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Comments (10,000+)

Hi everyone, Two months after recovering from a bad bout of Covid (tested positive in late...

https://connect.mayoclinic.org/comment/922794/

(this past Tuesday, 8/29/23), with PMR ... currently on 60 mg of steroids for PMR

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 2, 2023

I'm 79 with "extreme risk" osteoporosis and really didn't want to use prednisone, but the pain...

https://connect.mayoclinic.org/comment/904886/

possible side condition and that the PMR ... " (My assumption had been that PMR

Discussion: Do I have polymyalgia rheumatica?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 30, 2023

Just my opinion but I feel that pain should be gone or nearly gone before starting...

https://connect.mayoclinic.org/comment/818764/

my opinion) are hellbent to get a PMR ... PMR forum discussions are a very important

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 28, 2023

Hello, This hurricane has been So scary, happy to hear you are safe. My path sounds...

https://connect.mayoclinic.org/comment/759098/

doctor was worried I may not have PMR ... easy and so much is unknown about PMR

Discussion: Increasing unrelenting pain - PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 9, 2022

Hi Dawn, my carpal tunnel diagnosis earlier this year came when my PMR came out of...

https://connect.mayoclinic.org/comment/132372/

diagnosis earlier this year came when my PMR ... back on 20mg of prednisone for the PMR

Discussion: Carpal Tunnel Syndrome Or Tendonitis?

Support Group: Bones, Joints & Muscles

Posted: Jan 9, 2017

I don't have that problem with Actemra infusions. Medicare pays for biologic infusions because they aren't...

https://connect.mayoclinic.org/comment/1190254/

because I was only diagnosed with PMR ... Actemra "should work" for PMR

Discussion: Flare

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 14, 2024

Wow! Is it ever an eye opener for me read your story. It's also a good...

https://connect.mayoclinic.org/comment/1162860/

My PMR is in remission but I have had ... gluten free diet to go along with your PMR

Discussion: PMR and Celiac Disease

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 26, 2024

Steroids. All steroids can wreck havoc on your body. The most common one for PMR is...

https://connect.mayoclinic.org/comment/1137329/

The most common one for PMR is Prednisone ... 's not just the Prednisone for PMR

Discussion: Effects of Prednisone on Eyes

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 6, 2024

I think the 5.9 years as the "average" duration of PMR came from the following study....

https://connect.mayoclinic.org/comment/910917/

the "average" duration of PMR ... repeatedly said the average duration of PMR

Discussion: The lowest effective dose, how is it defined?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 10, 2023

Good luck with Actemra and I hope it works for you. It will take some time...

https://connect.mayoclinic.org/comment/836001/

and a low cortisol level can mimic PMR ... flares" which may or may not be PMR

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 2, 2023

What a range of experiences we have all had with PMR, and it is distressing to...

https://connect.mayoclinic.org/comment/815524/

of experiences we have all had with PMR ... My doctor said, “you have PMR, I’ve

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 22, 2023

I have not yet officially been diagnosed with polymyalgia rheumatica but will see a rheumatologist at...

https://connect.mayoclinic.org/comment/286652/

even worse and then was told that PMR ... are has anyone else experienced a PMR

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 11, 2020

I never had symptoms like you have described the two times I was on prednisone for...

https://connect.mayoclinic.org/comment/1259605/

two times I was on prednisone for my PMR

Discussion: Prednisone Side Effects

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 16 1:59pm

@groksvaag, I think you are correct but I have no medical experience other than having PMR...

https://connect.mayoclinic.org/comment/1327766/

medical experience other than having PMR

Discussion: Weight based prednisone dosing

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 15 1:03pm

I have found that 15 minutes in a steam sauna 3 or 4 times a week...

https://connect.mayoclinic.org/comment/1194742/

not seemed to alter the course of my pmr

Discussion: Use of a sauna with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 21, 2024

Sorry to hear that your recovery is not going well after removing the ankle hardware and...

https://connect.mayoclinic.org/comment/1176166/

doctor but I'm thinking if your PMR

Discussion: Does pmr slow down healing?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 19, 2024

I've been on prednisone beginning in late June of last year for GCA and PMR. I...

https://connect.mayoclinic.org/comment/1224933/

late June of last year for GCA and PMR

Discussion: Moonface

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 29 5:20pm

I am on 5 mg pred til I see rheumatology next week. Supposed to get crp/esr...

https://connect.mayoclinic.org/comment/1115041/

Pmr, cppd, oa, tendonitis.

Discussion: Prednisone Tapering or Something Else Going on

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 31, 2024

I just saw these webinars on the PMRGCAUK website and thought they might be helpful. --...

https://connect.mayoclinic.org/comment/1092242/

Hidden complexities in PMR and GCA -

Discussion: I keep relapsing when I try to get off prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 23, 2024

3 months ago that happened to me too …got trigger finger for middle finger on both...

https://connect.mayoclinic.org/comment/1068966/

to my knees hips and neck …I’ve had PMR

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 16, 2024