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Comments (613)
One of the many great aspects of this group is the shared lived experience. I too...
hearing others experiences such as pain ... in the wrists, hands and fingers. ... rheumatologist also said this cannot be PMR ... This pain has not been around in my ... hands for several weeks but 20 months
Welcome @razhuny, I see that @sharonanng has connected with you and shared her experience. I just...
also jump in and share that when my PMR ... was active, my wrists and hands were ... stiff and painful also. ... stiffness of the small joints of the hands ... in the hands (called carpal tunnel
Posted: Oct 12, 2022
Hi Christi, I'm just about to celebrate my 6th anniversary of being diagnosed with PMR, although...
anniversary of being diagnosed with PMR ... with prednisone was great with the pain ... vanishing overnight but hell began at the hands ... from 2.5 when I started feeling more pain ... pounds in 5 months mainly due to the pain
My journey with PMR began shortly after my 65th birthday and my 5th haircut. I shouldn’t...
My journey with PMR began shortly after ... up one morning in mid-June and the pain ... That’s when he handed me off to a rheumatologist ... move now without the excruciating pain ... I have PMR, I have Scottish ancestry
Thank you for writing in detail. I have just been diagnosis with PMR two weeks ago,...
I have just been diagnosis with PMR ... tunnel as you described in my left hand ... And painful arthritis thumb joint pain ... My veins in both hands are enlarged
Posted: Sep 11, 2022
My hands continue to be swollen and painful, especially in the morning. Rheumatologist says not PMR....
My hands continue to be swollen and ... painful, especially in the morning. ... Rheumatologist says not PMR. ... have the same issue as we deal with PMR ... Even when the pain is tolerable, it
Posted: Sep 6, 2022
PMR since November 2021. Commenced Prednisolone at 15mg daily, now down to 7mg. PMR, which began...
PMR since November 2021. ... past month descended to my wrists and hands ... No apparent swelling of hands or wrists ... My hands seem to have the same mobility ... my variant of the disease is just pain
Posted: Aug 26, 2022
I also have neuropathy in hands and feet. My rheumatologist says not PMR. I do not...
I also have neuropathy in hands and ... My rheumatologist says not PMR. ... When the dose of prednisone kicks in, hands ... are better and almost pain free in
Hi. I am new to the world of PMR and it's horrible....In the 90's I was...
I am new to the world of PMR and it& ... and eventually.I could not use my hands ... thinking it was RA but she thought PMR ... been on it since the 90's and my PMR ... it could do for PMR. .but I believe
Posted: Aug 10, 2022
I have been off Prednisone for 18 months but still have some PMR symptoms like mild...
for 18 months but still have some PMR ... and occasionally the dreaded butt pain ... The first trigger was pre-PMR diagnosis ... more serious as it is my dominant hand ... and painful.
No coincidence. Mine started after my Covid-19 vax in May 2021 and I went all summer...
and I went all summer in a lot of pain ... my second vax, I went into the full PMR ... mode of pain from the neck to shoulders ... , to arms, to hands (had to wear splints ... PMR does not run in my family, nor any
I found getting all the reports of the blood work into the Rheumatologist hands bot me...
blood work into the Rheumatologist hands ... I had experienced -when I had the pain ... what I took to try and alleviate the pain ... history and immediately suggested I had PMR
Hi @linda7, I, too, had pain all over my body from PMR from the neck down...
Hi @linda7, I, too, had pain all over ... my body from PMR from the neck down ... to the feet, arms and hands. ... of it as my "astronaut suit of pain
Posted: Apr 26, 2022
10 mg made a huge difference, but my hands were still painful. My doctor called to...
mg made a huge difference, but my hands ... were still painful. ... Although I was completely pain free, ... Now I’m having my 2nd bout with PMR ... My hands have had some amount of pain
My orthopedic doctor attributes my pain in shoulders, pelvis & hips, neck, and hands to autoimmune...
My orthopedic doctor attributes my pain ... shoulders, pelvis & hips, neck, and hands ... to autoimmune disease, probably to PMR ... I am nearly disabled by pain particularly ... rheumatologist confirms his hunch about PMR
Hello! My rheumatologist diagnosed me with PMR in 2/2021. My primary had been keeping me on...
My rheumatologist diagnosed me with PMR ... symptoms I had were characteristic of PMR ... added problem of carpal tunnel in both hands ... prednisone, unable to taper any lower yet (pain ... Anyone else have PMR without the lab
Hi Dalby, we must be twins! I turn age 80 in November, still have PMR, also...
turn age 80 in November, still have PMR ... I took myself off Pred for PMR in August ... massage & exercise of my achy hands ... NSAIDS so use only liquid Tylenol for pain
@eakin Movement helps my symptoms, sometimes, not all the time so more movement during the night...
night would male sense to feel less pain ... Pain wakes me up, often, because I move ... Pain in the am can definitely be less ... #39;m undiagnosed at this point with PMR ... in my hands, feet, shoulders, hips,
Posted: Oct 11, 2025
My PMR is atypical ,treatment resistant to steroids so have endured months of agony and extremely...
My PMR is atypical ,treatment resistant ... Almost immobilised at times with pain ... .Have been hospitalised for pain mgt ... and it has given me relief from the pain ... I’m still weak and my dexterity in hands
Posted: Aug 28, 2025