Clear Search

To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
1,121 total results
Comments (1,090)
Wow, thanks everyone for sharing these experiences. Overall, it sounds like people are getting doctors to...
prescribe, and insurance to cover, Actemra ... when they "only" have PMR. ... , even if I only have PMR. ... Giant Cell Arteritis, in addition to PMR ... Especially if the PET scan only shows PMR
My PMR started back in 2013. And it was really touch and go with exercise but...
My PMR started back in 2013. ... three years I recover somewhat and PMR ... am still on 7 mg of prednisone plus Actemra
Posted: Jul 25, 2021
Same here! For many of those 50 years, I had inflammatory arthritis where I took high...
prednisone for years like I did for PMR ... #39;t know what was different about PMR ... Actemra was called a last resort. ... rheumatologist in Italy started her on Actemra ... wish I knew how her experience with Actemra
Posted: Apr 12 2:22pm
As far as I know she's still taking Actemra with no problems and also taking a...
far as I know she's still taking Actemra ... I guess people with PMR can take Kevzara ... now if their PMR is resistant to standard ... At that time it looked like Actemra ... I think Actemra has come down now to
Posted: Apr 12 3:12pm
Yes ... there are a couple of biosimilars to Actemra (tocilizumab). This is beneficial for people...
Kevzara was FDA approved for PMR 2023 ... the primary cytokine implicated in PMR ... Kevzara is only approved for PMR. ... If a person has both PMR and GCA, either ... I was diagnosed with refractory PMR
Posted: Apr 12 4:15pm
I was diagnosed with PMR and possible GCA in July 2024. Started on 60 mg. of...
I was diagnosed with PMR and possible ... requested that my rheumatologist order Actemra ... I chose to use Actemra due to the horrible ... I know that Actemra has it's own
"One usually stays on a dose that completely controls PMR pain until the inflammatory tests return...
on a dose that completely controls PMR ... discontinue prednisone which was why PMR ... inflammation markers but still have PMR ... I believe they have PMR because they ... were diagnosed with PMR.
I agree with you about continuing endurance exercise. What didn't work for me was long term...
my endurance and I don't think PMR ... overwhelming fatigue" at the start of PMR ... PMR pain decreased but then I had no ... PMR is well controlled by Actemra but ... My rheumatolgist says I still have PMR
Posted: Apr 12 8:01am
I was diagnosed with PMR and possible GCA in July 2024. Started on 60 mg. of...
I was diagnosed with PMR and possible ... I asked my rheumatologist to order Actemra ... Not back to pre-PMR, but much improved ... Actemra has increased my quality of ... Actemra also comes in a weekly self
Posted: Apr 24 8:23am
My rheumatologist says it is "unlikely" that I will get off Actemra unless it stops working....
;unlikely" that I will get off Actemra ... to me now which may work as well as Actemra ... Stopping PMR/GCA in its tracks is something
Posted: Apr 24 3:59pm
I, too, am interested in knowing if people are successful in stopping their Actemra. Friends and...
people are successful in stopping their Actemra ... Prednisone for years, before taking Actemra ... proactive in getting treatment for PMR ... discussion with her about how long her PMR ... /GCA patients have been taking Actemra
Posted: Apr 24 5:33pm
For now, I am happy to know that Actemra can be easily stopped. Prednisone can't be...
For now, I am happy to know that Actemra ... can't be stopped abruptly but Actemra ... PMR/GCA relapses do occur when Actemra ... After Actemra was restarted, I went ... for "just PMR." I was reporting
Posted: Apr 24 7:22pm
I can’t tell you all how reassuring this PMR site has been. I appreciate hearing your...
t tell you all how reassuring this PMR ... I am anxious to start Actemra after ... And Actemra may also help with bone
Hello @smoshetti, Welcome to Connect. Sorry your husband has to deal with PMR along with his...
Sorry your husband has to deal with PMR ... My PMR is now in remission. ... experience using methotrexate for PMR ... discussions helpful: -- Methotrexate / Actemra ... connect.mayoclinic.org/discussion/methotrexate-actemra
Posted: Jan 7 7:48am
When I was diagnosed with PMR/GCA, I tried to get out and do a short walk...
When I was diagnosed with PMR/GCA, I ... I've been taking Actemra infusions ... re-gained much of the stamina I had before PMR
Posted: May 10 8:56am