Clear Search

To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
893 total results
Comments (847)
@eakin Movement helps my symptoms, sometimes, not all the time so more movement during the night...
night would male sense to feel less pain ... #39;m undiagnosed at this point with PMR ... BP was going way high, then low, my level ... detrimental because I down play my level ... of pain most of the time.
Posted: Oct 11, 2025
So sorry to hear about your recent struggles. I was recently diagnosed with Stage 3a CKD....
Tylenol is it for OTC pain help. ... sugar - it will also help with your PMR ... They also watch my thyroid levels as
Discussion: Want to start over
Posted: Oct 11, 2025
"My understanding is that if they - unfortunately - don’t wake-up then prednisone can’t be reduce...
can’t be reduce past a certain low level ... things weren't well along with pain ... that was similar to PMR pain. ... When my cortisol level was checked and ... overly optimistic that my cortisol level
Discussion: Relapse
Posted: Oct 2, 2025
@aflik I don't have answers to your questions. I have not had a discussion with my...
with my doc regarding the statin and PMR ... I'm happy that I am relatively pain ... I have some minor hip and knee pain, ... been able to increase my activity level
Posted: Oct 2, 2025
I have been on Actemra for 18 months for PMR and rheumatoid Arthritis..the first 6 months...
been on Actemra for 18 months for PMR ... weekly when it wasn’t holding the pain ... The pain never left however moving from ... out of it and seeing my low 4.2 A1C levels ... seem to be very level if still on the
Posted: Sep 30, 2025
"A doctor told me that our bodies make 5 mg. a day but when on prednisone,...
However, the body needs a certain level ... are very similar to the symptoms of PMR ... It is very hard to know if PMR is still ... between a polymyalgia rheumatica (PMR ... such as fatigue, muscle and joint pain
What dose of steroids are you currently on? You can't actually just stop taking them outright...
indication of how well you can tolerate the pain ... of the other autoimmune diseases, PMR ... weakness due to not moving as much with pain ... and is more painful due to generally ... higher levels of inflammation.
I can understand not wanting to be on prednisone. Me either! But, reality has a funny...
their own "ideas" as to why PMR ... tapered now to 6 mg per day without pain ... other than my normal level of aches ... with long term damage from untreated PMR ... untreated (due to it being undiagnosed) PMR
Hello @pmr52025, I would like to add my welcome to Connect along with @beauty44, @st1300 and...
Hello @pmr52025, I would like to add ... I kept a daily journal of my level ... of pain when I woke up in the morning ... tapering schedule depending on my pain ... of pain that I could easily deal with
Discussion: Reducing Pednisone
Posted: Sep 17, 2025
I am not diabetic or even pre-diabetic and have struggled with neuropathy for over five years....
I still have neuropathy, but the pain ... level is now down to a lvl 2, it has ... I also have PMR and have been on prednisolone
Hello @tonimcbride I got immediate, total relief in about three hours after starting 20mg Prednisone. I...
help to get out of bed because of the pain ... Hips were stiffening and painful. ... Flexibility always improved with less pain ... half my reserve energy and exertion levels ... so I've not noticed the classic PMR
Posted: Jul 31, 2025
It was a long 12 year journey but now PMR is being treated without prednisone. I...
was a long 12 year journey but now PMR ... I started out with Prednisone when PMR ... PMR even though Prednisone helped me ... ordered to remain 3 mg when my cortisol level ... almost 5 years with no relapses of PMR
The pain is not a sharp pain to me; it is more a severe soreness of...
The pain is not a sharp pain to me; ... two years now and have been almost pain ... your sed rate and c reactive protein levels ... are normal, I doubt it is PMR. ... My levels were thru the roof.
Was diagnosed with PMR 2 years ago and put on Prednisone (20 mgs ... in error,...
Was diagnosed with PMR 2 years ago and ... doesn't work as well, my energy levels ... very low and am experiencing joint pain ... My rheumatologist has said that PMR
Posted: Jul 19, 2025
Oh yes, I have many other symptoms and I've had them for many years, well before...
well before my first encounter with PMR ... I do have chest pain but it's part ... girdle, shoulder blades, upper thoracic pain ... don't see a way to get my energy levels
Posted: Jul 17, 2025
I agree with @jeff97 that it does seem a little to fast, especially if you have...
especially if you have back to have more pain ... tapering schedule and let me use my level ... of pain in the morning as a guide as ... My first time around with PMR was 3 ... the morning was less than 2 on my pain
Posted: Jul 2, 2025
Hello @tarafergusongould, I would like to add my welcome to Connect along with @jeff97 and others....
definitely helps on this journey with PMR ... Here's a search using "PMR and ... search=PMR+and+GCA. ... keep a daily journal or log with your level ... of pain or other symptoms when you
Discussion: PMR/GCA
Posted: May 29, 2025
I was diagnosed with PMR on April 12th of this year after being in incredible pain...
I was diagnosed with PMR on April 12th ... this year after being in incredible pain ... I became pain free with the 20mg dose ... told me the goal was to get me at a level ... where I was pain-free.
Discussion: PMR/GCA
Posted: May 29, 2025
" I haven't had any pain from the GCA or PMR since starting treatment. So it...
" I haven't had any pain from ... the GCA or PMR since starting treatment ... ----- It seems to me that my IL-6 levels ... It is strange that my IL-6 level has
I recall being similarly despondent at the same 8mg point when some morning pain and fatigue...
the same 8mg point when some morning pain ... 's recommendation to record a pain ... level each morning (1-10 scale) was ... PMR takes a while to resolve and prednisone ... bay while the body recovers from the PMR
Discussion: PMR and the taper
Posted: May 7, 2025