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979 total results
Comments (950)
I started my Actemra infusions in January 2024. I chose the infusions. If I would have...
I started my Actemra infusions in January ... 2024, when I was first diagnosed with PMR ... Actemra has been a game changer for
Discussion: Actemra
Support Group: Autoimmune Diseases
Posted: 3 days ago
Hi Jeff, It’s been a while since I’ve been here. PMR diagnosis in about 2016. Still...
PMR diagnosis in about 2016. ... osteoporosis or fibromyalgia as I can’t have PMR ... caused chest pain and chest rash, Actemra ... Palindromic PMR (arthritis?)
Posted: Jul 2 9:22pm
I have multiple conditions that cause pain. Some of my conditions are autoimmune and some aren't....
but not all of my pain was PMR. ... rheumatology visit because I'm on Actemra ... Actemra works for PMR but not for some ... was telling my rheumatologist how Actemra ... the pain gets any worse we can try Actemra
Posted: Jun 25 3:56pm
My eGFR is consistently in the 60-70 range so listed as Stage 2 Chronic Kidney Disease....
It was something new when PMR was diagnosed ... years ago and long before I started Actemra ... My PMR symptoms are well controlled ... I had mild neutropenia on Actemra but ... #39;t say I have ever suddenly had a PMR
Posted: Jun 28 8:04am
I have PMR and GCA, and I have definitely gotten more colds since I started treatment...
I have PMR and GCA, and I have definitely ... taking prednisone for a year, and Actemra ... Before getting sick with PMR and GCA ... caught Covid while I was sick with PMR
Posted: Jun 16 3:16pm
Congratulations for tapering off Prednisone. I hope you can stay off Prednisone. I was on Prednisone...
on Prednisone for 12 years to treat PMR ... was able to taper off with help from Actemra ... was still on Prednisone along with Actemra ... I'm on Actemra without Prednisone
Posted: Jun 20 12:11pm
Does anyone’s blood pressure go low while tapering down ?i have pmr been on prednisone for...
i have pmr been on prednisone for 2 ... low cortisol level and symptoms of PMR ... I didn't have the problem when Actemra ... controlled my PMR symptoms but I felt
Posted: 4 days ago
It depends if your concern is more about running out of prednisone while traveling or having...
prednisone while traveling or having a PMR ... I just do my monthly Actemra infusion ... in less than 4 weeks to get my next Actemra
Discussion: PMR and travel
Posted: Jun 18 12:55pm
Some people with PMR and/or GCA are on prednisone for many years. If they are lucky,...
Some people with PMR and/or GCA are ... I have PMR and GCA, and I've been ... taking prednisone for a year, and Actemra ... I expect to have to take Actemra for ... I think most people with PMR stay at
Posted: Jun 21 2:19pm
I'm intrigued by this and I will ask my endocrincrinologist about it. I'm past the PMR...
I'm past the PMR treated with Prednisone ... now since an IL-6 inhibitor called Actemra ... PMR is controlled by Actemra but now
Sorry that you have joined 'the Club'. This is a great forum with wonderful people who...
I was diagnosed July 2024 with PMR and ... ;t know if they were caused by the PMR ... I'm am now on 5 mg., thanks to Actemra
Discussion: New to PMR
Posted: Jun 30 1:57pm
I was treated 12 years with Prednisone for refractory PMR. When a biologic called Actemra (tocilizumab)...
years with Prednisone for refractory PMR ... "should work" for PMR. ... biologic that is FDA approved for PMR ... I'm an actual person with PMR and ... would consider a biologic to treat PMR
Posted: Jul 3 5:23pm
"Actemra took my sed rate to ZERO." ----------------------- A zero Sed Rate is within the normal...
"Actemra took my sed rate to ZERO ... I do monthly Actemra infusions and my ... was on Prednisone for 12 years for PMR ... When Actemra was started, I rapidly ... aches and pains but not as severe as PMR
Posted: Jul 3 1:36pm
There are different benefits to all three ways of getting Actemra. I have done all three...
benefits to all three ways of getting Actemra ... I had a flare but not a PMR flare. ... Humira didn't control my PMR pain ... Weekly injections of Actemra worked ... until a supply shortage of Actemra
A slow taper isn't necessary for all conditions. I could do 60 mg to -0- within...
quickly after I was diagnosed with PMR ... years to taper off Prednisone after PMR ... After Actemra was started for PMR, I ... I only do a monthly infusion of Actemra
Posted: Jul 4 3:32pm
"Therapy is based on empiric experiences because few randomized clinical trials are available to guide treatment...
prednisone that worked to control my PMR ... with Prednisone for 12 years before Actemra ... PMR was refractory and I was still on ... Prednisone dose more rapidly after Actemra ... Actemra works well for me.
Posted: Jun 15 2:49pm
Mayo Connect is a good resource. There are many people in the USA being started on...
being started on Kevzara to treat PMR ... I had a fantastic response to Actemra ... rheumatologist said to me before starting Actemra ... year to taper off Prednisone after Actemra
Posted: Jun 18 1:49pm
That taper seems unnecessarily fast. I'm tapering prednisone, and I also take weekly Actemra injections. The...
prednisone, and I also take weekly Actemra ... The Actemra controls the inflammation ... from my GCA and PMR. ... re not taking a biologic drug like Actemra
Posted: Jul 2 3:05pm
That sounds like a big disaster waiting to happen. You've been on prednisone a long time,...
I also take weekly Actemra injections ... , so my PMR and GCA are controlled by ... the Actemra. ... You could also have a bad PMR flare. ... are not taking a biologic drug like Actemra