Actemra – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

2,072 total results

Comments (2,007)

Good for you. The more I read these posts the more I realize everyone is different....

https://connect.mayoclinic.org/comment/1190481/

I am glad I tried ACTEMRA and would

Discussion: Flare

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 14, 2024

I received a live cholera vaccination in anticipation of a trip to Africa. Got very sick...

https://connect.mayoclinic.org/comment/744275/

Started on Actemra recently and hoping

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 1, 2022

@mskatrina12 Hello Kathy. Thankyou for that hopeful tip for we suffering OLP victims. I've had mine...

https://connect.mayoclinic.org/comment/663268/

Was finally prescribed Actemra , an ... I was on weekly Actemra injections for

Discussion: Oral Lichen Planus After Pfizer Covid Vaccines?

Support Group: Autoimmune Diseases

Posted: Dec 17, 2021

Well, once I stopped the prednisone/Actemra they pretty much disappeared - only every now and then....

https://connect.mayoclinic.org/comment/1356475/

Well, once I stopped the prednisone/Actemra

Discussion: small red blotches on skin

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 25 8:44pm

Interesting comment “you don’t look like the type who has GCA”. What does someone with GCA...

https://connect.mayoclinic.org/comment/1362485/

Try discussing Actemra infusions.

Discussion: Giant Cell Arteritis Diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2 8:59pm

Hah, I understand that. I saw what insurance paid. Wish I could send you mine since...

https://connect.mayoclinic.org/comment/1188521/

First Actemra tomorrow but will have

Discussion: Newly diagnosed with PMR taking prednisone 15 mg. Working well. Dr wan

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 11, 2024

Good news on the Actemra. Just one word of caution reduce Prednisone very slowly. Once I...

https://connect.mayoclinic.org/comment/812426/

Good news on the Actemra.

Discussion: Giant Cell Arteritis Diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 16, 2023

Appears that everyone reacts differently to certain combinations of drugs. Have GCA and treated for it...

https://connect.mayoclinic.org/comment/1239677/

to end of August in 2024 and now on Actemra

Discussion: Effect of Statins on PMR pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 18 7:59am

Be careful and monitor yourself for any symptoms of GCA. I treated myself for PMR with...

https://connect.mayoclinic.org/comment/1245469/

on prednisone and more than that on Actemra

Discussion: Working out with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 25 5:26pm

"Perhaps if we had tapered much more slowly at the beginning things would have gone better."...

https://connect.mayoclinic.org/comment/1280830/

rheumatologist convinced me to try Actemra ... but I still do a monthly infusion of Actemra ... don't need anything except for Actemra ... My rheumatologist controls my Actemra

Discussion: Peripheral Neuropathy - Result of PMR or Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 13 11:13am

"I don't know if it's working other than I have been able to taper. That's a...

https://connect.mayoclinic.org/comment/1132392/

." I didn't know if Actemra ... how I should taper prednisone when Actemra ... I could only say Actemra "might ... I wasn't confident that Actemra

Discussion: Any Tips For Tapering Off Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 28, 2024

I was diagnosed with PMR/GCA July 2024. Began 60 mg. of Prednisone. I quit drinking completely,...

https://connect.mayoclinic.org/comment/1382530/

mg. of Prednisone and get monthly Actemra

Discussion: Jak Inhibitors for PMr

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 30 9:21am

I received an email about a comment or response you made...and being new to the site...I...

https://connect.mayoclinic.org/comment/857902/

your rheumatologist wanted you to try Actemra ... have a friend in Maine, 86, she takes Actemra

Discussion: Spinal steroid injections while on Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 10, 2023

I don't really know how long I will remain on Actemra. I have had a total...

https://connect.mayoclinic.org/comment/286648/

really know how long I will remain on Actemra ... #39;s experience with tapering off Actemra

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 1, 2020

Hello @smoshetti, Welcome to Connect. Sorry your husband has to deal with PMR along with his...

https://connect.mayoclinic.org/comment/1205788/

discussions helpful: -- Methotrexate / Actemra ... connect.mayoclinic.org/discussion/methotrexate-actemra

Discussion: Using methotrexate with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 7 7:48am

"Tapering down prednisone for me was not a straight line sometimes I could reduce and then...

https://connect.mayoclinic.org/comment/1310125/

except that I do a monthly infusion of Actemra ... anymore except when I don't do an Actemra

Discussion: PMR and the taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 22 8:40am

I have PMR and GCA. Before treatment I remember lying in bed at night trying to...

https://connect.mayoclinic.org/comment/1355087/

started treatment (prednisone plus Actemra

Discussion: Polymyalgia rheumatica: Any thoughts on my taper plan?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 24 6:56am

Thank you again. I was wondering how long I could stay on Actemra but I guess...

https://connect.mayoclinic.org/comment/1308862/

wondering how long I could stay on Actemra

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 20 5:03pm

Unfortunately you can't simply stop taking prednisone. Methotrexate might help you get off Prednisone sooner if...

https://connect.mayoclinic.org/comment/1131927/

I am taking a biologic called Actemra ... Actemra (tocilizumab) allowed me to ... I will be on Actemra for as long as ... In the UK, Actemra is restricted to ... I was told my experience with Actemra

Discussion: methotrexate or kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 27, 2024

Hi @dengland, Your description of your PMR journey sounds similar to mine but you were a...

https://connect.mayoclinic.org/comment/1174720/

I have had 3 Actemra infusions and am ... that mine will arrived with the next Actemra

Discussion: Length of PMR condition

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 17, 2024