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1,328 total results
Comments (1,292)
@dadcue Agreed! As you know we both have the same multiple autoimmune conditions. The one difference...
https://connect.mayoclinic.org/comment/1205092/
I’m making an appointment to try Actemra ... Not everything is caused by my PMR,
Wow ... you are fortunate. Did you have PMR first? I was diagnosed with PMR a...
https://connect.mayoclinic.org/comment/1201222/
Did you have PMR first? ... I was diagnosed with PMR a long time ... my rheumatologist got approval for Actemra ... to seek approval before I could try Actemra ... instructed to follow the guidelines for Actemra
Sorry ... I just read on your profile that you have Seronegative RA so that changes...
https://connect.mayoclinic.org/comment/1199737/
My primary diagnosis is PMR and that ... is the autoimmune disorder that Actemra ... -
According to my rheumatologist, Actemra ... Reactive Arthritis with Uveitis but Actemra ... be working for me since I also have PMR
My experience with GCA is similar in that I too have large vessel vasculitis GCA ,...
https://connect.mayoclinic.org/comment/1194814/
temporal involvement after one year of pmr ... Started 50mg pred and 162mg Actemera ... confident I’ll be off pred and continue actemera ... says any relapse will be treated with Actemera
If Prednisone works for you ... I wouldn't tell you not to take prednisone. I try...
https://connect.mayoclinic.org/comment/1190444/
I try not to say Actemra will work for ... I was told NOT to try Actemra when it ... entitled" to know things about PMR ... prednisone was the best and only option for PMR ... fame was long term prednisone use and PMR
I don't have that problem with Actemra infusions. Medicare pays for biologic infusions because they aren't...
https://connect.mayoclinic.org/comment/1190254/
I don't have that problem with Actemra ... Actemra has been around a relatively ... Actemra is FDA approved for GCA. ... because I was only diagnosed with PMR ... "should work" for PMR since
My PMR story is long and rather sad since I took prednisone for more than 12...
https://connect.mayoclinic.org/comment/1190179/
My PMR story is long and rather sad ... prednisone for more than 12 years to treat PMR ... I went into PMR rating my 'overall ... After Actemra was started, I was able ... Technically, I still have PMR.
I was getting Kevzara for free from the drug company but was just cut off. A...
https://connect.mayoclinic.org/comment/1188471/
might have GCA so he can get me on Actemra ... Medicare has approved Kevzara for PMR
I can't promise you that Actemra will work for you but I'm impressed that your doctor...
https://connect.mayoclinic.org/comment/1187547/
I can't promise you that Actemra ... impressed that your doctor wants to try Actemra ... My personal experience with Actemra ... everyone who is newly diagnosed with PMR ... What did your doctor tell you about Actemra
This subject is very complicated. I don't know all that much other than what my rheumatologist...
https://connect.mayoclinic.org/comment/1176531/
when Actemra was unavailable. ... I didn't do well when Actemra was ... Actemra is like any other medication ... My first experience with Actemra was ... For PMR/GCA what has been learned is
There is no reason why a person can't do a "fast taper" if you have been...
https://connect.mayoclinic.org/comment/1172827/
to be on prednisone for years when PMR ... Eventually treatment for PMR will evolve ... For me, that medication was Actemra ... because I quickly tapered to 3 mg after Actemra ... PMR has been slow to evolve since more
I am also conflicted about the shot. Had the Flu shot recently with no problems. I...
https://connect.mayoclinic.org/comment/1163886/
@ 4mg Prednisone and a once a week Actemra ... I am one of a small percentage of PMR ... give me the best chance of not having PMR
@dadcue ,@cgm You know already that we are in that same boat, unfortunately. I was diagnosed...
https://connect.mayoclinic.org/comment/1155687/
PMR did not appear until I was 72( I ... now and my doctor wants me to take Actemra
It is interesting that you had a flare of psoriasis after stopping Prednisone. Has anyone ever...
https://connect.mayoclinic.org/comment/1150891/
Reactive Arthritis (ReA) but not with PMR ... #39;m not saying you don't have PMR ... reason why you can't have both PMR ... Prednisone again along with Humira because PMR ... for PMR and Humira works to prevent
The 7 mg barrier strikes again. That might be caused by adrenal insufficiency. Methotrexate (MTX) is...
https://connect.mayoclinic.org/comment/1147561/
Prednisone until a biologic called Acterma ... Actemra allowed me to get past the 7 ... mg barrier because it controlled PMR ... I wasn't having any PMR symptoms ... Actemra didn't suppress my adrenal
"It's one thing after another, over and over again. I wonder what the next thing will...
https://connect.mayoclinic.org/comment/1142179/
it was one thing after another with PMR ... Now it is just one monthly Actemra infusion
I did go on actemra for 6 months. It did bring my sed rate down to...
https://connect.mayoclinic.org/comment/1136179/
I did go on actemra for 6 months. ... to for MGUS had an issue with the actemra ... so I went off it
The Actemra did ... work for me though as far as the PMR
I would be interested in what a UK doctor tells a newly diagnosed PMR patient. Is...
https://connect.mayoclinic.org/comment/1133197/
UK doctor tells a newly diagnosed PMR ... guidelines" for the treatment of PMR ... The guidelines for the treatment of PMR ... Prednisone until a biologic called Actemra
Hi Lily, This sure sounds familiar. I had immediate onset of PMR after knee replacement. Family...
https://connect.mayoclinic.org/comment/1132990/
I had immediate onset of PMR after knee ... for a second opinion but was told Actemra
I was diagnosed with Polymalagia rheumatica PMR and Giant Cell arteritis GCR My blood was ok...
https://connect.mayoclinic.org/comment/1130525/
diagnosed with Polymalagia rheumatica PMR ... prepping me for immunesuppressant Actemra
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