To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
2,600 total results
Comments (2,483)
Welcome to the group. The usual suggestion is to increase your Prednisone dose back to where...
The typical taper recommendation is ... during the 12 years it took me to get off ... Prednisone. ... I was able to get off Prednisone when ... off Prednisone completely.
Discussion: PMR and the taper
Posted: May 7 11:07am
Adrenal insufficiency is an often overlooked ramification of long term prednisone use. It may be a...
a reason why people are unable to taper ... off prednisone. ... and worsened as I tapered lower. ... Unfortunately, I needed to taper down ... I was able to taper down to 3 mg when
Posted: Apr 8, 2024
I have tapered off prednisone when on Actemra ... not Kevzara. Kevzara works on the same...
I have tapered off prednisone when on ... When I tapered off prednisone while ... off too soon. ... After about 4 more months I was off ... I have successfully stayed off prednisone
you dont say how far along this journey you are but like John mentioned the longer...
on steroids the more difficult the taper ... I have been off two years and I got ... 1-2 yrs so the risk of trying to taper ... Google prednisone and cortisol.
Posted: Aug 8, 2024
I can't think of any harm from doing a slow taper. But it seems there is...
think of any harm from doing a slow taper ... seems there is harm in doing a fast taper ... our experience (my family's) the tapers ... what else is going on until fully off ... the prednisone.
I am not sure what my taper will be - this morning I went from 20...
I am not sure what my taper will be ... I won’t know what the taper will be ... said there’s a chance I may never get off ... me ask what they think about a slow taper ... How long have you been on prednisone
There is an interesting thread in this forum https://connect.mayoclinic.org/discussion/new-dx-of-pmr/ where @maye discusses getting off of prednisone...
new-dx-of-pmr/ where @maye discusses getting off ... of prednisone completely in only 3 ... months by taking Actemra and tapering ... prednisone rapidly.
Discussion: Possible GCA
Posted: Feb 19 7:14pm
Thank you for reaching out! It sounds like we have a lot of similarities. Since my...
is on Stalera now and finally fully tapered ... off prednisone as of a few months ago ... helped me better understand what the prednisone ... ill and now I am on a high dose of prednisone ... communicative about what’s going on with me prednisone
Support Group: Autoimmune Diseases
Posted: Feb 16 3:26pm
I just started KEVZARA yesterday and thankfully no side effects so far! My question is how...
How do you know when it is okay to taper ... I think most are the result of the prednisone ... out I have cataracts in both eyes (prednisone ... so hopeful KEVZARA will help me get off
Discussion: Kevzara
Posted: Feb 12 8:15pm
@lori62yb Hello Lori, I don’t know why your doctor would say that PMR doesn’t normally present...
’m on my 2nd round of PMR and have tapered ... down to 5 mg prednisone. ... try Actemra and I would like to get off ... prednisone and pain medication so I
Posted: Feb 7 9:44am
How soon was Kevzara started after you were diagnosed with PMR? My response to Actemra was...
Actemra was dramatic but I was on Prednisone ... cortisol level to improve before I could taper ... off Prednisone.
Discussion: Kevzara
Posted: Feb 15 7:55am
I agree with Dadcue. Its great that Kevzara works. I think it should be tried as...
off steroids. ... cortisol insufficiency created by the prednisone ... taper. ... discomfort but I think its worth it to be off ... the prednisone.
Discussion: Kevzara
Posted: Sep 15, 2024
Hi @phogan0609, Welcome to Connect. Sorry to hear Mr. Ugly (PMR) has invaded your personal space....
Took 3 and half years to taper off of ... I'm not sure if you are on a tapering ... discussion: -- How to Slowly and Safely Taper ... Off Prednisone but ... no set rules ... discussion/how-to-slowly-and-safely-taper-off-prednisone-but-no-set-rules
Posted: Mar 1 6:29pm
"Others in this forum seem to have had good success with it." --------------------------- Now that more...
be working" and I wanted to be off ... prednisone because of my many long ... term side effects from prednisone. ... In the short term, prednisone wasn&#39 ... I tapered off prednisone within a year
Posted: Apr 24 2:17pm
My experience has been very similar to yours. I was diagnosed with GCA and PMR in...
I started with 60 mg prednisone, and ... I'm at 5 mg prednisone now, and ... appointment tomorrow to discuss further tapering ... I don't have any drop off of energy
Posted: Apr 24 9:07am
I agree with @johnbishop and I don't think there is a gaping hole in the medical...
which is why they universally want us off ... Having seen Prednisone side effects ... During my 12 years on Prednisone to ... My having many prednisone side effects ... and my inability to taper off Prednisone
Posted: Apr 24 2:46pm
In my experience the drug companies found a way around the $2000 out of pocket maximum....
I am off Kevzara mainly due to cost ... it also wasn't allowing me to taper ... below 5 mg prednisone.
Posted: Feb 20 1:47pm
"I know my experience with rapid pred taper is contrary to many others experiences I have...
know my experience with rapid pred taper ... For GCA, people doing the slower prednisone ... on Actemra. 1) people are able to taper ... off prednisone faster, 2) the cumulative ... dose of Prednisone is less, 3) a sustained
Posted: Feb 18 7:30am
I am 78 and was diagnosed with PMR Almost 3 yrs ago. I was able to...
I was able to taper off and was doing ... I relapsed and have again been on prednisone ... I have tapered off to 3 mgs but as allergy