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281 total results

Comments (268)

@markmark007 The CAPTEM regimen is an oral chemotherapy combination of capecitabine and temozolomide used primarily to...

https://connect.mayoclinic.org/comment/1640492/

@markmark007 The CAPTEM regimen is an

Discussion: Neuroendocrine Cancer journey update

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8 10:35am

@djchambers Would be so interested in what your next treatment recommendation will be from Dr. Hobday....

https://connect.mayoclinic.org/comment/1509509/

well differentiated and have done CapTem

Discussion: NETs growing despite 3 months of capecitabine and temozolomide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 19 8:44am

I am finishing up my 10th straight CAPTEM chemo cycle today. It has worked well for...

https://connect.mayoclinic.org/comment/880824/

I am finishing up my 10th straight CAPTEM

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2023

@iverwig If I recall correctly, you had extensive surgery not that long ago correct? You have...

https://connect.mayoclinic.org/comment/1573032/

Are your CAPTEM cycles two weeks on

Discussion: Capecitabine side effects are really tough: What helps?

Support Group: Cancer: Managing Symptoms

Posted: May 12 12:00pm

Be positive about the the y90 I had it after 7 months of captem that didn’t...

https://connect.mayoclinic.org/comment/1209258/

the y90 I had it after 7 months of captem

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2025

@laree I had 13 cycles of captem. For me, it got easier to tolerate the longer...

https://connect.mayoclinic.org/comment/1403367/

@laree I had 13 cycles of captem.

Discussion: Y90 and Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 28, 2025

@kevinmonroemi thank you. Have you tried any other treatments besides CapTem? I assume tired is a...

https://connect.mayoclinic.org/comment/1511502/

tried any other treatments besides CapTem

Discussion: NETs growing despite 3 months of capecitabine and temozolomide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 21 6:25pm

Has anyone else experienced, Gerd, swallowing problems, asphoguitis after a few months of Captem? Also High...

https://connect.mayoclinic.org/comment/1532347/

asphoguitis after a few months of Captem

Discussion: Y90 and Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21 6:38pm

I have not had PRRT, still waiting to see if I am accepted to the trial....

https://connect.mayoclinic.org/comment/829736/

receive either the trial medication or CAPTEM

Discussion: COMPOSE PRRT Lu Edotreotide Trial Study

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

Are you still on CapTem. I have been in on it for 6 months. Dr. Hopes...

https://connect.mayoclinic.org/comment/1367019/

Are you still on CapTem.

Discussion: Neuroendocrine tumor pancreatic tail

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 9, 2025

Hi, Sean, I started with two rounds of CAPTEM chemo, as my original PET DOTATATE scan...

https://connect.mayoclinic.org/comment/828517/

, I started with two rounds of CAPTEM ... I had significant growth after two CAPTEM

Discussion: High grade 2 and 3 neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19, 2023

I have a pNET. I have never taken creon. I was on CAPTEM for 12 months...

https://connect.mayoclinic.org/comment/950937/

I was on CAPTEM for 12 months and now

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 20, 2023

I know Dr. Sonbol myself. Started off with CAPTEM and everything shrunk. I completed 13 cycles...

https://connect.mayoclinic.org/comment/1123223/

Started off with CAPTEM and everything

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13, 2024

Update on Captem and Y90. After the 3 month mark, they had xaid the tumors in...

https://connect.mayoclinic.org/comment/1531803/

Update on Captem and Y90. ... I think they would have put him on captem ... somewhat and after 5 months off the captem ... He hadn't been on captem for a few

Discussion: Y90 and Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21 3:42am

I had Y90 radioembolization of one tumor that was growing while others were stable. It was...

https://connect.mayoclinic.org/comment/1344746/

I continue on CAPTEM protocol.

Discussion: Y90 and Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 9, 2025

Now I remember that he didn't take the nausea meds. Lesson learned. Most of us do...

https://connect.mayoclinic.org/comment/1342094/

The captem will make him tired.