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Comments (3,129)
@alandy233 I'm sorry you are having such difficult problems with your vision. I was fortunate that...
you received and 6 weeks of 60 mg prednisone ... per day followed by a slow taper over ... after I was diagnosed with GCA and PMR ... helped me to eventually get off of prednisone ... starting you back at a high dose of prednisone
Posted: Jan 12 5:41pm
I was diagnosed in June 2025, as a complication from a medication. My highest prednisone does...
My highest prednisone does was 30 mg ... Kevzara injections in August and was off prednisone ... I do not have pmr symptoms, but my muscles ... you had 1 year of treatment and then taper
Posted: Feb 4 11:05am
@stonewheel I learn stuff all the time and by no means am I qualified to give...
tapering either no matter what anyone ... very low dose so there was no need to taper ... as long as Actemra was controlling PMR ... that way but I did a fast taper from ... So much for all the ultra slow tapering
Posted: Feb 9 8:17pm
I couldn't imagine ever being off Prednisone considering my first dose was about 35 years ago....
couldn't imagine ever being off Prednisone ... I became a daily Prednisone user after ... PMR was diagnosed about 20 years ago ... I have now been off Prednisone for the ... No more Prednisone tapering for me.
Posted: Feb 12 1:20pm
I got my diagnosis about a year ago. I was in so much pain and nothing...
get a diagnosis and relief through Prednisone ... I have tapered to 2 mg of prednisone ... I have the usual side effects of prednisone ... My hope now is to get off of prednisone ... PMR is a strange disease.
Discussion: Newly diagnosed
Posted: Feb 12 12:17pm
I have nothing to offer, but I will be following. I'm new to the PMR journey...
I'm new to the PMR journey with ... Prednisone daily prescribed by my PCP ... might be able to fast track on the taper ... Since the Prednisone really revs me ... up, I'm very anxious to taper to
Posted: Feb 12 8:43pm
Thanks so much for this thread! I was diagnosed with PMR/GCA in April 2023 following a...
I was diagnosed with PMR/GCA in April ... had immediate relief with 25 mg of Prednisone ... for me started as soon as I tried to taper ... Currently down to 8 mg of Prednisone
Posted: Feb 14 11:37am
@elleninz That 28% success rate depends on how you define success. The people enrolled in the...
trial were said to have at least one PMR ... relapse during a Prednisone taper. ... immensely when a biologic allowed me to taper ... off Prednisone. ... to control PMR.
Posted: Feb 7 11:56am
I have very few questions about PMR --- it is what it is. PMR really isn't...
I have very few questions about PMR ... PMR really isn't that complicated ... My PMR journey itself wasn't too ... on a long term basis for PMR. ... After I tapered off prednisone it became
@vjm0223 In my case ... I had PMR compounded by adrenal insufficiency. It was absolutely impossible...
for 12 years for PMR. ... while I tapered my prednisone dose ... dose that there was no need for me to taper ... I did a fast taper from 3 mg to zero ... return to normal levels before I could taper
Posted: Dec 22, 2025
I was told I had developed a weakness in my muscles due to prednisone .If I...
developed a weakness in my muscles due to prednisone ... On Kevzara for 2 years I am tapering ... Kevzara every 4 weeks with no new PMR ... That is main reason I am tapering off ... it but happily it looks like my PMR
My symptoms started about a year ago and the pain got really bad until I started...
pain got really bad until I started prednisone ... I have been on prednisone for 9 months ... I started on 30mg and have tapered to ... decreasing (so I noticed) until I had tapered ... dealing with the pain and medication of PMR
Discussion: Moon face
Posted: Dec 24, 2025
Welcome @dkucan, Tapering off of prednisone can be a challenge. My first time took 3 and...
Welcome @dkucan, Tapering off of prednisone ... helpful: -- How to Slowly and Safely Taper ... Off Prednisone but ... no set rules ... discussion/how-to-slowly-and-safely-taper-off-prednisone-but-no-set-rules ... for PMR?
Posted: Dec 25, 2025
i’ve had a lot of Glute pain, a lot of hamstring pain, and major spasms in...
now in the final week and a half of tapering ... anyone ever even mentioned the word PMR ... I have, since that time, tapered off ... half to two years didn’t exist before PMR ... I think my PMR symptoms started with
I was taking Mounjaro for type 2 diabetes before I developed PMR and went on Prednisone....
type 2 diabetes before I developed PMR ... and went on Prednisone. ... Despite Prednisone my last HgbA1C was ... The Prednisone did seem to blunt the ... suppression kicks back in as I further taper
Posted: Dec 23, 2025
Hello. New here and I appreciate all of the entries that I have read in the...
He prescribed 20mg Prednisone, twice ... month later he suggested that I try to taper ... the Prednisone to 15 mg twice a day ... one month later I plan on trying to taper ... I would be fully weaned off of the Prednisine
Posted: Dec 31, 2025
I started on 60 mg. of Prednisone in July 2024 and began tapering in Sept 2024....
I started on 60 mg. of Prednisone in ... July 2024 and began tapering in Sept ... completely disappeared, but the ordeal of PMR
Discussion: Moon face
Posted: Dec 24, 2025
I think I understand what you are saying. If I don't ... keep posting so I...
When I was on Actemra and tapered off ... flare of panuveitis shortly after tapering ... When I tried to taper off Prednisone ... flare of uveitis was controlled but PMR ... pain on Humira and I couldn't taper
@stonewheel You need to understand the "fight or flight response" that occurs naturally in response to...
Prednisone is an artificial way to elicit ... PMR might be caused by stress as many ... was under too much stress when my PMR ... that I connected were looking like PMR ... term." Every medical research paper
Posted: Jan 4 9:47pm
@lally I was diagnosed with PMR and possible GCA in July 2024. Started on 60 mg....
@lally I was diagnosed with PMR and ... Started on 60 mg. of prednisone. ... I didn't start tapering until early ... The tremors after I started taking Prednisone ... Even, when I tapered to 0 mg. at the
Posted: Jan 6 7:18pm