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177 total results
Comments (173)
Welcome! I'm sorry your have been diagnosed with PMR. I hope your journey with PMR goes...
https://connect.mayoclinic.org/comment/870584/
. "Long term" prednisone is ... the treatment until we take prednisone ... to tell their patients to taper off prednisone ... still PMR but it "might be in remission ... " thanks to Actemra (tocilizumab
I'm not on Kevzara but I do take Actemra (tocilizumab) for PMR along with some other...
https://connect.mayoclinic.org/comment/855441/
#39;m not on Kevzara but I do take Actemra ... Actemra is in the same classification ... Both Kevzara and Actemra are IL-6 receptor ... I have taken Actemra for 4 years. ... problem list but it now says "in remission
My ophthalmologist didn't like me being on prednisone either. My intraocular pressures seemed to vary depending...
https://connect.mayoclinic.org/comment/831351/
a year after Actemra was started. ... Actemra allowed me to be able to stay ... I needed to stop Actemra a couple of ... responded quickly and it went back into remission ... I chose Actemra.
Do you still take Actemra for PMR? Have you been able to stay in remission when...
https://connect.mayoclinic.org/comment/824157/
Have you been able to stay in remission ... I might be in remission but my rheumatologist ... I took prednisone for more than 12 years ... for PMR and never did achieve remission ... Actemra allowed me to taper off prednisone
I have tried Actemra via injection the results were impressive for pain reduction however I previously...
https://connect.mayoclinic.org/comment/751352/
I have tried Actemra via injection the ... diverticulitis and it is a contradiction to actemra ... for now, i would rather stay with prednisone ... decided to battle it through with prednisone ... once in those 4 yrs and the remission
I will probably never recover from the effects of the prednisone in my treatment. It did...
https://connect.mayoclinic.org/comment/1457254/
never recover from the effects of the prednisone ... It did bring remission of the GCA. ... In addition, prednisone activated severe ... All of this started before I began Actemra ... No more prednisone!
@raven1955 I would echo everything you posted because 12 years of PMR was a long, slow...
https://connect.mayoclinic.org/comment/1452741/
the form of Actemra (tocilizumab). ... dose by 1 mg per week after Actemra ... in remission while I stayed on 3 mg ... As long as PMR stayed in remission with ... doing a good job at keeping things in remission
@gertrudedallas Actemra was started primarily for PMR but I have multiple autoimmune conditions. People may not...
https://connect.mayoclinic.org/comment/1450463/
@gertrudedallas
Actemra was started ... However, remission of uveitis was relatively ... for 12 years until Actemra was tried ... For me Actemra worked for PMR but it ... my other autoimmune conditions in remission
The strategy of waiting 6 months until my cortisol level to improve wasn't exactly a strategy....
https://connect.mayoclinic.org/comment/1408691/
When I actually went to zero prednisone ... I needed Prednisone again because my ... The uveitis flare went back into remission ... I chose Actemra. ... I needed Prednisone again one other
To: Mike, sjc123 You asked why we're switching from Actemra to Rinvoq—great question. Here’s the backstory:...
https://connect.mayoclinic.org/comment/1407561/
asked why we're switching from Actemra ... After a long stretch in remission from ... That meant going back up to 40 mg of prednisone ... as a possibility, so we increased prednisone ... helping me reach our target of 3–5 mg of prednisone
A slow taper isn't necessary for all conditions. I could do 60 mg to -0- within...
https://connect.mayoclinic.org/comment/1341138/
Eventually, I was able to taper off Prednisone ... After Actemra was started for PMR, I ... was able to taper off Prednisone again ... a month or two to put it back into remission ... I only do a monthly infusion of Actemra
Hello jeanrod825 My diagnosis of GCA was October 2024 too ! Albeit mine is large vessel...
https://connect.mayoclinic.org/comment/1300749/
Side effects of Actemera nil except ... I was in remission by the first month ... treatment , and so far remained in remission ... me well again, put and kept me in remission ... large cumulative doses of damaging prednisone
I agree with Jeff97. I doubt whether your taking enough of the steroid. 2 months is...
https://connect.mayoclinic.org/comment/1283076/
is not a very long time to go into remission ... If you are taking Actemra that can take ... Actemra does not work for everyone. ... You need to google "prednisone and ... . 2mg of Dex is equivalent to 10mg prednisone
Sounds like GCA and am glad they have started treatment. Classic symptoms. Have had GCA, not...
https://connect.mayoclinic.org/comment/1242342/
On Prendnison January to August, then ... started on Actemra IV once a month. ... I expect to be on Actemra for another ... her how will she know when I am in remission ... Actemra can cause cancer.
@dadcue ,@cgm You know already that we are in that same boat, unfortunately. I was diagnosed...
https://connect.mayoclinic.org/comment/1155687/
I was treated with a fast taper of prednisone ... And then I went into remission for 20 ... now and my doctor wants me to take Actemra ... so hopefully I can get off the prednisone
It is interesting that you had a flare of psoriasis after stopping Prednisone. Has anyone ever...
https://connect.mayoclinic.org/comment/1150891/
flare of psoriasis after stopping Prednisone ... of uveitis as soon as I tapered off Prednisone ... After uveitis was in remission, I was ... stuck on 15 mg of Prednisone again ... I chose Actemra and tapered off prednisone
I think methotrexate (MTX) is a good medication to try. It is probably the most widely...
https://connect.mayoclinic.org/comment/1128816/
admit MTX was helping me reduce my Prednisone ... It took me 12 years to get off Prednisone ... MTX was a prerequisite for getting Actemra ... The goal should be "sustained remission ... health choice" than long term prednisone
When do you start the Actemra infusions? I hope you have an excellent response to Actemra....
https://connect.mayoclinic.org/comment/1109249/
When do you start the Actemra infusions ... you have an excellent response to Actemra ... Remission was quickly achieved for all ... when Actemra was tried. ... My rheumatologist says Acterma is an
@krueg and @julie4868 Being on Actemra infusions for 17 and 14 months respectively seems like a...
https://connect.mayoclinic.org/comment/1023124/
Actemra won't work for everyone. ... By contrast, I was on prednisone for ... During much of the 12 years my prednisone ... but you should be able to achieve remission ... I'm not so sure Actemra, prednisone
In the first week after PMR diagnosis, I have needed to increase prednisone from 10 to...
https://connect.mayoclinic.org/comment/1007978/
diagnosis, I have needed to increase prednisone ... rheumatologist I have no alternative to prednisone ... until I am in remission, then can try ... Actemra is not an option for me because
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