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Comments (2,008)

Yes, the Actemra is quite forgiving. No noticeable side effects while on it either. It IS...

https://connect.mayoclinic.org/comment/1027121/

Yes, the Actemra is quite forgiving.

Discussion: Can you split Prednisone dose for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 4, 2024

I’m taking Actemra by injection every two weeks …second shot in a few days …will take...

https://connect.mayoclinic.org/comment/989975/

I’m taking Actemra by injection every

Discussion: Methotrexate / Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 1, 2024

You give me hope. I have started the Actemra self injecting pen every other week. So...

https://connect.mayoclinic.org/comment/1302609/

I have started the Actemra self injecting

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12 1:52pm

Are you aware that Actemra needs to be stopped if he has any infection? Prednisone puts...

https://connect.mayoclinic.org/comment/1045516/

Are you aware that Actemra needs to ... Maybe waiting until you know for sure Actemra

Discussion: What to tell adult kids? Dad diagnosed with giant cell arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2024

It would have been interesting if my IL-6 level was checked before starting a biologic medication...

https://connect.mayoclinic.org/comment/948477/

The medication was called Actemra ( ... https://www.actemra.com/gca/considerations ... After starting Actemra, I was able to

Discussion: PMR with normal blood markers

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 16, 2023

Hello @rkprice, Sorry to hear you have been struggling with your PMR and tapering off of...

https://connect.mayoclinic.org/comment/286805/

- Actemra (Tocilizumab) to treat ... /connect.mayoclinic.org/discussion/actemra-tocilizumab-to-treat-pmr

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 18, 2021

Unfortunately, I am still taking 17 mg of Prednisone and I have recently had to add...

https://connect.mayoclinic.org/comment/1217218/

I am taking weekly injections of Actemra ... almost 3 years so I am grateful that Actemra

Discussion: PMR and Work

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 20 8:48am

Thank you. Your summary here is very helpful to me as I just did my third...

https://connect.mayoclinic.org/comment/1308549/

as I just did my third injection of Actemra

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 20 11:06am

Hi @redboat My Medicare drug plan did not offer much help with Actemra. I would’ve been...

https://connect.mayoclinic.org/comment/1145440/

plan did not offer much help with Actemra

Discussion: Actemra coverage on Medicare in California?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 22, 2024

You are exactly right about the actions of Actemra tying up the receptor. I dug a...

https://connect.mayoclinic.org/comment/825002/

exactly right about the actions of Actemra

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 12, 2023

I was thinking that I would never get off Prednisone after taking Prednisone daily for more...

https://connect.mayoclinic.org/comment/1198629/

daily for more than 12 years With Actemra

Discussion: Just Started Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 28, 2024

Thanks for this information. I have an appt this Tuesday with my rheumatologist to discuss adding...

https://connect.mayoclinic.org/comment/1203771/

I want her to consider Actemra for me ... methotrexate, before Medicare will approve Actemra

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 4 12:38pm

Yes, I had PMR before the GCA symptoms started. It was never officially diagnosed, but starting...

https://connect.mayoclinic.org/comment/1201237/

worked out for you to get treated with Actemra ... Prednisone and Actemra both have some

Discussion: Precursor symptoms to PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 31, 2024

@dadcue So glad that you are finally off the prednisone because of the Actemra. This gives...

https://connect.mayoclinic.org/comment/1133701/

off the prednisone because of the Actemra ... discussed your concerns about being on Actemra

Discussion: Any Tips For Tapering Off Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 31, 2024

Especially tough to balance when I had a flare of uveitis almost as soon as I...

https://connect.mayoclinic.org/comment/1070431/

not on prednisone very long so after Actemra ... More frequent Actemra injections prevented

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2024

I have GCA. I split my prednisone dose after the first week, with my Doctor saying...

https://connect.mayoclinic.org/comment/1023608/

now tapered down to 10 mg daily plus Actemra

Discussion: Can you split Prednisone dose for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 27, 2024

I’m on Actemra self injecting every other week. After 3 injections I have reduced prednisone to...

https://connect.mayoclinic.org/comment/1317855/

I’m on Actemra self injecting every

Discussion: Actemra Infusions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1 10:33am

Are you seeing a rheumatologist? You might ask them, if you are a candidate for Actemra....

https://connect.mayoclinic.org/comment/1269654/

ask them, if you are a candidate for Actemra

Discussion: How to Slowly and Safely Taper Off Prednisone but ... no set rules.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 29 8:05pm

I am in the states, but somewhat familiar with the various medical studies because I had...

https://connect.mayoclinic.org/comment/873939/

worked on the clinical trials for Actemra

Discussion: Have you been able to taper prednisone with long lasting success?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 6, 2023

Hi @jayflo, I moved your discussion and combined it with this existing discussion, so that you...

https://connect.mayoclinic.org/comment/211443/

connect with members who’ve discussed Actemra

Discussion: New Diagnosis of Polymyalgia Rheumatica (Husband)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 8, 2019