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1,327 total results
Comments (1,291)
"I read the other day that someone received Actemra for PMR. According to our rheumatologist, it's...
for PMR. ... and it was used for "refractory PMR ... with GCA but I was diagnosed with PMR ... I had 12 years of PMR before Actemra ... Actemra is not FDA approved for PMR
"My advice to you all is never miss the opportunity to taper down if your medics...
Actemra was FDA approved for GCA but ... to get Actemra approved for me before ... I almost refused Actemra because some ... breaking the rules" by giving me Actemra ... for PMR.
Posted: Jun 11, 2024
No doubt the prednisone was awesome if you haven't taken it for a long time. Pity...
I have been off Actemra twice already ... No PMR pain ... just uveitis. ... My ophthalmologist stopped Actemra and ... She discounted the fact that Actemra ... for PMR got me off prednisone.
Posted: Jan 25, 2024
This is great news about the biosimilar to Actemra. Tyenne will lower the cost of treatment...
great news about the biosimilar to Actemra ... first prednisone really helped with my PMR ... I believe PMR was still active in combination ... In any case, Actemra controlled PMR ... You are correct that Actemra doesn&#39
I can't understand why I wasn't ever diagnosed with GCA. I had all the sign and...
prevented GCA but it didn't prevent PMR ... ironic when I was approved to receive Actemra ... for PMR, the recommendation was to
I received Actemra for PMR 4 years ago.. Actemra was requested and approved. Actemra works very...
I received Actemra for PMR 4 years ago ... My rheumatologist now thinks PMR might ... to me to treat PMR. ... than 12 years for the treatment of PMR ... PMR therefore would seem most likely
Some people get Actemra (tocilizumab) approved for PMR but I don't think Actemra is approved if...
Some people get Actemra (tocilizumab ... think Actemra is approved if PMR is ... and Actemra gets approved for RA. ... I was prescribed Actemra for PMR but ... I didn't think Actemra would be
There are plenty of alternatives to taking prednisone for PMR. The trick is finding something that...
alternatives to taking prednisone for PMR ... to be aware that it may not be just PMR ... It isn't FDA approved for PMR but ... I still take Actemra for PMR. ... I guess that I still have PMR so I&#39
Will 3 mg be the lowest dose you have been on since the start of PMR?...
you have been on since the start of PMR ... I didn't think Actemra was working ... I was doing Actemra injections every ... I wasn't liking Actemra and I was ... forum about using Actemra for PMR.
Posted: Dec 5, 2023
@mezack25 Prednisone is a synthetic form of the naturally occurring hormone called cortisol. In essence, prednisone...
When Actemra allowed me to taper off ... However, I never had a PMR flare as ... long as I took Actemra. ... Since Actemra controls PMR, I don&#39 ... ;t need Prednisone for PMR anymore.
That is another story. I took the plunge. I stopped Prednisone but did a "countdown taper."...
PMR wasn't a problem. ... controlled PMR and allowed me to get ... My rheumatologist was sure it was PMR ... probably would need Prednisone for PMR ... Humira and stay on Prednisone for PMR
At the time, Actemra (tocilizumab) was FDA approved for GCA but not PMR. My rheumatologist wanted...
At the time, Actemra (tocilizumab) was ... FDA approved for GCA but not PMR. ... for PMR since he was reading the available ... No biologic was FDA approved for PMR ... for PMR because the research seeking
I had PMR for 12 years. My rheumatologist says I still have PMR but it might...
I had PMR for 12 years. ... it might be in remission thanks to Actemra ... I do a monthly infusion of Actemra. ... years except for when I don't get Actemra ... off Prednisone for 12 years until Actemra
Posted: Feb 15, 2025
@raven1955 I would echo everything you posted because 12 years of PMR was a long, slow...
everything you posted because 12 years of PMR ... 52 when I was first diagnosed with PMR ... Fortunately for me, Actemra kept PMR ... Technically, I still have PMR but Actemra ... need Actemra.
Posted: Dec 4, 2025
That is a very good question. My cortisol level improved after 6 months. I was able...
dose of 3 mg or below because of Actemra ... PMR seemed to be well controlled or ... actually needed 60 mg of Prednisone and Actemra ... off prednisone quickly again after Actemra ... Ironically, she says Actemra isn&#39
Posted: Jul 10, 2024
"I did approach my new rheumatologist (first appt with her) about checking for antibodies to Actemra…....
) about checking for antibodies to Actemra ... a PMR/GCA relapse? ... It wasn't a PMR relapse though. ... I had a PMR relapse. ... didn't need prednisone to control PMR
Posted: Nov 19, 2024
I was referred to an endocrinologist who took control of my Prednisone dose. The endocrinologist was...
and PMR was controlled for the time ... After Actemra was started, I tapered ... not I still needed Prednisone for PMR ... taper any lower than 15 mg because my PMR ... When Actemra was restarted I tapered
Posted: Jul 4, 2025
I've been on monthly Actemra infusions since January 2025. Actemra allowed me to taper off of...
I've been on monthly Actemra infusions ... While on Actemra, I had gotten COVID ... don't have, which I had during PMR ... ok, but not what they were before PMR ... I was always very active before PMR/
@pappy6 I still do an Actemra infusion every month. There is some flexibility and sometimes the...
@pappy6 I still do an Actemra infusion ... have not been able to completely stop Actemra ... rheumatologist is so concerned about a PMR ... a patient with an isolated case of PMR ... #39;m not so sure isolated cases of PMR
Posted: Mar 6 8:24am