#39;t be relied upon to determine if pain ... issues are actually PMR. ... My CRP and ESR levels were consistent ... PMR pain. ... were elevated when I complained of pain
GCA is for Giant Cell Arteritis. I would highly recommend seeing a rheumatologist for vision change...
they checked his ESR and CRP blood levels ... We’re a month into it and his levels ... His PMR was under control. ... was down to 12.5 mg prednisone and pain ... horrible headaches, jaw and scalp pain
Posted: Mar 20, 2024
@loribmt, and all... Hello, my Connect friend, Lori! Good to connect with you after such a...
I for decades tested low potassium levels ... t even with supplementation get my levels ... , ear pain, hips and severe lumbar pain ... Developed PMR, GCA, Sarcoid flares, ... and am in almost constant lumbar pain
Posted: Mar 19, 2024
"I used the measurement of ‘is this as bad as what I felt at the beginning...
I felt at the beginning of having PMR ... to go back on prednisone, then the pain ... to whatever was the latest onset of pain ... difficulties has built up my tolerance level ... for pain.
Discussion: Post prednisone
Posted: Mar 3, 2024
Welcome @michelle1968, Sorry to hear your rheumatologist isn't listening to you or your symptoms. I was...
mg prednisone which took away the pain ... think what makes it difficult is that PMR ... and there is no specific test for PMR ... conditions with symptoms that mimic PMR ... tests that can be used to check the levels
Posted: Feb 5, 2024
Hi @rocjr1, Welcome to Connect. I think it's always a good plan to discuss options with...
PMR can be challenging for doctors as ... me was to keep a daily log with my level ... of pain when I woke up in the morning ... time on my schedule to taper, if my pain ... level was greater than 2, I waited
Posted: Jan 30, 2024
A low dose of prednisone seems to help many people since they seem to stay on...
The pain and overwhelming fatigue was ... the addition of Actemra which kept PMR ... approximately 6 months until my cortisol level ... Prednisone won't get rid of PMR ... Actemra seems to cause PMR to go into
Posted: Jan 24, 2024
You are right ... there isn't much research about how long one needs to be on...
I was surprised the pain didn't ... feeling well along with some aches and pains ... My cortisol level was low so I was & ... When my cortisol level was "adequate ... pain so I stopped prednisone after
I am looking for advice - I contracted PMR in mid-September and started 10mg of prednisone...
looking for advice - I contracted PMR ... prednisone daily but it only relieved my pain ... now at 10mg a week I am experiencing pain ... Or should I just see to what level 10mg
Posted: Dec 21, 2023
I have tapered off prednisone when on Actemra ... not Kevzara. Kevzara works on the same...
I was surprised by not having my PMR ... ;believed" Actemra was helping PMR ... I had pain but I didn't think it ... was PMR pain. ... I attributed the pain to arthritis.
Will 3 mg be the lowest dose you have been on since the start of PMR?...
you have been on since the start of PMR ... problems would begin at 10 mg and pain ... I didn't have an increase in pain ... My cortisol level was low so that explained ... mg for 6 months before my cortisol level
Posted: Dec 5, 2023
I just wanted to add that "pain at night" is a well known phenomena and not...
I just wanted to add that "pain ... known phenomena and not exclusive to PMR ... Patients with post-op surgical pain ... always seemed to be in the most pain ... : ***Hormone levels – production of
Discussion: Very new to PMR
Posted: Nov 25, 2023
I took John's advice and took B12and Folic Acid together and my stiffness and minor pain...
together and my stiffness and minor pain ... My energy levels have also increased ... I am one step away from declaring PMR
Posted: Nov 16, 2023
It sounds like you are experiencing some prednisone side effects. I think we are on the...
the same page when we say "no pain ... I used to describe PMR in terms relative ... to my age instead of a level of pain ... would tell my rheumatologist that PMR ... For emphasis, I said PMR felt like rigor
I have been off prednisone for nearly 3 years. I still have visits with my rheumatologist...
My PMR condition is being treated with ... by PMR or any of my other autoimmune ... level. ... I don't associate with PMR or any ... I guess a pain level of "5"