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108 total results
Comments (101)
Good evening @dipperlip1 ..........greetings. Are you 85 years old now? I just turned 82 on Monday....
read about your chronic symptoms of Erythromelalgia ... Are your Neuropathy symptoms recognizable ... Were you given a cause for your Neuropathy ... My SFN *small fiber neuropathy) has ... now controlling my SFN (small fiber neuropathy
Support Group: Neuropathy
Posted: Mar 6 11:38pm
Hello and thank you for this support group! I have been scanning through the posts to...
have non-length dependent small fiber neuropathy ... , erythromyelagia on my face, ears nose ... know why that is since small fiber neuropathy ... digestion, fatigue, burning skin (erythromyelagia
Support Group: Neuropathy
Posted: Apr 23 11:10am
Welcome @jgoodall, A sunny disposition goes along way when dealing with neuropathy and a lot of...
;m not sure if you have seen these neuropathy ... . --- Foundation for Peripheral Neuropathy ... /neuropathy-overview You mentioned ... erythromyelagia and Sjogren’s along ... with the neuropathy.
Support Group: Neuropathy
Posted: Apr 23 11:24am
I have erythromelalgia, and anything heat related makes it worse and makes my feet turn red...
I have erythromelalgia, and anything ... Tests for neuropathy come back negative ... There was no test for erythromelalgia ... neurologist finally diagnosed me with erythromelalgia ... There is no test for erythromelalgia
Support Group: Autoimmune Diseases
Posted: Mar 26 5:04pm
John, thank you so much for the information. I will check out the sites you gave...
I can deal with the neuropathy during ... to mention that I also suffer from Erythromelalgia
Support Group: Neuropathy
Posted: May 15, 2022
Mine started about 20 yrs ago. One big toe tingling. No answers from Dr. Down hill...
Test show moderate to severe neuropathy ... with lower limbs and motor axonal neuropathy ... Thinking I have moved on to Eyrthromelalgia
Support Group: Neuropathy
Posted: Feb 7, 2023
At work but sure - I have cryptogenic/idiopathic small fiber polyneuropathy (non-length-dependent) verified via skin punch...
have Cramp Fasciculation Syndrome and Erythromelalgia ... been shown to reverse small fiber neuropathy ... been shown to reverse small fiber neuropathy
Support Group: Neuropathy
Posted: Jul 14, 2021
Hi geronimo.. Sure hope the F&M oils help you.. They don't do so for everybody, but...
Seems to help mostly with small fiber neuropathy ... and has made a huge difference in my Erythromelalgia
Support Group: Neuropathy
Posted: May 21, 2019
I am still rather lost on Connect.. Hopefully this is where I continue with my reports...
reports on the Frankincense and Myrrh NEUROPATHY ... that I'm trying for Erythromelalgia ... and Neuropathy..
Support Group: Neuropathy
Posted: May 1, 2019
My symptoms sound a lot like yours. I have burning feet, legs, hands, and arms. My...
My severe neuropathy started from a ... I read about Erythromelalgia after I ... like it could be caused by autonomic neuropathy
Support Group: Neuropathy
Posted: Aug 29, 2021
Guess I'm in the same boat as you.. It just isn't fun being sick all the...
The Neuropathy does affect my walking ... also have the hot red burning feet (Erythromelalgia
Support Group: Neuropathy
Posted: Mar 30, 2019
burningfeetinphoenix... Your name says so much about your poor hot feet! I identify with you since...
Erythromelalgia has been a bugaboo for ... for several years, then along came neuropathy ... Amazon called Frankincense and Myrrh NEUROPATHY ... feet and eases the crazy tingling of neuropathy
Support Group: Neuropathy
Posted: Nov 28, 2019
Hi, I am new to your forum, I have Erythromelagia, a nerve disorder (Neuropathy) as well...
I am new to your forum, I have Erythromelagia ... , a nerve disorder (Neuropathy) as ... is refractory w/no cure like many Neuropathy ... Hope to hear from other neuropathy patient
Support Group: Neuropathy
Posted: Jun 15, 2023
Hello, I have not tried Acetyl L Carnitine and Alpha Lipoic Acid supplements. I will look...
from the Foundation for Peripheral Neuropathy ... have non-length dependent small fiber neuropathy ... possible) may reduce the sfn. and erythromyelagia
Support Group: Neuropathy
Posted: Apr 25 12:06pm