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Comments (2,272)

I have MCTD sjogren's, raynauds syndrome, photosensitive skin, fibromylygia, depression and anxiety.

https://connect.mayoclinic.org/comment/56443/

I have MCTD sjogren's, raynauds syndrome

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Aug 1, 2012

Yes for the IVIG, helps a little. I have small fiber neuropathy, Sojgrens. severe, severer pain...

https://connect.mayoclinic.org/comment/1233274/

I have small fiber neuropathy, Sojgrens

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Feb 9 7:39pm

If you do the Quest ANA lab with titer and reflex, you will get ICAP's (International...

https://connect.mayoclinic.org/comment/1230263/

polymyositis overlap, MCTD, SLE and Sjogren

Discussion: My Autoimmune Journey: From 1:5120 to 1:320 ANA

Support Group: Autoimmune Diseases

Posted: Feb 5 5:15pm

Plaquenil Helped me a lot I also use biotene mouthwash, dry mouth spray, and toothpaste. All...

https://connect.mayoclinic.org/comment/1169532/

connective tissue disease with mainly sjogrens

Discussion: Burning mouth syndrome (BMS): Is this an autoimmune disease?

Support Group: Autoimmune Diseases

Posted: Nov 7, 2024

Hi I have lupus and sojgrens the Dr wants me to do infusion the medication names...

https://connect.mayoclinic.org/comment/1224179/

Hi I have lupus and sojgrens the Dr

Discussion: I have S.F.N. and Sojgrens pain moving bowels

Support Group: Autoimmune Diseases

Posted: Jan 28 7:05pm

No, my understanding is that it is harder to get into than Hopkins. What makes you...

https://connect.mayoclinic.org/comment/1238946/

Hopkins Sjogrens center?

Discussion: Myasthenia Gravis

Support Group: Autoimmune Diseases

Posted: Feb 17 9:03am

I was diagnosed with Sjorgens syndrome 14 yrs ago. I was also diagnosed with St4 NH...

https://connect.mayoclinic.org/comment/1239913/

I was diagnosed with Sjorgens syndrome ... now a medical correlation between Sjorgens ... sharing this with others that have Sjorgens

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 18 12:15pm

I'm really sorry you're suffering so much and you've already got some good advice here. Number...

https://connect.mayoclinic.org/comment/1200226/

I also have a diagnosis of primary Sjogren

Discussion: Undiagnosed Autoimmune Disease - No one will listen to me

Support Group: Autoimmune Diseases

Posted: Dec 30, 2024

I have Sjogren's and a bunch of other auto immune issues. What works for me is...

https://connect.mayoclinic.org/comment/1198792/

I have Sjogren's and a bunch of

Discussion: Nighttime Dry Mouth

Support Group: Autoimmune Diseases

Posted: Dec 28, 2024

I also have nighttime dry mouth and extreme burning lips. I just learned that some of...

https://connect.mayoclinic.org/comment/1198002/

learned that some of it is due to the Sjogren

Discussion: Nighttime Dry Mouth

Support Group: Autoimmune Diseases

Posted: Dec 27, 2024

I just wanted to add, though I have mixed connective tissue disease, my primary symptoms are...

https://connect.mayoclinic.org/comment/1197399/

tissue disease, my primary symptoms are sjogrens ... Connective tissue Disease can include sjogrens

Discussion: Nighttime Dry Mouth

Support Group: Autoimmune Diseases

Posted: Dec 26, 2024

@slkanowitz - Hello. Thank you for this information. All the tests you mentioned above except the...

https://connect.mayoclinic.org/comment/1190071/

atypical symptoms after ruling out sjogrens

Discussion: ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

Support Group: Autoimmune Diseases

Posted: Dec 14, 2024

I have all the same and also other unusual autoimmune issues It is now called Sjogrens...

https://connect.mayoclinic.org/comment/1186685/

autoimmune issues It is now called Sjogrens

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Dec 8, 2024

He was considering Sjogrens but due to the negative workup that is no longer being considered....

https://connect.mayoclinic.org/comment/1185508/

He was considering Sjogrens but due

Discussion: ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

Support Group: Autoimmune Diseases

Posted: Dec 6, 2024

Hello @vleigh, @connie1954 and @carolgail1949, Thank you for sharing your experience with BMS. I don't have...

https://connect.mayoclinic.org/comment/1183513/

Back": Cindy's Recovery from Sjogren ... resources/interviews-patients/cindy-sjogrens-bms

Discussion: Burning Mouth Syndrome. I have it very severe.

Support Group: Skin Health

Posted: Dec 2, 2024

I've been on Gabapentin for fibro for 5+ years (300mg twice a day) for joint and...

https://connect.mayoclinic.org/comment/1182459/

BUT I was diagnosed with Sjogrens in ... Covid in 2023, my doctors think the Sjogrens ... been treating as Fibro might be a Sjogrens

Discussion: Anyone tried Gabapentin for Fibromyalgia?

Support Group: Fibromyalgia

Posted: Dec 1, 2024

@hannahbernard1 definitely look thru some of the other listings Sjogren’s mentioned in other places and your...

https://connect.mayoclinic.org/comment/1180907/

look thru some of the other listings Sjogren

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Nov 27, 2024

Thanks, @deborahyost3. I too saw an eye doctor many years ago due to all the red...

https://connect.mayoclinic.org/comment/1180391/

That eye doc had also mentioned Sjogren

Discussion: Sjogren's likely - how to prepare for rheumatologist

Support Group: Autoimmune Diseases

Posted: Nov 26, 2024

My big question is whether or not I actually have Sjogren’s based on the new test...

https://connect.mayoclinic.org/comment/1177838/

is whether or not I actually have Sjogren

Discussion: Sjogren's likely - how to prepare for rheumatologist

Support Group: Autoimmune Diseases

Posted: Nov 22, 2024

I have Sjogren's and ILD. I have had Sjogren's for many years but I was diagnosed...

https://connect.mayoclinic.org/comment/1267420/

I have Sjogren's and ILD. ... I have had Sjogren's for many years

Discussion: Sjogrens and Lung issues

Support Group: Autoimmune Diseases

Posted: Mar 26 2:35pm