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Comments (2,264)

i had bms for many years with no diagnosis. finally tests determined sjogrens, no help but...

https://connect.mayoclinic.org/comment/104573/

diagnosis. finally tests determined sjogrens

Discussion: Burning mouth syndrome (BMS): Is this an autoimmune disease?

Support Group: Autoimmune Diseases

Posted: Jun 18, 2016

Colleen! YES YES YES!!!!! Thank You so very much!!!!!! YOU MADE MY DAY!! I"m hurting so...

https://connect.mayoclinic.org/comment/1151398/

I"m hurting so much from Sojgren

Discussion: Managing Small Fiber Neuropathy, Sjogren's, Hashimoto's

Support Group: Autoimmune Diseases

Posted: Oct 3, 2024

I had my first infusion of Rituximab yesterday. I promised to report on it and I...

https://connect.mayoclinic.org/comment/1048405/

diagnosis: SFN of legs brought on by Sjogren

Discussion: Managing Small Fiber Neuropathy, Sjogren's, Hashimoto's

Support Group: Autoimmune Diseases

Posted: Apr 10, 2024

@lorrielynn Here is a link to comments from other members who have mentioned insomnia and also...

https://connect.mayoclinic.org/comment/1240105/

have mentioned insomnia and also have Sjogren ... search=sjogrens%20and%20insomnia. ... you have already seen this but the Sjogren ... sleeping that might be helpful - https://sjogrens.org

Discussion: Insomia

Support Group: Autoimmune Diseases

Posted: Feb 18 3:07pm

My sjogrens is very very dry mouth, day and night. Can’t take the medication cause of...

https://connect.mayoclinic.org/comment/1241981/

My sjogrens is very very dry mouth,

Discussion: Insomia

Support Group: Autoimmune Diseases

Posted: Feb 21 8:07am

I was diagnosed with Systemic lupus and Sjögren’s over 30 years ago. Up until now I...

https://connect.mayoclinic.org/comment/1242684/

diagnosed with Systemic lupus and Sjögren

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 22 2:23am

I was diagnosed with hypothyroidism in 2008 due to high tsh levels. In 2015, a new...

https://connect.mayoclinic.org/comment/1248448/

I also have MCTD, Fibro, Sjrogren&#39

Discussion: Hashimoto's Disease

Support Group: Autoimmune Diseases

Posted: Mar 2 7:09am

Omgosh! I almost mimic you. Elevated PTH (80), normal calcium (9.7) and vitamin D (42.6). Range...

https://connect.mayoclinic.org/comment/1250597/

Have sjogrens, rheumatoid arthritis,

Discussion: Elevated PTH, normal calcium

Support Group: Diabetes & Endocrine System

Posted: Mar 4 7:36pm

Thank you so very much for your comments! They're very helpful and truly appreciated. I have...

https://connect.mayoclinic.org/comment/803381/

consuming and they are more so related to Sjögren

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 29, 2023

Yes, there is a medical connection between Sjorgens and Lymphoma. I would suggest to anyone with...

https://connect.mayoclinic.org/comment/1245353/

there is a medical connection between Sjorgens ... I would suggest to anyone with Sjorgens

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 25 2:21pm

I first discovered it it was for a balance problem that eventually was caused ultimately by...

https://connect.mayoclinic.org/comment/1247316/

eventually was caused ultimately by Sjogren ... IvIg is the only thing that works for Sjogren

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 28 11:16am

But, what are your symptoms? I see you mentioned “have had”…. But what are experiencing now?...

https://connect.mayoclinic.org/comment/1248057/

connective tissue disease (lupus, Sjögren

Discussion: What could my doctor be overlooking? ANA 1:1280

Support Group: Autoimmune Diseases

Posted: Mar 1 11:56am

I need something. I’m so tired of being unwell. I have severe digestive motility and it’s...

https://connect.mayoclinic.org/comment/1259117/

I’ve been bordering Sgogrens since 2017

Discussion: Possible Sjogrens Disease

Support Group: Autoimmune Diseases

Posted: Mar 16 6:39am

I've lost count of how many autoimmune diseases I have, not kidding. Maybe 20? I try...

https://connect.mayoclinic.org/comment/1258244/

Plus the usual ones like Lupus , Sjögrens

Discussion: How many autoimmune diseases can you have?

Support Group: Autoimmune Diseases

Posted: Mar 15 1:55am

Does anyone use medical marijuana for Sjögrens? I see in Illinois it is one of the...

https://connect.mayoclinic.org/comment/53245/

Does anyone use medical marijuana for Sjögrens

Discussion: Burning Mouth Syndrome. I have it very severe.

Support Group: Skin Health

Posted: Mar 30, 2019

@samflower I’m sorry you are dealing with this and I feel for you. If it was...

https://connect.mayoclinic.org/comment/1259160/

www.mayoclinic.org/diseases-conditions/sjogrens-syndrome

Discussion: Pulmonologist says I should be dead by now

Support Group: Autoimmune Diseases

Posted: Mar 16 7:47am

Thank you! Took some searching but I did find someone who specializes in sjogrens. See her...

https://connect.mayoclinic.org/comment/1259573/

did find someone who specializes in sjogrens

Discussion: Possible Sjogrens Disease

Support Group: Autoimmune Diseases

Posted: Mar 16 1:18pm

I had a biopsy from an ENT they take four glands out of your mouth. Second...

https://connect.mayoclinic.org/comment/1259017/

Second test an eye doctor test for Sjogrens ... I was positive for Sjogrens.

Discussion: Possible Sjogrens Disease

Support Group: Autoimmune Diseases

Posted: Mar 15 10:46pm

I have MCTD sjogren's, raynauds syndrome, photosensitive skin, fibromylygia, depression and anxiety.

https://connect.mayoclinic.org/comment/56443/

I have MCTD sjogren's, raynauds syndrome

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Aug 1, 2012

Yes for the IVIG, helps a little. I have small fiber neuropathy, Sojgrens. severe, severer pain...

https://connect.mayoclinic.org/comment/1233274/

I have small fiber neuropathy, Sojgrens

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Feb 9 7:39pm