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108 total results
Comments (101)
Good evening @dipperlip1 ..........greetings. Are you 85 years old now? I just turned 82 on Monday....
https://connect.mayoclinic.org/comment/1028979/
read about your chronic symptoms of Erythromelalgia ... Are your Neuropathy symptoms recognizable ... Were you given a cause for your Neuropathy ... My SFN *small fiber neuropathy) has ... now controlling my SFN (small fiber neuropathy
Hello and thank you for this support group! I have been scanning through the posts to...
https://connect.mayoclinic.org/comment/1055898/
have non-length dependent small fiber neuropathy ... , erythromyelagia on my face, ears nose ... know why that is since small fiber neuropathy ... digestion, fatigue, burning skin (erythromyelagia
Welcome @jgoodall, A sunny disposition goes along way when dealing with neuropathy and a lot of...
https://connect.mayoclinic.org/comment/1055903/
;m not sure if you have seen these neuropathy ... .
--- Foundation for Peripheral Neuropathy ... /neuropathy-overview
You mentioned ... erythromyelagia and Sjogren’s along ... with the neuropathy.
I have erythromelalgia, and anything heat related makes it worse and makes my feet turn red...
https://connect.mayoclinic.org/comment/1040729/
I have erythromelalgia, and anything ... Tests for neuropathy come back negative ... There was no test for erythromelalgia ... neurologist finally diagnosed me with erythromelalgia ... There is no test for erythromelalgia
I had what I thought was erythromelalgia for 20 years. My feet were so painful. I...
https://connect.mayoclinic.org/comment/1097563/
I had what I thought was erythromelalgia ... I now have peripheral neuropathy from
John, thank you so much for the information. I will check out the sites you gave...
https://connect.mayoclinic.org/comment/708496/
I can deal with the neuropathy during ... to mention that I also suffer from Erythromelalgia
Not much helps and I also have Raynaud's and developed neuropathy about 2 years ago. Dr....
https://connect.mayoclinic.org/comment/817202/
also have Raynaud's and developed neuropathy ... either under his name or thru the Erythromelalgia
Mine started about 20 yrs ago. One big toe tingling. No answers from Dr. Down hill...
https://connect.mayoclinic.org/comment/807771/
Test show moderate to severe neuropathy ... with lower limbs and motor axonal neuropathy ... Thinking I have moved on to Eyrthromelalgia
At work but sure - I have cryptogenic/idiopathic small fiber polyneuropathy (non-length-dependent) verified via skin punch...
https://connect.mayoclinic.org/comment/616566/
have Cramp Fasciculation Syndrome and Erythromelalgia ... been shown to reverse small fiber neuropathy ... been shown to reverse small fiber neuropathy
I was searching for the connection between the COVID-19 vaccine and neurological issues like peripheral neuropathy,...
https://connect.mayoclinic.org/comment/616502/
neurological issues like peripheral neuropathy ... , Erythromelagia, tinnitus, autoimmunity
@curtj Has your wife been checked for Erythromelagia? I may have the spelling wrong here, but...
https://connect.mayoclinic.org/comment/327608/
Has your wife been checked for Erythromelagia ... about this disease somewhere in the Neuropathy
Hi geronimo.. Sure hope the F&M oils help you.. They don't do so for everybody, but...
https://connect.mayoclinic.org/comment/260530/
Seems to help mostly with small fiber neuropathy ... and has made a huge difference in my Erythromelalgia
@lorirenee1, Hi Lori, thanks so much for writing. Yes, the neuro consul...ugh, oh ugh. First off...
https://connect.mayoclinic.org/comment/256446/
will find out if I have large fiber neuropathy ... caused by a rare condition called Erythromelalgia
I am still rather lost on Connect.. Hopefully this is where I continue with my reports...
https://connect.mayoclinic.org/comment/260502/
reports on the Frankincense and Myrrh NEUROPATHY ... that I'm trying for Erythromelalgia ... and Neuropathy..
My symptoms sound a lot like yours. I have burning feet, legs, hands, and arms. My...
https://connect.mayoclinic.org/comment/630989/
My severe neuropathy started from a ... I read about Erythromelalgia after I ... like it could be caused by autonomic neuropathy
Guess I'm in the same boat as you.. It just isn't fun being sick all the...
https://connect.mayoclinic.org/comment/257233/
The Neuropathy does affect my walking ... also have the hot red burning feet (Erythromelalgia
burningfeetinphoenix... Your name says so much about your poor hot feet! I identify with you since...
https://connect.mayoclinic.org/comment/275330/
Erythromelalgia has been a bugaboo for ... for several years, then along came neuropathy ... Amazon called Frankincense and Myrrh NEUROPATHY ... feet and eases the crazy tingling of neuropathy
Hi, I am new to your forum, I have Erythromelagia, a nerve disorder (Neuropathy) as well...
https://connect.mayoclinic.org/comment/878871/
I am new to your forum, I have Erythromelagia ... , a nerve disorder (Neuropathy) as ... is refractory w/no cure like many Neuropathy ... Hope to hear from other neuropathy patient
Welcome @erythromelalgiaca, It's good to see you are doing research on the treatment. @4846, @lorilee13, @jenniferhunter...
https://connect.mayoclinic.org/comment/878902/
Welcome @erythromelalgiaca, It's ... The Foundation for Peripheral Neuropathy
Hello, I have not tried Acetyl L Carnitine and Alpha Lipoic Acid supplements. I will look...
https://connect.mayoclinic.org/comment/1057147/
from the Foundation for Peripheral Neuropathy ... have non-length dependent small fiber neuropathy ... possible) may reduce the sfn. and erythromyelagia
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