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121 total results
Comments (118)
Reactive arthritis derives its name from a "reaction to an infection." https://www.mayoclinic.org/diseases-conditions/reactive-arthritis/symptoms-causes/syc-20354838 It used to be...
High dose Prednisone followed by a fast ... taper resulted in remission each time ... PMR, when I could never taper off Prednisone ... until a biologic called Actemra (tocilizumab
Posted: May 24, 2024
I was diagnosed with PMR late 2015 with prednisone the drug of "choice" . After about...
diagnosed with PMR late 2015 with prednisone ... was weaned off and seemed to be in remission ... on 6mg prednisolone daily and 10mg Actemra ... Actemra seems not to have given me any
Were you on Actemra for GCA? Did Actemra help with getting GCA into remission? I was...
remission? ... I got completely off Prednisone. ... A sustained remission is the goal of ... patients who are unable to taper off Prednisone ... still very active, you are not in remission
Kevzara wasn't available for PMR when my rheumatologist wanted me to try a biologic for "refractory...
I was on daily prednisone for 12 years ... Actemra (tocilizumab) was tried because ... In one year, I was off prednisone and ... Actemra was stopped because it wasn& ... uveitis because it went back into remission
Posted: Feb 21, 2024
Just be aware of the symptoms of secondary adrenal insufficiency from long term prednisone use. Interestingly,...
while PMR stays in remission. ... seem to have any side effects from Actemra ... If and when Actemra stops working, my ... easy to stop Actemra as long as PMR ... stays in remission.
Posted: Dec 5, 2023
I have PMR and GCA diagnosed Jan. 2023. Having been on high doses of prednisone since...
Having been on high doses of prednisone ... then I have been able to taper my prednisone ... to 9mg daily due to Actemra injections ... slight PMR stiffness after taking Actemra ... hoping my PMR eventually goes into remission
Discussion: Actemra
Support Group: Autoimmune Diseases
Posted: Nov 28, 2023
I had a long history of reactive arthritis with uveitis diagnosed 20 years before PMR was...
I took massive amounts of prednisone ... quickly after remission was achieved ... I eventually got off prednisone after ... Actemra was tried. ... Actemra worked well for PMR so I had
Discussion: Autoimmune changes
Posted: Nov 26, 2023
I had multiple flare-ups over the 12 years I was diagnosed with PMR. I'm still diagnosed...
still isn't known if I'm in remission ... to take enough prednisone each and ... I do a monthly infusion of Actemra ( ... With prednisone, I needed to decide ... daily how much prednisone to take.
Posted: Oct 6, 2023
@nyxygirl Very interesting information. Thank-you I might delve into inflammation pathways more. I don't understand much...
The IL-6 receptor blockade that Actemra ... is now documenting that PMR is in remission ... whether or not PMR will remain in remission ... when Actemra is stopped. ... because I no longer worry about how much prednisone
Posted: Jul 3, 2023
I have an upcoming rheumatology visit. I need to decide where I want to go from...
How does one know when remission has ... The only definition of remission of ... I have been off prednisone for 3 years ... and I should stay away from prednisone ... I have no desire to go back on prednisone
Posted: Apr 15, 2023
Did you have glaucoma before or after starting prednisone? If you had pre-existing glaucoma then prednisone...
glaucoma before or after starting prednisone ... better if there was another option like Actemra ... I had no idea what all prednisone was ... I didn't need to take prednisone ... The uveitis would go back into remission
Here's a paper describing a randomized control trial showing the effectiveness of Actemra (tocilizumab) against Giant...
trial showing the effectiveness of Actemra ... Compared to prednisone only, tocilizumab ... really helped with reducing remission ... The best group received tapered prednisone ... The worst results were prednisone only
I have tapered to .5 mg of prednisone after being on it for more than 4...
I have tapered to .5 mg of prednisone ... Starting Actemra 6 months ago had allowed ... this and has basically put me into remission
Discussion: PMR and exhaustion
Posted: Jan 12, 2023
Yes, I was on prednisone many times for both GCA and PMR but now Actemra has...
Yes, I was on prednisone many times ... for both GCA and PMR but now Actemra ... The prednisone, over the years, has ... I just would like to be in remission
Posted: Jun 13, 2022
Hi there. I was diagnosed last year with PMR and just recently with GCA. I was...
I had been on 20mg of prednisone for ... looking forward to tapering down the prednisone ... entirely and I am also hoping the Actemra ... will put the PMR into remission as ... Anyone having good results with Actemra
Hello @artist01, Welcome to Mayo Clinic Connect. It sounds like you have a very understanding doctor...
do have PMR which is currently in remission ... - What's your experience with Actemra ... temperol-arteritis-or-giant-cell-arteritis/ Are you still taking prednisone ... along with the Actemra?
I was able to completely taper off prednisone twice. Both times from the 10-15 mg range...
I was able to completely taper off prednisone ... ophthalmologist --- I decided to restart Actemra ... can't say that I want to take Actemra ... a remission of PMR. ... So far, things seem much better on Actemra
"With testing, PMR was declared in remission at 10." ---------------------- How was this done? There is...
;With testing, PMR was declared in remission ... Most of the things I read is that remission ... However, when Actemra was started it ... again when I go too long without an Actemra ... The criteria that remission is achieved
Posted: Nov 6, 2024
well thats the thing. just like what started the disease everyone is different. I think there...
was also on an equivalent of 10mg prednisone ... If Dadcue responds he was on prednisone ... for 10 plus years and still taking Actemra ... would say likely your PMR is not in remission
Posted: Jun 25, 2024
marymckeith here is the response from the lady on the other facebook page I belong to....
Was on 2-3 mg of prednisone after the ... I tried Actemra didn't work, he ... be working or I went in spontaneous remission
Posted: Jun 10, 2024