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Comments (1,144)

There is no tapering strategy that has been researched that will allow you to taper off...

https://connect.mayoclinic.org/comment/1143510/

Only Kevzara is FDA approved to treat

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 18, 2024

I agree with everything that has already been posted. I'm not sure how much my experience...

https://connect.mayoclinic.org/comment/1087337/

experience with Actemra applies to Kevzara

Discussion: Prednisone to Kevzara back to Prednisone. ( Hope not )

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 15, 2024

I'm not making excuses for your rheumatologist. There are many entities including doctors from Mayo and...

https://connect.mayoclinic.org/comment/1318222/

They predate Actemra and Kevzara.

Discussion: Shortness of breath ..dyspenia..while on prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1 10:08pm

@nyxygirl Thank-you for the article about the debate doctors are having. I was good to read...

https://connect.mayoclinic.org/comment/1012549/

vary and I don't think Actemra or Kevzara

Discussion: ACR Convergence 2023 Nov -Program abstracts are available for view

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 9, 2024

"Regarding the taper, Actemra supports a faster taper, especially if your inflammation is primary due to...

https://connect.mayoclinic.org/comment/1250508/

to interleukin-6, which Actemra and Kevzara

Discussion: How to Slowly and Safely Taper Off Prednisone but ... no set rules.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 4 4:58pm

I am sorry for all you are going through. Don't give up. Remember 3's the charm!...

https://connect.mayoclinic.org/comment/1152305/

Rheumatologist has me pre-approved to go on Kevzara

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 5, 2024

I have an autoimmune inflammatory arthritis with uveitis diagnosed in my early 30's. I'm now 68...

https://connect.mayoclinic.org/comment/861434/

However, Kevzara is now approved for

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 17, 2023

I startedKevZara on January 9. I just had my third injection this week. And had lab...

https://connect.mayoclinic.org/comment/1231528/

and some other countries. so I would Kevzara

Discussion: Can PMR present in the clavicle too?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 7 11:24am

Yes, I was diagnosed with Sjogren's in 2002. In my case my Immune System uses cytokines...

https://connect.mayoclinic.org/comment/911935/

considered is a Monoclonal Antibody call Kevzara

Discussion: Anyone With PMR Also Diagnosed With Sjogren's?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 12, 2023

I am so sorry that you are having so many problems. My thoughts and prayers are...

https://connect.mayoclinic.org/comment/988314/

Although I am waiting to be put on Kevzara

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 29, 2023

What were your symptoms of withdrawal? I am at the point of tapering Prednisone from 5mg(...

https://connect.mayoclinic.org/comment/1386524/

help with pain and fatigue using Kezvara

Discussion: I am afraid the pain will never end.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 4 11:29am

I was diagnosed with PMR in Dec2020, tested negative for Covid, but then got sicker and...

https://connect.mayoclinic.org/comment/1366437/

expensive due to our weak currency, and Kevsara

Discussion: Anyone successfully treating PMR without Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 8 12:26pm

This abstract did not mention the problem of being unable to afford Kevrara due to Medicare...

https://connect.mayoclinic.org/comment/1203356/

problem of being unable to afford Kevrara

Discussion: What do you all think of #Social Media Listening ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 3 6:51pm

Thank you for all the PMR links. I'm at 7.5 mg of prednisone now but I'm...

https://connect.mayoclinic.org/comment/1058934/

I wish Kevzera worked faster.

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 28, 2024

Here is a list of medications that are in various phases of development. https://www.gabionline.net/biosimilars/general/Biosimilars-of-tocilizumab It seems...

https://connect.mayoclinic.org/comment/829608/

Kevara being approved for PMR was a

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 21, 2023

I also have osteoarthritis (for years) and was recently diagnosed with PMR. To me it was...

https://connect.mayoclinic.org/comment/1285531/

as I have A-Fib, but I just started Kevlara

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 19 3:07pm

The pain started in June of 2024, I was not diagnosed until November 2024 and my...

https://connect.mayoclinic.org/comment/1308263/

wanted to put me on an injection called Kevsara

Discussion: Fast Prednisone taper?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 20 6:21am

https://www.kevzara.com/ra/resources/kevzaraconnect-copay-card I was not asked to provide financial info.

https://connect.mayoclinic.org/comment/1258353/

https://www.kevzara.com/ra/resources

Discussion: Anyone tried Kevzara for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 15 7:55am

Hi Teri, Curious, how did you know the GCA returned? My new rheumatologist thinks I should...

https://connect.mayoclinic.org/comment/1140507/

for flares, methotrexate and now, Kevsara

Discussion: Prednisone and change in hair texture

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 12, 2024

Alguien esta con Kevsara para la (PMR) y ha tenido alguna mejoria Muchas Gracias

https://connect.mayoclinic.org/comment/1102621/

Alguien esta con Kevsara para la (PMR

Discussion: PMR - Transitionaing from prednisone to another form of treatment

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2024