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2,134 total results

Comments (1,973)

hi, I have sjogrens and small fiber neuropathy anyone else

https://connect.mayoclinic.org/comment/157143/

hi, I have sjogrens and small fiber

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Mar 21, 2019

Hi @redhen, welcome to Connect. Thanks for sharing you personal experience. It helps when it's coming...

https://connect.mayoclinic.org/comment/137921/

Are you still on Plaquenil for your Sjogren

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 20, 2019

I have hypermobilty as ehlers danlos syndrome.You need to find another doctor. Eds also affects your...

https://connect.mayoclinic.org/comment/235178/

I also have sjogrens, so sjogrens and

Discussion: Autism, juvenile oligoarticular arthritis, heart defect, kidney stones

Support Group: Autoimmune Diseases

Posted: Sep 11, 2019

I live in Hawaii so of course there is plenty of strong sun but I always...

https://connect.mayoclinic.org/comment/275010/

I have seen him in the past for Sjogrens

Discussion: Scalp and hair problems possibly from discoid lupus

Support Group: Autoimmune Diseases

Posted: Sep 6, 2019

Yes, they have taken a biopsy twice and it didn't tell them anything, which seems odd...

https://connect.mayoclinic.org/comment/274990/

my blood but I was diagnosed with sjogrens

Discussion: Skin and scalp problems and loss of hair

Support Group: Women's Health

Posted: Sep 6, 2019

Rachel, I'm so sadden by what you are going though. I'm having the same kind of...

https://connect.mayoclinic.org/comment/663637/

The rheumatologist ruled out Sjogren

Discussion: Member Neuropathy Journey Stories: What's Yours?

Support Group: Neuropathy

Posted: Dec 18, 2021

FYI : there are Facebook forums regarding LDN; many with Sjögren’s and other autoimmune issues successfully...

https://connect.mayoclinic.org/comment/663488/

Facebook forums regarding LDN; many with Sjögren

Discussion: Success with low dose naltrexone for Autoimmune disorders

Support Group: Autoimmune Diseases

Posted: Dec 18, 2021

Well…I’m back to work full time, but unless I’m doing trainings, I basically do research and...

https://connect.mayoclinic.org/comment/665880/

fatigued, but that’s undoubtedly due to Sjogren

Discussion: What do you order when eating at a restaurant?

Support Group: Transplants

Posted: Dec 28, 2021

I didn’t provide a particular link, just suggested you type in LDN groups maybe, I was...

https://connect.mayoclinic.org/comment/665188/

groups maybe, I was made aware via the Sjögren

Discussion: Success with low dose naltrexone for Autoimmune disorders

Support Group: Autoimmune Diseases

Posted: Dec 25, 2021

Many people are getting ANA results. It is not a full diagnosis of Lupus or Mixed...

https://connect.mayoclinic.org/comment/653314/

Salivary gland is Sjogrens, usually.

Discussion: Undiagnosed Autoimmune with back pain, spasms, and stiffness

Support Group: Autoimmune Diseases

Posted: Nov 11, 2021

Hi Sue, thanks for your lengthy reply. I also do the saline solution in the nebulizer...

https://connect.mayoclinic.org/comment/651827/

x1f607; I was first diagnosed with Sjogren

Discussion: Radiation Lung Fibrosis, Bronchiectasis, Traction Bronchiectasis

Support Group: MAC & Bronchiectasis

Posted: Nov 6, 2021

If you have SFN, it seems you should see a neurologist. A rheumatologist can help in...

https://connect.mayoclinic.org/comment/661249/

some potential causes of SFN, such as Sjogren

Discussion: Nerve biopsy test: Is it done by a neurologist or rheumatologist?

Support Group: Neuropathy

Posted: Dec 10, 2021

When you get some answers, please share. I too have been diagnosed with small fiber neuropathy...

https://connect.mayoclinic.org/comment/657888/

diagnosed with small fiber neuropathy and Sjogren

Discussion: Autoimmune illness and small fiber neuropathy

Support Group: Neuropathy

Posted: Nov 28, 2021

Thx again for your answer… I have a very able-bodied husband who is absolutely zero help...

https://connect.mayoclinic.org/comment/643857/

sure you deserve it as well.I have Sjogren ... well as I was originally on it for Sjogren ... first thing I was giving given for Sjogrens

Discussion: feeling defeated

Support Group: Neuropathy

Posted: Oct 10, 2021

Thanks for reaching out, I certainly will. In my above msg, I meant I no longer...

https://connect.mayoclinic.org/comment/643851/

@jetsetter Do you have only Sjogrens

Discussion: feeling defeated

Support Group: Neuropathy

Posted: Oct 10, 2021

Thank you Becky. I hadn’t heard of the Autoimmune Association- https://autoimmune.org/ I wasn’t impressed with their...

https://connect.mayoclinic.org/comment/642796/

with their simplistic definition of Sjogren

Discussion: Does it seem like autoimmune diseases are on the rise?

Support Group: Autoimmune Diseases

Posted: Oct 6, 2021

I’m sorry your day was rough. Those liver enzyme levels are high, but not overly so....

https://connect.mayoclinic.org/comment/642079/

I saw a neurologist who diagnosed Sjogren

Discussion: Does it seem like autoimmune diseases are on the rise?

Support Group: Autoimmune Diseases

Posted: Oct 4, 2021

Thank you for this post. I have been VERY hesitant to undergo any invasive procedures for...

https://connect.mayoclinic.org/comment/642004/

after that appt., I was diagnosed with Sjögren

Discussion: Mayo Pain Rehab Program: Signing off and my comeback afterwards

Support Group: Chronic Pain

Posted: Oct 4, 2021

I just decided to see what was in my G-mail and I found a wealth of...

https://connect.mayoclinic.org/comment/641750/

I have RA, Raynauds, Sjogrens and other

Discussion: Does it seem like autoimmune diseases are on the rise?

Support Group: Autoimmune Diseases

Posted: Oct 3, 2021

I would like to recommend Orthofeet shoes. Order online at orthofeet.com. I am not selling shoes,...

https://connect.mayoclinic.org/comment/624069/

I have Sjogren’s Syndrome and have developed

Discussion: If the shoe fits...right?

Support Group: Neuropathy

Posted: Aug 7, 2021