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Comments (1,879)
@jck51 Hi @jck51 My Rheumatologist recently told me so directly. At a recent routine appointment with...
in my thighs, but not really pain. ... My hips have some pain, though & ... And pain & weakness in my shoulder ... I notice in walking back to my car after ... biopsy a false negative, it did come back
I also have had a raspy voice, very hoarse sometimes, that comes and goes, starting suddenly...
before I developed the other classic PMR ... good job of nearly eliminating the PMR ... pain (started on 20 mg. daily 8 months ... disappears for a few weeks, and then comes back ... I think it must be the PMR, but . .
@lizward46 I am 75, active and overall healthy, except for knee osteoarthritis (2nd partial knee replacement...
My PMR was diagnosed 8/24 and I was ... my final wean, but I still have the PMR ... -like pain inconsistently in my hips ... I'd like to get back to my daily
Discussion: Exercise
Posted: Feb 6 9:46am
I was diagnosed with PMR Summer of 2020. I’ve tried methotrexate and was unable to taper...
I was diagnosed with PMR Summer of 2020 ... I then went back to Prednisone and am ... down to 2 mg, but I’m in a lot of pain ... my elbows and upper arms are very painful ... I just went back up to 5mg of prednisone
Posted: Feb 5 10:46am
@dadcue since going off prednisone 9 months ago I have since stopped taking LDN and hydroxychloroquine....
I have virtually no pain and believe ... at the gym almost as well as before PMR ... The pain I was often feeling was actually ... dependent I am so happy I have my life back
Posted: Feb 2 10:54am
So interesting that active folks get this damn PMR. My journey began last year about this...
interesting that active folks get this damn PMR ... in late March, 2025, also helped w/pain ... gotten down to 3 mgs of prednisone the pains ... are creeping back. ... Rheumy just said bump it back to 4 mg
Discussion: PMR and Depression
Posted: Jan 30 6:49pm
Reading these posts today were a quite timely for me. I am 78 year old female,...
78 year old female, diagnosed with PMR ... I am willing to endure some pain. ... I am starting back on weight machines ... yesterday and this morning had more pain ... It is more difficult to cut back with
Discussion: Exercise
Posted: Jan 30 10:54am
My best friend had PMR. She initially took DMSO , though the taste is hard to...
My best friend had PMR. ... her her comfort, mobility and life back ... own experience of DMSO was not with PMR ... few days, realised I had no joint pain ... My pain levels are virtually non existent
I was about 43 when I was diagnosed with PMR, which was 38 years ago and...
about 43 when I was diagnosed with PMR ... No pain for about a year then the pain ... Then the pain returned. ... rheumatologist thought I didn't have PMR ... Back to 2.5 mg prednisone and Kevzara
Posted: Jan 15 10:31pm
@phogan0609 I am so sorry that you are experiencing so much pain. Research shows that there...
that you are experiencing so much pain ... that there is a small percentage of PMR ... reduce my prednisone dose, my lower back ... pain is gradually coming back but I ... Generally, PMR pain is on BOTH sides
Discussion: PMR Remission
Posted: Jan 14 12:58am
@e441300 I had exactly the same experience, doctor could not believe I had PMR 9 years...
experience, doctor could not believe I had PMR ... Now after 10 years PMR hit me again ... experience like you that the severe back ... pain I had before PMR is now gone with ... unfortunately I realize it will come back
Posted: Jan 10 12:52am
I was 49 when I had exactly the same symptoms that I have had now at...
First time I did not get a diagnose of PMR ... I've had pain for three years and ... except back pain and get out of bed ... scan and back on Prednisolone 15 mg ... I was in a lot of pain (!)
Posted: Jan 7 11:55am
I was diagnosed with PMR in October,, 2025. It actually started in September with my upper...
I was diagnosed with PMR in October, ... Family doctor said it was PMR. ... prednisone) my left hip and lower back ... Had xrays on back 12/29/2026. ... Any suggestions for more pain relief
I experience this as well. I was diagnosed with PMR around June or July 2023, and...
I was diagnosed with PMR around June ... clicking and popping is related to the PMR ... experience overall body aches and pains ... that I know are related to my PMR. ... more to address my shoulder and upper back
@kensterfly My PMR started right after I had a torn meniscus treated; drained water, gel shots...
@kensterfly My PMR started right after ... 3rd day I Googled my symptoms and PMR ... My knee pain has resurfaced and became ... PMR symptoms were starting to come back ... so I had to bump back up to 2mg/day
Posted: Dec 28, 2025
I have been in full remission for ten years. I went through a very slow Prednisone...
experienced at the beginning of my first PMR ... my left knee and back of the calf. ... told the ER doctor to test me for PMR ... and it came back positive. ... Hopefully, it will come back negative
Posted: Dec 27, 2025
@phogan0609 I had my first PMR when I was 50, practicing a lot of sports. I...
@phogan0609 I had my first PMR when ... Playing golf with less pain and stiffness ... Now I’m back in the middle of a PMR ... What PMR can do to your quality of life
Discussion: PMR Remission
Posted: Dec 20, 2025
I have begun injections of Tyenne (biosimilar to Actemra) every two weeks. So far have had...
I began having debilitating pain in ... January 2025 and was diagnosed with PMR ... temporarily (for 10 days or so) going back
@joebloggs I can relate to your story. I am older--78-but had kept my thick hair when...
after going into septic shock it came back ... people talk about PCP not identifying PMR ... that there is a condition that causes pain ... My pain was never dismissed. ... only prednisone would relieve the pain
Posted: Dec 7, 2025