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131 total results
Comments (128)
Kevzara is now an option for me since it was FDA approved for PMR in February...
When I started on Actemra (Tocilizumab ... ) in January of 2019, Actemra was FDA ... The other indication for Actemra was ... I took Prednisone for 12 years. ... Now my PMR is said to be in remission
Posted: Nov 11, 2024
I don't have any experience with Kevzara. I have taken Actemra for PMR for a long...
I have taken Actemra for PMR for a long ... Kevzara and Actemra are similar and ... Both Kevzara and Actemra are both IL ... and also whether or not PMR is in remission ... cortisol level improved and PMR was in remission
Posted: Oct 2, 2024
No real insight except to say Actemra works well for me. I'm glad you were able...
#39;m glad you were able to get off Prednisone ... I have been off Prednisone for close ... to taper off like we have to with Prednisone ... If you feel well being off Prednisone ... Many people do have a "sustained remission
Posted: Sep 20, 2024
I wasn’t on prednisone but only actemra when I got sick. I was on prednisone from...
I wasn’t on prednisone but only actemra ... I was on prednisone from 2018 to 2022 ... Took Actemra infusions from 2022 to ... not been sick for 10 months on the actemra ... It did put me into remission where I
Posted: Sep 10, 2024
When I was on prednisone alone I could never get down to 5 mg let alone...
When I was on prednisone alone I could ... that quickly when a biologic called Actemra ... per week when I was doing Actemra injection ... This assumes PMR is in remission. ... Kevzara might help to get PMR into remission
Posted: Sep 3, 2024
The following link is a good place to start. https://www.pmrandil6.com/il-6-and-pmr/ --------------------------------------------- IL-6 is a cytokine (protein...
With any luck you won't need Prednisone ... you still need to taper slowly off prednisone ... chance to recover from the effects Prednisone ... PMR has been in remission thanks to ... I have been completely off Prednisone
Posted: Aug 12, 2024
PMR struck me when I was 52. I want to forget about my 50's decades for...
rheumatologist said I was too young to take Prednisone ... Five years on Actemra has made a world ... #39;t know if all my problems are in remission ... ophthalmologist doesn't think Actemra ... My rheumatologist wants me on Actemra
Wow 😮 we are a mess, aren’t we?! When I was first diagnosed with “Reiters syndrome”...
treated with Indocin, aspirin and prednisone ... a year of arthritis , I went into remission ... period I received short treatments with prednisone ... Mostly I’ve been treated with prednisone ... effects, so now doctor wants me to try Actemra
Posted: Aug 7, 2024
Reactive arthritis derives its name from a "reaction to an infection." https://www.mayoclinic.org/diseases-conditions/reactive-arthritis/symptoms-causes/syc-20354838 It used to be...
High dose Prednisone followed by a fast ... taper resulted in remission each time ... PMR, when I could never taper off Prednisone ... until a biologic called Actemra (tocilizumab
Posted: May 24, 2024
I was diagnosed with PMR late 2015 with prednisone the drug of "choice" . After about...
diagnosed with PMR late 2015 with prednisone ... was weaned off and seemed to be in remission ... on 6mg prednisolone daily and 10mg Actemra ... Actemra seems not to have given me any
Were you on Actemra for GCA? Did Actemra help with getting GCA into remission? I was...
remission? ... I got completely off Prednisone. ... A sustained remission is the goal of ... patients who are unable to taper off Prednisone ... still very active, you are not in remission
Kevzara wasn't available for PMR when my rheumatologist wanted me to try a biologic for "refractory...
I was on daily prednisone for 12 years ... Actemra (tocilizumab) was tried because ... In one year, I was off prednisone and ... Actemra was stopped because it wasn& ... uveitis because it went back into remission
Posted: Feb 21, 2024
Just be aware of the symptoms of secondary adrenal insufficiency from long term prednisone use. Interestingly,...
while PMR stays in remission. ... seem to have any side effects from Actemra ... If and when Actemra stops working, my ... easy to stop Actemra as long as PMR ... stays in remission.
Posted: Dec 5, 2023
I have PMR and GCA diagnosed Jan. 2023. Having been on high doses of prednisone since...
Having been on high doses of prednisone ... then I have been able to taper my prednisone ... to 9mg daily due to Actemra injections ... slight PMR stiffness after taking Actemra ... hoping my PMR eventually goes into remission
Discussion: Actemra
Support Group: Autoimmune Diseases
Posted: Nov 28, 2023
I had a long history of reactive arthritis with uveitis diagnosed 20 years before PMR was...
I took massive amounts of prednisone ... quickly after remission was achieved ... I eventually got off prednisone after ... Actemra was tried. ... Actemra worked well for PMR so I had
Discussion: Autoimmune changes
Posted: Nov 26, 2023
I had multiple flare-ups over the 12 years I was diagnosed with PMR. I'm still diagnosed...
still isn't known if I'm in remission ... to take enough prednisone each and ... I do a monthly infusion of Actemra ( ... With prednisone, I needed to decide ... daily how much prednisone to take.
Posted: Oct 6, 2023
@nyxygirl Very interesting information. Thank-you I might delve into inflammation pathways more. I don't understand much...
The IL-6 receptor blockade that Actemra ... is now documenting that PMR is in remission ... whether or not PMR will remain in remission ... when Actemra is stopped. ... because I no longer worry about how much prednisone
Posted: Jul 3, 2023
I have an upcoming rheumatology visit. I need to decide where I want to go from...
How does one know when remission has ... The only definition of remission of ... I have been off prednisone for 3 years ... and I should stay away from prednisone ... I have no desire to go back on prednisone
Posted: Apr 15, 2023
Did you have glaucoma before or after starting prednisone? If you had pre-existing glaucoma then prednisone...
glaucoma before or after starting prednisone ... better if there was another option like Actemra ... I had no idea what all prednisone was ... I didn't need to take prednisone ... The uveitis would go back into remission
Here's a paper describing a randomized control trial showing the effectiveness of Actemra (tocilizumab) against Giant...
trial showing the effectiveness of Actemra ... Compared to prednisone only, tocilizumab ... really helped with reducing remission ... The best group received tapered prednisone ... The worst results were prednisone only