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My doctor put me on octreotide acetate ... Unfortunately, I had to stop the octreotide ... others had a reaction like that to the octreotide

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2021

Yes I did! My markers were increased even after my second treatment and my oncologist said...

https://connect.mayoclinic.org/comment/1534471/

since November 2024 I am taking octreotide

Discussion: Started PRRT treatment: Anyone experience tumor markers increasing?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24 2:19pm

Yes, I would say your throat clearing is from DIPNECH. Octreotide fixed that for me. Yes,...

https://connect.mayoclinic.org/comment/1330274/

Octreotide fixed that for me. ... oncologist so I receive my monthly octreotide

Discussion: DIPNCEH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2025

My octreotide injections are scheduled every 28 days, and my next 3 are on the calendar.....

https://connect.mayoclinic.org/comment/901161/

My octreotide injections are scheduled

Discussion: How long do I wait between injections and PET scans.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24, 2023

I have hair loss not sure if it is from PRRT treatment or the octreotide treatment...

https://connect.mayoclinic.org/comment/1389916/

if it is from PRRT treatment or the octreotide

Discussion: PRRT and hair loss

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 8, 2025

@kdubbs Welcome to the DIPNECH family as it’s rare. I have both DIPNECH and lung NETs...

https://connect.mayoclinic.org/comment/1391732/

I have been taking an octreotide injection ... I will never stop taking octreotide ... breast cancer meds 2 months before octreotide ... Octreotide is also supposed to slow ... No, I haven’t heard of octreotide through

Discussion: Biopsy showed DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11, 2025

Hi, who iz your oncologist? I see Dr. Diane Reidy-Lagunes and Lindsay Juste (at 53rd Street)...

https://connect.mayoclinic.org/comment/812159/

gives me my monthly injections of Octreotide

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

I did the Lanreotide injections for 3 months Then switched To Octreotide which I am currently...

https://connect.mayoclinic.org/comment/819293/

injections for 3 months Then switched To Octreotide

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

Hi, interesting. What is a octreotide scan then? I read that it helps find them...well, I'll...

https://connect.mayoclinic.org/comment/1388191/

What is a octreotide scan then?

Discussion: I saw the surgeon. More confused than ever.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 6, 2025

@nannybb I have extremely dry eyes as well. Did octreotide make it worse? I don’t know....

https://connect.mayoclinic.org/comment/1541536/

Did octreotide make it worse?

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2 8:10pm

Note: I am not a doctor - Yes, octreotide injections are much faster, however, the injector...

https://connect.mayoclinic.org/comment/1428265/

Note: I am not a doctor - Yes, octreotide ... Octreotide is usually recommended for

Discussion: PET Ga-68 Dodatate Scan & Octreotide LAR Injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2025

Thanks @hopeful33250 ! The PET was negative, I did a 5-day trial of short acting Octreotide...

https://connect.mayoclinic.org/comment/271268/

did a 5-day trial of short acting Octreotide ... They repeated the genetic test on the Octreotide

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2019

Hello 👋🏻 My treatment was with Octreotide (Sandostatina LAR30) One each 4 weeks, 18 doses. Between...

https://connect.mayoclinic.org/comment/794591/

;🏻 My treatment was with Octreotide ... treatment I had 3 PET CT with Ga 68 (octreotide

Discussion: PET Ga-68 Scan Scheduling vs. Most Recent Lanreotide Injection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2023

I have two carcinoid tumors on my liver and they have been there for many years....

https://connect.mayoclinic.org/comment/1111420/

I have been on octreotide monthly for ... I have just been on octreotide and the ... Why add Lutethera since you are on octreotide ... non-professional, I think just being on the octreotide

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2024

My surgeon suspects that I have a carcinoid tumor in my intestine and is going to...

https://connect.mayoclinic.org/comment/802671/

my intestine and is going to do a Octreotide

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 28, 2023

Were your tumors growing while you were on Octreotide and that is why you were given...

https://connect.mayoclinic.org/comment/1344050/

your tumors growing while you were on Octreotide