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2,926 total results
Comments (2,759)
I can only speak from personal experience with Actemra (tocilizumab) which was offered to me 13...
to me 13 years after the onset of PMR ... I was able to taper completely off prednisone ... feel the same if I ended up needing prednisone ... Vis-à-vis prednisone, I have practically ... Additionally, many of my prednisone
Sorry ... I didn't realize you were from the UK. Someone told me the rules in...
approved was because I was unable to taper ... off prednisone and my case of PMR was ... ------------ I wish you luck with tapering ... said I was very lucky to be able to taper ... on prednisone for such a long time.
Discussion: Flare
Posted: Dec 11, 2024
If you have intermittent flares of iritis, that generally isn't associated with PMR --- iritis is...
a Prednisone dose of 15 mg to usually ... on Prednisone --- there isn't any ... tapering method that works for everyone ... I didn't finally get off Prednisone ... I'm just happy to be done with Prednisone
Posted: Dec 2, 2024
I have AFIb and PMR. Trying to wean down the prednisone, currently at 9mg going to...
I have AFIb and PMR. ... Trying to wean down the prednisone, ... Trying a slower taper. ... danger of afib and taking Eliquis with prednisone
One thing about PMR seems to be that everyone is different with their pain, response to...
One thing about PMR seems to be that ... I responded well to 15 mg but the prednisone ... I’ve been able to taper my dose regularly
Posted: Nov 24, 2024
I initially contracted PMR with a week after my second Pfyzer vaccination. I had a very...
I initially contracted PMR with a week ... I managed to taper off of 10 mg. of ... prednisone in about a year, but it came ... when I had COVID and then I had to taper ... year later, it didn't trigger my PMR
Posted: Nov 21, 2024
Don't get your hopes up too much because there isn't that much that can be done...
seemed to explain why I couldn't taper ... I have no idea if it was a PMR flare ... control inflammation and an inability to taper ... I think PMR inflammation necessitated ... Maybe a combination of PMR and a low
Hi @dadcue, I also find your posts very helpful and was hoping you could share more...
I have had significant pain with tapering—even ... not been able to get below 15 mg of Prednisone ... in my 2.5 years with PMR.
Posted: Nov 19, 2024
I am a 6 year veteran. first couple of years had 2 courses of prednisone. Each...
first couple of years had 2 courses of prednisone ... Each time I tapered down and got off ... a flare and needed to get back on prednisone ... rheumatologist said she has never had a PMR
Posted: Nov 17, 2024
I guess the thinking is that 5 days is not long enough to completely shut down...
shut down your adrenal glands, so no taper ... However, most pmr cases seem to require ... at least a couple of months of prednisone ... to chase the pmr away.
Posted: Nov 13, 2024
"My recent tests showed adrenal insufficiency, after I had gone down from 5 to 4 mg....
similar impasse when I couldn't taper ... to control my PMR symptoms. ... come back to see her if I could ever taper ... would NOT make another attempt to taper ... way forward that would allow me to taper
Posted: Nov 11, 2024
Congratulations! Many of us are still on the tapper journey. I too sat for too long...
Many of us are still on the tapper journey ... 1year) and are determined to slowly taper ... discomfort against just increasing predisone ... over a year so my symptoms should be predisone ... withdrawal and not PMR.
Posted: Nov 9, 2024
"Please let me know what all the problems I am going to have?" --------------------- You might...
it becomes harder and harder to taper ... years for flares but not for flares of PMR ... When PMR was diagnosed my starting dose ... PMR was NOT good for me. ... My PMR journey hasn't ended even
Question is how much pain is worth tolerating to keep reducing prednisone? ------------------------------- I don't think...
worth tolerating to keep reducing prednisone ... There isn't a correct way to taper ... prednisone. except to taper slowly ... for some ... slower tapers for others ... on the person, the side effects of Prednisone
Posted: Nov 7, 2024
May25/2023 I had my 5th covid vaccine, 2 days later I could hardly walk with hip...
Finally got a confirmed diagnoses of PMR ... Treated effectively with prednisone, ... tapering monthly until I got to 2 mg ... relief) and start the slow process of tapering
I have appreciated the following point of view that is talked about in the following link....
over again why it took me so long to taper ... chance at preventing my flares of PMR ... to achieve remission of PMR and it ... " It was said that I tapered off ... quickly as if it was my fault for tapering
Posted: Feb 3 11:17am
My ESP and CRP have been normal from the beginning, causing my internist to hold off...
internist to hold off prescribing prednisone ... Then put me on a fast taper until he ... he was being careful not to start a prednisone ... regime requiring a long taper but I ... on the internet and thinks she has PMR
I was diagnosed w/pmr in april, 2024 and prescribed 15 mg of prednisone. I was able...
I was diagnosed w/pmr in april, 2024 ... and prescribed 15 mg of prednisone. ... I was able to taper off to 10 mg with ... put me on methotrexate to be able to taper ... off prednisone.
Posted: Jan 29 9:00am
I started Methotrexate end of December 2024, and my PMR symptoms are much better but still...
Methotrexate end of December 2024, and my PMR ... are much better but still on 40 mg prednisone ... daily (no taper) as my inflammatory
Posted: Jan 30 9:26am
You should work with your rheumatologist to see what dose of prednisone you should be taking....
tell you if you still need it for PMR ... and how fast you should taper. ... Prednisone can cause osteoporosis, but ... PMR and GCA are worse problems than ... now for GCA and PMR, so my rheumatologist
Posted: Jan 29 5:13pm