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842 total results
Comments (800)
I just set mine up after someone suggested. I have a spreadsheet and track: date; prednisone...
date; prednisone mg; sleep hrs: AM Pain ... Level; running miles; difficulty of ... minutes; babysitting minutes; headache level ... ; mental health rating; PM Pain level ... pretty low, but I've heard a lot of PMR
Was Actemra providing you with 24 hour pain relief? The only reason I ever spit my...
Actemra providing you with 24 hour pain ... ever spit my dose was because the pain ... I woke up with pain in the middle of ... inflammation I had when I was treating PMR ... faster because I never allowed my blood level
Posted: Aug 30 6:48am
I had more energy and motivation and interest in things too. I didn't have a care...
to sleep because I was feeling no pain ... For other people their tolerance level ... nothing to do with PMR. ... It is nice not to have any pain but ... not all pain is PMR pain.
Posted: Nov 27, 2024
Thanks John for responding. Information from those who have been there, done that, really helps. I...
have been keeping a daily log of my pain ... level (on my own, doc didn’t mention ... and she wanted to make sure it was PMR
Posted: Nov 24, 2024
"The symptoms of adrenal insufficiency are very easy to confuse with PMR pain. I'm not even...
insufficiency are very easy to confuse with PMR ... pain. ... was the same as the treatment for PMR ... As long as PMR was controlled AND my ... PMR was controlled by a steroid sparing
Posted: Nov 19, 2024
@gingergirl24, Sorry to hear you are struggling with the tapering schedule. I'm not a doctor and...
my experience with 2 occurrences of PMR ... like the prednisone controlled your pain ... Do you keep a daily log of your level ... of pain when you first get up in the
Discussion: Flare
Posted: Nov 19, 2024
Welcome @alancant, That's a good question which a lot of us have thought about. For me...
was anything above a 2 on a personal pain ... is tolerable during treatment for PMR ... only used prednisone for both of my PMR ... are still early in your diagnosis of PMR ... Do you keep a daily log of your level
Posted: Nov 7, 2024
When I was initially diagnosed with PMR at Mayo Rochester, my rheumatologist prescribed 20mg prednisone as...
My pain level at the time was about ... dose at noon with lunch and by 3pm my pain ... When I started tapering, if my level ... of pain was greater than a 2, I didn ... sometimes depending on the amount of pain
Posted: Nov 5, 2024
Very interesting. That is almost the exact schedule that I successfully followed, but I was never...
remember that it is not necessarily PMR ... at 10, my rheumy declared that my PMR ... types and levels, and that my pains ... were not PMR. ... Again, random minor non-PMR pains that
Hi @mpm, You definitely need to advocate for yourself. My Mayo rheumatologist started me on 20...
prednisone for both occurrences of PMR ... the-productive-rheumatology-appointment-guide/ --- GCA & PMR ... rheumy had me keep a daily log with the level ... of pain when I woke up and the dose
Posted: Aug 20, 2023
Being down to 5 mg after only 3 months must be something of a record. It's...
It's good if you can do it, but PMR ... regular blood tests to check CRP, ESR levels ... reducing the amount of steroids my level ... of PMR needs. ... shoots back up again along with more pain
Posted: Apr 17 5:21pm
Very comforting and informative, thank you! I have not been officially diagnosed for PMR but have...
not been officially diagnosed for PMR ... infection in my head but awoke to pain ... I’d had pain in these areas before but ... nothing to this level. ... possibility of Covid correlation to PMR
Discussion: PMR and the taper
Posted: Jun 3 5:05am
Your inflammation markers being normal may only indicate the current dose of prednisone is correctly eliminating...
correctly eliminating your present level ... but it doesn't indicate that the PMR ... don't necessarily indicate the pain ... and inflammation level associated with ... PMR but that only makes the need for
Posted: Jul 3 6:56pm
@southtexas I have forgotten to take other meds but never the prednisone when my PMR was...
meds but never the prednisone when my PMR ... dose and you weren't in a lot of pain ... How is your pain level after you forgot
Posted: Aug 29, 2023
I had my first Dexa scan 8mths after starting on 15mg prednisolone in May 2023. The...
It showed low level osteopenia in the ... have had slight osteopenia before PMR ... stop that last year after developing painful
Posted: May 16 7:11am
Hello @havana, Welcome to Connect. PMR can definitely be a challenge doing some of the things...
PMR can definitely be a challenge doing ... discussion/comprehensive-overview-of-pmr ... / My PMR has been in remission for ... mg prednisone and was pretty much pain ... My pain level when I woke up in the
Posted: Aug 17 3:45pm
Similar experience with a similar medication but not Kevzara. I was on Actemra which is another...
When Actemra was started for PMR, I ... I also had scattered aches and pains ... that felt like PMR was returning. ... My cortisol level was too low to allow ... mg of Prednisone until my cortisol level
Posted: Jul 4 6:31am
@pargeo47 I can only speak from our experience - my husband is the one with PMR....
experience - my husband is the one with PMR ... arteritis - something about 25% of PMR ... needed help immediately due to his pain ... level. ... with manageable pain that they could
Posted: Jun 16, 2024