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Comments (10,000+)

I have managed to keep with my pre-PMR exercise routine and usually feel better after working...

https://connect.mayoclinic.org/comment/749184/

I have managed to keep with my pre-PMR

Discussion: PMR and exercise: What helps you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 13, 2022

I'm so sorry to hear this and completely sympathize with your situation. 40mg is definitely a...

https://connect.mayoclinic.org/comment/738598/

they're not actually treating the PMR

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 17, 2022

Your story brought to light a similar path to trying to understand what was going on...

https://connect.mayoclinic.org/comment/667095/

my muscles in the earliest days of PMR

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 2, 2022

Noooo. My fam doc only referred me when my CRP was 33.6. I told him I...

https://connect.mayoclinic.org/comment/666900/

called me and said it sounds like PMR

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 1, 2022

I'm now two years with PMR and down to 3-1/4 mgs. Prednisone which I take in...

https://connect.mayoclinic.org/comment/664095/

I'm now two years with PMR and down

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 21, 2021

Welcome to the group! I too am tapering after a severe bout of PMR that started...

https://connect.mayoclinic.org/comment/610021/

am tapering after a severe bout of PMR

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 19, 2021

I am also relatively new to PMR barbq and I was at a stage where I...

https://connect.mayoclinic.org/comment/286868/

I am also relatively new to PMR barbq

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 16, 2021

Hi @dreamer38, I'm 76 and even though my PMR is in remission I have the same...

https://connect.mayoclinic.org/comment/138111/

dreamer38, I'm 76 and even though my PMR

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 18, 2020

Hi @dreamer38, are you able to try splitting the dosage so that you are taking some...

https://connect.mayoclinic.org/comment/138049/

think regular pain pills work for PMR

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 31, 2019

Well don't feel bad, now let me tell you what I tried. I had been on...

https://connect.mayoclinic.org/comment/169629/

Yes they say the PMR will go away by

Discussion: New to PMR and worried about Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 28, 2017

Edwardh, I've posted before about having muscle problems. I have GCA and PMR, and started having...

https://connect.mayoclinic.org/comment/1211086/

I have GCA and PMR, and started having

Discussion: Prednisone cumulative dose in PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 14 7:46am

jmdougherty: Do not have PMR just Giant Cell Arteritis and have been on Prednisone 80, 100,...

https://connect.mayoclinic.org/comment/1254874/

jmdougherty: Do not have PMR just Giant

Discussion: Actrema advice

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 10 2:22pm

I received my first Actemra infusion in January 2025. I started feeling better about 3 weeks...

https://connect.mayoclinic.org/comment/1256045/

good as I've felt, since before PMR

Discussion: Should I have temporal biopsy for GCA even after 8 weeks prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 12 8:07am

"If the doctor is in too big a hurry to get you off prednisone, that can...

https://connect.mayoclinic.org/comment/1335121/

#34; because they were sure it was PMR

Discussion: Decreasing Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25 4:26pm

"I’m feeling very fatigued now as I’m getting to the lower doses but in my gut...

https://connect.mayoclinic.org/comment/1378050/

lower doses but in my gut I think the PMR

Discussion: PMR and Flu Vaccine

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 24 9:27am

back to the beginning for me It was Thanksgiving 2018. I got up that morning or...

https://connect.mayoclinic.org/comment/923166/

researched rheumatic conditions, found pmr ... called my pcp, told her I thought that pmr ... He agreed with the pmr diagnosis.

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 2, 2023

I was put on 12 - 15 mg pred almost a year ago - told to...

https://connect.mayoclinic.org/comment/628429/

pred was a revelation as my horrible PMR ... quickly, and it's not a return of PMR ... happens in different places for me than PMR

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 21, 2021

Thank you for sharing your experiences. It sounds like you have a good working relationship with...

https://connect.mayoclinic.org/comment/1368125/

help when I was on Prednisone for PMR

Discussion: Questions for people taking Actemra and Kevzara injections

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 11 6:54am

Glad to hear someone else had the same feelings as I did using methylprednisolone. I am...

https://connect.mayoclinic.org/comment/1209015/

I am not far into PMR.

Discussion: Comprehensive Overview Of PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 11 10:44am

Yes ... I think this approach works for many people especially in the early stages. It...

https://connect.mayoclinic.org/comment/1241520/

do a split dose for the duration of PMR

Discussion: Prednisone dosage split

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 20 12:19pm