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582 total results
Comments (562)
I've been on prednisone since late June of 2024 for GCA. I started at 60 mg...
prednisone since late June of 2024 for GCA ... some issues with my eyes early in my treatment ... saved my vision and treated my PMR and GCA
Posted: Jan 19, 2025
An interesting question occurred to me based on this post. I wonder how many people who...
learn about the diseases (PMR and GCA ... ) and their treatments. ... alone, since going through PMR and or GCA
Posted: Jan 14, 2025
That forum is very good if you are from the UK. I felt alienated on that...
Also, the approach to treatment in ... Actemra is approved in the UK for GCA ... use of corticosteroids to treat PMR/GCA
Posted: Dec 29, 2024
Hi Was diagnosed with pmr a year ago . I was well , my symptoms were...
Against his advice I chose conservative treatment ... I was diagnosed with large vessel GCA
Posted: Nov 19, 2024
While I would Never wish to argue or offer disbelief of any persons health decisions; and...
decision to take or not any med or treatment ... handicap from the recent gift of PMR/GCA ... mRNA use in a Cancer related Drug Treatment ... Wishing all of you PMR/GCA and other
It basically says the same thing I was trying to explain. I know very little about...
FDA approval for Actemra to treat GCA ... considered to be "experimental treatments ... medication that works" for PMR/GCA
Posted: Sep 12, 2024
@tuckerp I definitely got the feeling that Dadcue is the king of prednisone and PMR. He...
another two years to complete the treatment ... Dadcue could have had some form of GCA ... husband suffer through that before GCA ... to be no other options for PMR or GCA
@windyshores Thank you for your insight!! It helps me to feel that I'm not going crazy...
complicated of his issues (with PMR and GCA ... there are such limited options for treatment ... that was recently FDA approved for GCA ... has paused us on wanting to start treatment ... mouth is stable enough for years of treatment
@lashley7 I understand you not wanting to live with the possible side effects of steroids. But...
could mean your disease has moved to GCA ... GCA is an inflammation of the lining ... The same thing happens when you have GCA ... Headaches are dangerous with GCA. ... First, if you are not happy with the treatment
At the time, Actemra (tocilizumab) was FDA approved for GCA but not PMR. My rheumatologist wanted...
(tocilizumab) was FDA approved for GCA ... #39;t usually pay for experimental treatments ... Also, if the treatment causes harm to ... required to give justification if their treatment ... patients now have an FDA-approved treatment
That’s understandable. Apologies for the delayed reply. I agree it’s frustrating treatment options are limited seemingly...
I agree it’s frustrating treatment options ... don’t have an established “go to” treatment ... there’s still the risk of developing GCA ... Forgoing treatment was absolutely not
Posted: Apr 17, 2024
I have a different perspective on this because I’m a daughter of someone with PMR. I...
there’s well-established and effective treatments ... With GCA the effects are scarier, so ... what was being done to monitor for GCA ... joints, and the arteries in the case of GCA
My very first injection of Actemra was on January 1st, 2019. I thought it was appropriate...
was diagnosed with PMR only and not GCA ... I had some of the symptoms of GCA but ... would be treated "as if I had GCA ... versus injections every 2 weeks for the treatment ... of GCA.