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2,271 total results
Comments (2,165)
Thank you for your comments. During my 13 months of prednisone I had absolutely no negative...
During my 13 months of prednisone I ... Even as I slowly tapered there was no ... appear about 3 week after I stopped prednisone ... that maybe I had seen the last of PMR
Posted: Oct 9 7:04am
Yes I was just diagnosed with GCA after having PMR for over a year. Diagnosis confirmed...
just diagnosed with GCA after having PMR ... Started on massive dose of iv prednisone ... Now tapering weekly following the AIACTA
@carlarosie Hello and welcome to this PMR forum! There are some very knowledgeable people here that...
carlarosie Hello and welcome to this PMR ... drug for GCA and will also help you taper ... your prednisone.
Posted: Sep 24 4:57am
I have seen lots of posts where MTX did not work. Its an RA drug being...
have shown IL-6 to be elevated in PMR ... Kevzara is the PMR drug. ... keep your CRP down while trying to taper ... Below about 5mg of prednisone is going ... to still require a very slow taper
Posted: Oct 25 11:49am
I appreciate how you are feeling but am thankful they have identified EGPA which does require...
which does require higher doses of prednisone ... than PMR to get it under control. ... takes longer to lower the pain than PMR ... infusion clinic.The hardest part was tapering ... down very slowly from the prednisone
Support Group: Autoimmune Diseases
Posted: Nov 12 7:00am
"It sounds like you have a keeper for a rheumatologist. That is half the battle. I...
Actemra treated was "refractory PMR ... for 12 years to treat refractory PMR ... PMR was just my latest addition and ... Actemra worked so effectively for PMR ... saw an endocrinologist who helped me taper
Posted: Nov 17 10:06pm
There is an alternative to Prednisone now! It's Kevzara. Patients are initially put on Prednisone and...
There is an alternative to Prednisone ... Patients are initially put on Prednisone ... and a taper is attempted..if it fails ... , Kevzara ia added, the Pred is tapered ... My PMR responded like a dream to Kevzara
Posted: Nov 9 7:13am
My blood tests are never consistent with showing PMR. This has been going on for 7...
are never consistent with showing PMR ... years and I still can't get off Prednisone ... I have all the symptoms of PMR. ... I also am on the 5 mg. trying to taper ... since August to help wean off the Prednisone
Posted: Nov 11 9:06am
Kevzara is now an option for me since it was FDA approved for PMR in February...
for me since it was FDA approved for PMR ... 20cannot%20tolerate%20corticosteroid%20taper ... for Actemra was my being unable to taper ... Now my PMR is said to be in remission ... not for everyone with PMR.
Posted: Nov 11 11:17am
Thank-you for saying that. I think I'm doing "reasonably well" but I wouldn't go so far...
I have been off Prednisone for more ... uveitis resurfaced almost as soon as I tapered ... off Prednisone the first time. ... Then PMR resurfaced when I was off Actemra ... Unfortunately, PMR symptoms returned
Posted: Sep 26 8:20am
A prednisone flare and a PMR flare are almost identical in pain. I generally think most...
A prednisone flare and a PMR flare are ... generally think most everyone has a prednisone ... Its true it may restart PMR thats why ... My thought its a prednisone flare from ... Then the only solution is to taper very
Posted: Sep 28 10:53am
I don't have any experience with Kevzara. I have taken Actemra for PMR for a long...
I have taken Actemra for PMR for a long ... that it took me about 6 months to taper ... insufficiency and also whether or not PMR ... I did a fast taper from 3 mg to zero ... once my cortisol level improved and PMR
Posted: Oct 2 11:27am
According to this source, it is "unlikely" for PMR to "convert" to RA. "Can polymyalgia rheumatica...
source, it is "unlikely" for PMR ... disorders responded well to high dose prednisone ... followed by a fast taper. ... A fast response to Prednisone isn&#39 ... to Prednisone.
Discussion: PMR to RA?
Posted: Sep 24 11:21am
Sorry to hear the fingers are involved. Hoping you get some answers at your follow up...
My first time with PMR was pretty awful ... and took me 3 and half years to taper ... off of prednisone with the last six ... and forth between 1 mg and 1/2 mg of prednisone
Discussion: PMR to RA?
Posted: Sep 24 7:58am
Long term prednisone use is defined as anything more than 3 - 4 weeks, anywhere I've...
Long term prednisone use is defined ... doesn't require a slow reduction taper ... Anyone taking it for PMR is using it
Posted: Nov 7 5:01pm
I achieved remission as measured by SED and CRP testing in three months after initial diagnosis....
At that point I had tapered from a high ... of 30 to 10 of prednisone. ... , that I could expect various non-PMR ... off prednisone without provoking adrenal ... should not be treated with prednisone
Posted: Nov 17 12:47pm
Hi @dengland, Your description of your PMR journey sounds similar to mine but you were a...
dengland, Your description of your PMR ... very high stress job and even though PMR ... impressed that you have been able to taper ... your prednisone dose because I am still
Posted: Nov 17 4:47am
That fits me to a tee. My rheumatologist didn't say I couldn't have PMR for the...
didn't say I couldn't have PMR ... He said being on Prednisone for the ... After more than 30 years of Prednisone ... followed by a fast taper weren' ... After PMR was diagnosed, Prednisone
Posted: Sep 26 7:45am
In Europe, the incidence of PMR is less the closer to the Mediterranean people are. Maybe...
In Europe, the incidence of PMR is less ... 't really know how to diagnose PMR ... tissue (WAT) adds to inflammation but Prednisone ... and Prednisone. ... Lettuce is like paper.
Posted: Sep 26 2:55pm