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Comments (985)

It is interesting that you are off prednisone and your doctor is considering starting Actemra. I...

https://connect.mayoclinic.org/comment/989895/

A similar biologic called Kevzara is ... news-releases/news-release-details/kevzarar-sarilumab-approved-fda-first-and-only-biologic

Discussion: Methotrexate / Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 1, 2024

I was on prednisone for almost two years starting at 15 Mg but quickly learned my...

https://connect.mayoclinic.org/comment/1111907/

30lb my rheumatologist put me on kevzera ... Swelling is not a side effect from Kevzara ... inflammationh markers have not gone up on Kevzera ... terrible different pain I am giving Kevzera

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 25, 2024

One would hope PMR patients of the future will have better options than prednisone. I took...

https://connect.mayoclinic.org/comment/892625/

least was Actemra which is similar to Kevzara

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2023

@terrym Why do you see an endocrinologist? I was originally referred to an endocrinologist when I...

https://connect.mayoclinic.org/comment/1298146/

Kevzara is FDA approved for PMR and

Discussion: Tapering pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 6 11:16am

I tested HLA-B27 positive almost 40 years ago. I was closer to 30 years of age...

https://connect.mayoclinic.org/comment/1067842/

Kevzara would probably work well for

Discussion: PMR and Undifferentiated Spondyloarthropathies

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 14, 2024

I can understand why an endocrinologist has a different opinion than a rheumatologist regarding 5 mg...

https://connect.mayoclinic.org/comment/895124/

medication that works the same way called Kevzara

Discussion: Trying to determine long term prednisone versus other prescriptions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 13, 2023

My doctor apparently has no problem writing a prescription for Actemra since I have "presumed GCA...

https://connect.mayoclinic.org/comment/833276/

Apparently Kaiser does not yet offer Kevzara

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 28, 2023

@dadcue, @johnbishop, @ropnrose...and alll... dadcue, your journey is very similar to mine in the way these...

https://connect.mayoclinic.org/comment/1203913/

I'm researching Kevzara and Actemra

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 4 4:16pm

In reply to @jabrown0407 "When I received my first PMR diagnosis I refused steroids long term...

https://connect.mayoclinic.org/comment/1050579/

I've seen re: Actemra, hydrox, Kevzara

Discussion: Shifting from Prednisone to Hydroxychloroquine

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 14, 2024

Well, my third attempt at tapering didn't end well, same as the first two. I went...

https://connect.mayoclinic.org/comment/1152260/

ex-rheumie discussed starting me on Kevzara

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 5, 2024

I'm blessed too because I receive Actemra infusions at the VA. The VA submits an insurance...

https://connect.mayoclinic.org/comment/954138/

I don't think Kevzara is available

Discussion: Wrist and finger pain while tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 26, 2023

"Would you mind sharing what medication you took to take off the Prednisone? Do you still...

https://connect.mayoclinic.org/comment/1040764/

you are interested, a biologic call Kevzara ... Kevzara and Actemra aren't the same

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 26, 2024

I started with Actemra (tociliumab) injections every 2 weeks. After a year, the injections were changed...

https://connect.mayoclinic.org/comment/1160479/

inflammation pathway in the same way as Kevzara

Discussion: PMR pain management with medical cannabis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21, 2024

Be patient and hopefully Kevzara works for you. I didn't really know Actemra was working until...

https://connect.mayoclinic.org/comment/954168/

Be patient and hopefully Kevzara works

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 26, 2023

Hello All -- the official publication of the ACR is the "Rheumatologist" and has very recent...

https://connect.mayoclinic.org/comment/1012486/

strategy and /or when to resort to Kevzara

Discussion: ACR Convergence 2023 Nov -Program abstracts are available for view

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 9, 2024

That was hope my rheumatologist gave me too about Actemra. That was before Kevzara was FDA...

https://connect.mayoclinic.org/comment/886875/

That was before Kevzara was FDA approved

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 28, 2023

I wouldn't think Genetech would care about the diagnosis as long as a doctor thinks Actemra...

https://connect.mayoclinic.org/comment/831650/

Otherwise, KEVZARA (sarilumab) is now

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 25, 2023

It is very interesting to read these varied medication stories. I might as well add mine...

https://connect.mayoclinic.org/comment/974780/

I have also been on Kevzara for four

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 4, 2023

I will try to answer your questions but I don't have any experience with Kevzara. My...

https://connect.mayoclinic.org/comment/889954/

don't have any experience with Kevzara ... your daily dose of prednisone before Kevzara

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 4, 2023

HI @Orangecat -I’ve been thinking about your question, (but I can’t speak about trigger finger )...

https://connect.mayoclinic.org/comment/1203710/

She shut down the conversation about Kevzara

Discussion: Progression of other ailments after PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 4 11:35am