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Comments (1,149)

@riji where do you live ? there is a Novartis trial recruiting people that are having...

https://connect.mayoclinic.org/comment/993087/

And /or ask you doctors to consider Kevzara

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 7, 2024

Hi, I am newly diagnosed with PMR since July and have been on Predisone since then....

https://connect.mayoclinic.org/comment/936737/

to 15 mg my doctor wants me to try Kevzara

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 26, 2023

That’s very interesting, I did not know that. Maybe they are missing a lot of diagnosis....

https://connect.mayoclinic.org/comment/873894/

prednisone were so I have just added Kevzara

Discussion: Can we make PMR funny ? Can we fight the immune cells involved ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 6, 2023

Here rheumatologists refuse referrals for people with PMR symptoms, so we have to figure it out...

https://connect.mayoclinic.org/comment/1177667/

Kevzara works for PMR but it's extremely

Discussion: Do not want to take steroids.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 21, 2024

I have seen lots of posts where MTX did not work. Its an RA drug being...

https://connect.mayoclinic.org/comment/1162613/

Kevzara is the PMR drug.

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 25, 2024

I agree with you about wanting to maximize function and accept some long term risk in...

https://connect.mayoclinic.org/comment/1084784/

I have started Kevzara which has possible

Discussion: The pros and cons of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 11, 2024

Are you permanently off Kevzara without any relapses? I had a slightly low white count on...

https://connect.mayoclinic.org/comment/1067945/

Are you permanently off Kevzara without

Discussion: Prednisone to Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 14, 2024

Valerie, your post was very helpful! I intend to ask both my GP and optometrist about...

https://connect.mayoclinic.org/comment/1009503/

I’ve decided to try Kevzara, and I’m

Discussion: Temporal Arteritis, PMR, RA

Support Group: Autoimmune Diseases

Posted: Feb 4, 2024

Actemra is not FDA approved for the treatment of only PMR. Actemra was FDA approved about...

https://connect.mayoclinic.org/comment/860860/

My rheumatologist now says Kevzara might

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 16, 2023

I have seronegative spondyloarthropathy diagnosed as reactive arthritis. I was HLA-B27+ along with uveitis and excruciating...

https://connect.mayoclinic.org/comment/861552/

It might be easier to get Kevzara approved ... Medicare should cover Kevzara since ... of the cost of doing infusions of Kevzara

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 17, 2023

Hello all, Several folks asked me to report on my Kevzara experience when I could, so...

https://connect.mayoclinic.org/comment/1044434/

Several folks asked me to report on my Kevzara ... I started Kevzara in November of 2023 ... which every other Sunday I took my Kezvara ... Is the next step a taper off the Kezvara ... No side effects from the Kezvara.

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 2, 2024

Hi~ I am 55, and I have been dealing with PMR for about 9 years. I...

https://connect.mayoclinic.org/comment/1052932/

Rheumatologist wants me to start on Kevzara ... 🙄 Has anyone been on Kevzara

Discussion: Starting treatment with Kevzara: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 18, 2024

I have never had IL-6 testing done. It does seem like it could be a useful...

https://connect.mayoclinic.org/comment/1132059/

PMR and considers a biologic like Kevzara