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1,232 total results

Comments (1,164)

Actemra is not FDA approved for the treatment of only PMR. Actemra was FDA approved about...

https://connect.mayoclinic.org/comment/860860/

My rheumatologist now says Kevzara might

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 16, 2023

I would recommend you go to 10 and stay there for a couple of weeks to...

https://connect.mayoclinic.org/comment/1336505/

re also taking a biologic drug like Kevzara

Discussion: Decreasing Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 27 2:01pm

I have seronegative spondyloarthropathy diagnosed as reactive arthritis. I was HLA-B27+ along with uveitis and excruciating...

https://connect.mayoclinic.org/comment/861552/

It might be easier to get Kevzara approved ... Medicare should cover Kevzara since ... of the cost of doing infusions of Kevzara

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 17, 2023

Hello all, Several folks asked me to report on my Kevzara experience when I could, so...

https://connect.mayoclinic.org/comment/1044434/

Several folks asked me to report on my Kevzara ... I started Kevzara in November of 2023 ... which every other Sunday I took my Kezvara ... Is the next step a taper off the Kezvara ... No side effects from the Kezvara.

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 2, 2024

Hi~ I am 55, and I have been dealing with PMR for about 9 years. I...

https://connect.mayoclinic.org/comment/1052932/

Rheumatologist wants me to start on Kevzara ... 🙄 Has anyone been on Kevzara

Discussion: Starting treatment with Kevzara: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 18, 2024

I have never had IL-6 testing done. It does seem like it could be a useful...

https://connect.mayoclinic.org/comment/1132059/

PMR and considers a biologic like Kevzara

Discussion: methotrexate or kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 28, 2024

Ironically I was going to post and ask about this medication. I ran into my doc...

https://connect.mayoclinic.org/comment/934097/

is calling my pharmacy to start my Kevzara

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 22, 2023

@southtexas @pointer134 @sandiw77 @kberlyhouse and others on Kevzara! Hope you are well !! I found a...

https://connect.mayoclinic.org/comment/871061/

sandiw77 @kberlyhouse and others on Kevzara

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2023

I'm not taking Kevzara but I have experienced neutropenia on Actemra. The more critical value is...

https://connect.mayoclinic.org/comment/1377744/

I'm not taking Kevzara but I have

Discussion: Any experiences with Kevzara (sarilumab)?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 23 6:03pm

"My non medical understanding is it just takes a bit of time for the PMR to...

https://connect.mayoclinic.org/comment/1268435/

Otherwise a biologic like Kevzara or

Discussion: How to Slowly and Safely Taper Off Prednisone but ... no set rules.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 28 7:50am

That sounds like a big disaster waiting to happen. You've been on prednisone a long time,...

https://connect.mayoclinic.org/comment/1332679/

taking a biologic drug like Actemra or Kevzara

Discussion: Down to 1mg prednisone and then extreme fatigue sets in.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 22 11:28am

I have osteopenia ( less severe than osteoporosis) and my rheumatologist put me on Fosamax to...

https://connect.mayoclinic.org/comment/1030470/

Also, Kevzara is a newer medication

Discussion: Rheumatoid Drs

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 9, 2024

@reewhite -- this was one of the first papers i found about PMR that convinced me...

https://connect.mayoclinic.org/comment/1025303/

Are you considering trying Kevzara ?

Discussion: Question about PMR pain locations

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 1, 2024

I was diagnosed with PMR almost 2 years ago and have had to go up and...

https://connect.mayoclinic.org/comment/925607/

As soon as Kevzara came out in February

Discussion: Leflunomide, Kevzara for PMR, who knows about them?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 7, 2023

Hi, yes. I have experienced severe side effects. High blood pressure, high A1C, memory loss, severe...

https://connect.mayoclinic.org/comment/868874/

Doctor recommends we move to Kevzara

Discussion: Prednisone Side Effects

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2023

I agree. Demonizing prednisone is not helpful. Some of us have tried every option to get...

https://connect.mayoclinic.org/comment/1236784/

Methotrexate and Kevzara were helpful

Discussion: Is This a Safe Taper as Prescribed by my doctor?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 14 11:39am

Hi...Brand new to this site. I've been treating my PMR with Prednisone from when I was...

https://connect.mayoclinic.org/comment/1284782/

tried Humira, and a trial 1 month of Kevzara

Discussion: PMR - Prednisone and random itching patches of skin

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 18 1:30pm

I saw my rheumatologist on Monday. When I first went to her I loved her. At...

https://connect.mayoclinic.org/comment/1150664/

She also wants to change my Kevzara

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 2, 2024

Hard to say. Many have said a night out or change in excercise or gardening, or...

https://connect.mayoclinic.org/comment/1085028/

have a couple of PMR drugs now in Kevzara

Discussion: Methotrexate to wean off long term Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 11, 2024

Hi @bitsygirl, I don’t think I would start using steroids if you can manage without them....

https://connect.mayoclinic.org/comment/1013125/

I was prescribed Kevzara to help me

Discussion: Advice/experience about going back on Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 10, 2024