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2,926 total results
Comments (2,759)
Hi @noti, Unfortunately I don't think it's the same for everyone and can be difficult for...
to zero the first time around with PMR ... that you might find helpful: -- Prednisone ... list of discussions and comments on tapering ... off of prednisone to see the experiences ... search=tapering+off+prednisone
Posted: Feb 8 3:14pm
I don't have any experience with Kevzara but I have been on Actemra (tocilizumab) since January...
I considered myself a PMR lifer of more ... year old when I was diagnosed with PMR ... years until Actemra allowed me to taper ... off prednisone. ... I don't consider myself a PMR lifer
Posted: Apr 18, 2024
In my opinion, prednisone perpetuates PMR after the adrenals are suppressed. I wonder how many people...
PMR after the adrenals are suppressed ... PMR is basically a condition of unregulated ... However, when we attempt to taper off ... entirely new condition that mimics PMR ... We believe it is a PMR flare instead
Posted: Oct 25, 2024
I started with Actemra (tociliumab) injections every 2 weeks. After a year, the injections were changed...
12 years to treat PMR. ... I wasn't ever able to taper my Prednisone ... taper. ... I had a flare but it wasn't a PMR ... No flares of PMR or anything else as
Posted: Oct 21, 2024
Hi @anncoco57, I had pain in the feet and legs including the back of my knees...
the back of my knees for my first PMR ... there the second time around with PMR ... discussion/how-to-slowly-and-safely-taper-off-prednisone-but-no-set-rules ... Off Prednisone? ... connect.mayoclinic.org/discussion/any-tips-for-tapering-off-prednisone
Posted: Oct 21, 2024
I understand how you feel. I was lucky that the right rheumatologist found me! The possibility...
possibility that you have more than PMR ... ophthalmologist said I was very skilled at tapering ... I always tapered off Prednisone in about ... For a long time I felt PMR was caused ... use for PMR.
My GP didn't really appreciate my need for an endocrine referral until my cortisol level was...
I stayed on low dose Prednisone. ... was rather nice to be told NOT to taper ... any longer to treat PMR. ... tocilizumab) is currently treating PMR ... instead of Prednisone.
I am sorry you are feeling so much pain. I have had a similar experience after...
a similar experience after finally tapering ... off prednisone after 1 year. ... at the same level of pain as when PMR ... to speed after being suppressed by prednisone ... just “poof” go away after stopping prednisone
Posted: Oct 8, 2024
Hi @jenb I have both PMR and GCA. Before I was diagnosed I had severe itching...
Hi @jenb I have both PMR and GCA. ... already, and get a new schedule for tapering ... prednisone. ... GCA/PMR is a stubborn disorder that ... I'm back on Prednisone now.
I am now on Kevzara for 5 months after two years of being on prednisone and...
months after two years of being on prednisone ... and finally on July 1 ‘24I tapered ... off prednisone . 14 months ago my ... and ankles It is assumed I have PMR
Posted: Oct 3, 2024
Hi Mike @domiha, My PMR was diagnosed by a Mayo Rochester rheumatologist. My primary care doctor...
Hi Mike @domiha, My PMR was diagnosed ... lunch and the doctor had me pick up a prednisone ... It took me 3-1/2 years to taper off ... of the prednisone for my first time ... with PMR.
Support Group: Neuropathy
Posted: Sep 30, 2024
I suffer from Polymyalgia Rheumatica. (PMR) an autoimmune disease. As with many autoimmunes steroids are used...
(PMR) an autoimmune disease. ... Prednisone is supplying it. ... will have to slowly restart while you taper ... off prednisone. ... You will go into extreme pain if you taper
Support Group: Prostate Cancer
Posted: Sep 28, 2024
Welcome Cyn @cyninaustria, I think a lot of us have had similar thoughts and wanting to...
similar thoughts and wanting to avoid prednisone ... mentioned having Hashimoto's with PMR ... times with 20mg prednisone which took ... fairly well but took me awhile to taper ... search=hypothyroidism%20and%20PMR
Posted: Sep 22, 2024
I am relating my current symptoms in this topic because I am tapering from 4 mg...
symptoms in this topic because I am tapering ... , prednisone tapering, prednisone withdrawal ... knees, not bilateral, don't think pmr ... , so I'm continuing the taper. ... I sure hope the continuing taper to
Did anyone ever tell you that your taper was too fast? Actemra made a mockery of...
Did anyone ever tell you that your taper ... tapers. ... You were lucky not to be on Prednisone ... endocrinologist said there was no need to taper ... time, I was confident Actemra had PMR
Posted: Sep 18, 2024
Thank you, as always for making such great points. We can ask about a biologic to...
ask about a biologic to get off the prednisone ... I don’t want him to be on prednisone ... happened several times because of PMR-related ... the prednisone again. ... But I don’t know if I hate PMR more
Posted: Sep 6, 2024
It’s my understanding this is pretty common. I’ve heard of others mentioning it but the same...
your stress hormones, and when you taper ... dad’s endocrinologist, “Long-term prednisone ... are very similar to symptoms of a PMR ... So she told us it may be the PMR has ... quality of life to switch medications to taper
Posted: Sep 3, 2024
"Once a daily prednisone dosage of 10 mg is reached, tapering should be slowed to a...
"Once a daily prednisone dosage ... of 10 mg is reached, tapering should ... Attempting to taper steroids before ... things must happen: #1 Remission of PMR ... It might not be a PMR flare.
Posted: Sep 1, 2024
"I hate to say this - my endocrinologist said I didn't need to taper prednisone from...
endocrinologist said I didn't need to taper ... So much for slow tapers ... ... After I tapered off Prednisone the first ... probably worked for uveitis but my PMR ... I was able to taper my Prednisone dose
Posted: Aug 30, 2024