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243 total results

Comments (198)

@amherst, I'd like to also add my welcome and introduce you to other members who have...

https://connect.mayoclinic.org/comment/266728/

talking about the Optune system for glioblastoma

Discussion: Recurrent GBM and treatment options?

Support Group: Brain Tumor

Posted: Jul 29, 2019

That is a tough choice. Whatever you decide, it must be what is comfortable fro you....

https://connect.mayoclinic.org/comment/232913/

medicine offer to completely remove the glioblastoma

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Mar 24, 2019

Hello Everyone, First time on the Mayo chat. My daughter has Glioblastoma. She is heading into...

https://connect.mayoclinic.org/comment/1042490/

My daughter has Glioblastoma.

Discussion: CAR-T Cell Therapy: Introduce yourself and connect with others

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 29 10:04pm

His latest MRI of 8/5/2021 shows progression of the cancer. There is one more chemo that...

https://connect.mayoclinic.org/comment/625511/

chance of working on a non-methylated glioblastoma

Discussion: My Husband's journey with Glioblastoma

Support Group: Brain Tumor

Posted: Aug 11, 2021

Thanks for your comment! I watched a few more videos from Thomas Seyfried, PhD. yesterday and...

https://connect.mayoclinic.org/comment/1097602/

results…for example, multicentric glioblastoma ... ://glioblastomafoundation.org/news/glioblastoma-multiforme ... “The average life expectancy for glioblastoma

Discussion: Metabolic therapy for cancer

Support Group: Cancer

Posted: Jul 1 4:58pm

I am a 58 year old women who was diagnosed with glioblastoma in 2015. I was...

https://connect.mayoclinic.org/comment/821673/

year old women who was diagnosed with glioblastoma

Discussion: Friend has Brain Cancer Glioblastoma: What are the next steps?

Support Group: Brain Tumor

Posted: Mar 6, 2023

On January 6, 2021, I contacted the Cleveland Clinic, Duke, the Mayo Clinic, Sloan Kettering, and...

https://connect.mayoclinic.org/comment/323015/

alive and well after five years with glioblastoma

Discussion: My Husband's journey with Glioblastoma

Support Group: Brain Tumor

Posted: Jan 20, 2021

I am so glad I found this forum ! My husband had a mass removed a...

https://connect.mayoclinic.org/comment/1029567/

It was glioblastoma.

Discussion: Glioblastoma: My husband's journey, what's yours?

Support Group: Brain Tumor

Posted: Mar 7 10:30pm

Welcome to Connect, @barbaraak I'd like to bring others into this discussion, like @lmp1 @myminnie @spangles...

https://connect.mayoclinic.org/comment/199417/

discussion/side-effects-of-temodar/ - Glioblastoma

Discussion: 2nd year of Temodar for GBM: Should I expect worse side effects?

Support Group: Brain Tumor

Posted: May 9, 2018

Its hard to say that any of the cancers get the proper funding. I had prostate...

https://connect.mayoclinic.org/comment/1164826/

months later my wife was diagnosed with glioblastoma

Discussion: Why does prostate cancer only get 2-5% of funding breast cancer gets?

Support Group: Prostate Cancer

Posted: Oct 29 4:24pm

Hi Jo, I'm tagging a few other members -- @sandydominy1 @cbrice @user_che69bc66 @dfelix @IndianaScott @barbkaser --...

https://connect.mayoclinic.org/comment/184468/

barbkaser -- who have experience with glioblastoma

Discussion: Nerve Pain in Arm and Hand Following GBM Resection

Support Group: Brain Tumor

Posted: Feb 13, 2018

She had her biopsy on Tuesday and the initial pathology does not look good. They are...

https://connect.mayoclinic.org/comment/603446/

They are thinking glioblastoma.

Discussion: Thalamic brain neoplasm: What are our options?

Support Group: Brain Tumor

Posted: May 21, 2021

I agree that Optune staff has no real idea what wearing the device means on an...

https://connect.mayoclinic.org/comment/1097791/

Fortunately his Glioblastoma tumor was

Discussion: Multiple meningiomas in past, but now my new tumor is GBM4

Support Group: Brain Tumor

Posted: Jul 2 7:36am

My husband was doing well with Mass General’s research chemo abemaciclib, 17 months after diagnosis of...

https://connect.mayoclinic.org/comment/323005/

abemaciclib, 17 months after diagnosis of glioblastoma

Discussion: My Husband's journey with Glioblastoma

Support Group: Brain Tumor

Posted: Jan 6, 2021

I thought I had mine figured out but the MRI showed a new glioblastoma is trying...

https://connect.mayoclinic.org/comment/232912/

figured out but the MRI showed a new glioblastoma

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Mar 24, 2019

Hi, @tanyabaust. Welcome to Mayo Clinic Connect. Thanks for sharing about your diagnosis and your treatment...

https://connect.mayoclinic.org/comment/214955/

and your treatment experiences with glioblastoma

Discussion: Glioblastoma Multiforme and Cognitive Loss

Support Group: Brain Tumor

Posted: Jul 14, 2019

Thanks for your message! We have very similar stories to share! After I took care of...

https://connect.mayoclinic.org/comment/112519/

with me now with my husband's Glioblastoma

Discussion: Meet fellow Caregivers - Introduce yourself

Support Group: Caregivers

Posted: Nov 17, 2019

Kevin was my loving husband for over 35 years and he was an amazing father to...

https://connect.mayoclinic.org/comment/298394/

During his year with Glioblastoma he

Discussion: I'm so sad

Support Group: Loss & Grief

Posted: Mar 6, 2020

I found that it was hard and repetitive in keeping everyone up to date with my...

https://connect.mayoclinic.org/comment/870567/

date with my wife's journey with glioblastoma

Discussion: Glioblastoma Grade 4: How do handle family conversations, sharing?

Support Group: Brain Tumor

Posted: Jun 1, 2023

Welcome @rosez. I feel your sadness. I've added your message to the Caregivers group (https://connect.mayoclinic.org/group/caregivers/) as...

https://connect.mayoclinic.org/comment/310060/

interested in this discussion: - Glioblastoma

Discussion: So sad: Husband has glioma and I feel he is fading away

Support Group: Brain Tumor

Posted: May 9, 2020