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855 total results
Comments (795)
@pah17 This disease has done a number on me. I’m a 78 year old female, on...
https://connect.mayoclinic.org/comment/1504560/
I have been on kevzara injections for ... which I hope is going to control the PMR
I have had PMR for 13 months and have tapered to 5 mg. prednisone. I find...
https://connect.mayoclinic.org/comment/1501301/
I have had PMR for 13 months and have ... #39;s suggestion and try to get onto Kevzara
Thank you……I, too, have a raspy voice…..my husband has been all over me to get after...
https://connect.mayoclinic.org/comment/1500740/
I was PMR diagnosed 4/2024, probable ... Am now pain free after 10 months Kevzara
@cheraloha I think the "difference" is how how much faster you can taper down and hopefully...
https://connect.mayoclinic.org/comment/1500362/
For newly diagnosed PMR patients who ... have not started Prednisone, Kevzara ... tend to select "newly diagnosed PMR ... insufficiency and they weren't exactly PMR ... symptoms of adrenal insufficiency and PMR
@lori62yb I started kevzara at 5 mg of prednisone 3 months ago. I have tapered to...
https://connect.mayoclinic.org/comment/1499375/
@lori62yb
I started kevzara at 5 mg ... tapered to 1 mg today since starting kevzara ... am will willing to take a chance on Kevzara ... my mother remain on prednisone for PMR ... to hope for long term freedom from PMR
@danboldman I had tremendous results from Actemra (tocilizumab) which is FDA approved for GCA, The biosimilars...
https://connect.mayoclinic.org/comment/1495167/
is called relapsing and refractory PMR ... arthritis."
----------------------
Kevzara ... (sarilumab) is FDA approved for PMR ... have any personal experience with Kevzara ... inhibitors don't work well for PMR
@franklinlala Your friend is right - your taper plan seems very unrealistic for someone with PMR....
https://connect.mayoclinic.org/comment/1492287/
very unrealistic for someone with PMR ... PMR is like a fire in your body. ... For most people PMR eventually burns ... of prednisone faster, you can take Kevzara ... , a biologic drug approved for PMR,
Our experience is similar. Q#1. Even having a referral from an ER doctor (8 weeks after...
https://connect.mayoclinic.org/comment/1481925/
referral from an ER doctor (8 weeks after PMR ... agreed that I should immediately start Kevzara ... So, from diagnosis to Kevzara is 9-10 ... My insurance has approved the Kevzara
@ttorre44 I'm glad your pain is receding. PMR is so painful. I was crawling because I...
https://connect.mayoclinic.org/comment/1475663/
PMR is so painful. ... I used kevzara to reduce my dose.
@dadcue Two professionals do not think I have adrenal insufficiency judging by my symptoms when I...
https://connect.mayoclinic.org/comment/1472901/
I have tried Methotrexate, Kevzara and ... My father had GCA and PMR, was on prednisone
I was started with 15mg Prednisone, but still had very bad morning stiffness and pain. I...
https://connect.mayoclinic.org/comment/1467589/
I slept ok most nights as PMR made me ... As I tapered with help of Kevzara I ... off of Prednisone completely with Kevzara
@tweetypie13 I'm jealous you started Kevzara relatively soon. I was on Prednisone for 12 years before...
https://connect.mayoclinic.org/comment/1467033/
tweetypie13
I'm jealous you started Kevzara ... PMR improved rapidly but it was my cortisol ... occasional bump in the road on my PMR ... new types of pain that surface but PMR ... have never had a complete relapse of PMR
@retiredphil Kevzara is approved to treat PMR, and Actemra is approved for GCA. They both block...
https://connect.mayoclinic.org/comment/1507640/
@retiredphil Kevzara is approved to ... treat PMR, and Actemra is approved for ... this forum who have experience with Kevzara
@stonewheel Keep in mind that +/- 3 months is for Kevzara to control PMR. Whether or...
https://connect.mayoclinic.org/comment/1501814/
Keep in mind that +/- 3 months is for Kevzara ... to control PMR.
@elleninz I did a search on Kevzara and their rate off success, in PMR remission.
https://connect.mayoclinic.org/comment/1499405/
@elleninz I did a search on Kevzara ... and their rate off success, in PMR remission
I was diagnosed with PMR Summer of 2020. I’ve tried methotrexate and was unable to taper...
https://connect.mayoclinic.org/comment/1498650/
I was diagnosed with PMR Summer of 2020 ... When Kevzara was approved for PMR, my ... with Occipital Neuralgia, before the PMR ... but I am seeing improvement in my PMR ... Has anyone had Kevzara allow them to
The most effective medications would probably be Actemra or Tyenne. Those are not approved for PMR...
https://connect.mayoclinic.org/comment/1498222/
Those are not approved for PMR in the ... your insurance isn't approving Kevzara ... since they are biologic drugs like Kevzara ... Methotrexate is used a lot for PMR. ... looked into financial assistance to buy Kevzara
"How can you tell if it's PMR or adrenal insufficiency?" You probably won't know if the...
https://connect.mayoclinic.org/comment/1483540/
"How can you tell if it's PMR ... #39;t know if the goal of treating PMR ... #34; In essence, all pain becomes PMR ... --------
"How do you know the Kevzara ... I assume Kevzara is the same.
I was about 43 when I was diagnosed with PMR, which was 38 years ago and...
https://connect.mayoclinic.org/comment/1483462/
about 43 when I was diagnosed with PMR ... rheumatologist thought I didn't have PMR ... Then Kevzara and had no problem reducing ... Back to 2.5 mg prednisone and Kevzara
@sharon44r Sorry this is so long. I can’t answer your question, because we are all so...
https://connect.mayoclinic.org/comment/1480070/
Started Kevzara April last yr nd was ... Am currently at Kevzara shots every ... EFFECTS, energy levels are close to pre PMR ... blog has told me that one can stop Kevzara ... My goal is to be off Kevzara by end
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