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Comments (1,149)

Actemra (tocilizumab) was FDA approved to treat GCA back in 2017. I was started on Actemra...

https://connect.mayoclinic.org/comment/1257180/

That was long before Kevzara was FDA ... Kevzara will be tried if Actemra stops

Discussion: Anyone tried Kevzara for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 13 3:07pm

Hi G, I was diagnosed with PMR in 2016 after knee replacement and possible GCA. Was...

https://connect.mayoclinic.org/comment/1121688/

only, new rheumatologist suggests Kevzara ... pain and morning stiffness from Kevzara

Discussion: PMR with normal blood markers

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 11, 2024

Don't expect an immediate change when starting Kevzara but try to be optimistic. Kevzara doesn't come...

https://connect.mayoclinic.org/comment/1079756/

an immediate change when starting Kevzara ... Kevzara doesn't come with any guarantees ... Good Luck ...your experience with Kevzara

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2024

"My rheumatologist, "my endocrinologist", LOL. Here PMR patients can't even get a referral accepted by any...

https://connect.mayoclinic.org/comment/1144087/

t even get methotrexate, much less Kevzara

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 19, 2024

It's my understanding the maximum out-of-pocket cost for prescription drugs under Medicare Part D is capped...

https://connect.mayoclinic.org/comment/1258721/

I also believe Kevzara is now covered

Discussion: Anyone tried Kevzara for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 15 2:15pm

Hi, I've been diagnosed with PMR and have been on prednisone for 12 months. (continuing to...

https://connect.mayoclinic.org/comment/1246539/

continuing to taper with the benefit of Kevzara

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Feb 27 10:29am

You can google this information. There are different inflammatory substances that contribute to PMR and GCA....

https://connect.mayoclinic.org/comment/1312801/

Actemra and Kevzara both limit the effect ... mostly caused by IL-6, Actemra and Kevzara

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25 6:06pm

For me Kevzara allowed a reduction in my prednisone dose but did not allow me to...

https://connect.mayoclinic.org/comment/1259408/

For me Kevzara allowed a reduction in

Discussion: Anyone tried Kevzara for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 16 10:50am

Someone else mentioned Actemara, but it’s not FDA approved, so I doubt my Rheumatologist will let...

https://connect.mayoclinic.org/comment/1236291/

She’s really wanting me to try Kevzara

Discussion: Can PMR present in the clavicle too?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 13 6:53pm

I agree with @megz that the advice to stop prednisone when your dose is 7 mg...

https://connect.mayoclinic.org/comment/1296282/

Actemra, which is another biologic like Kevzara

Discussion: I’m just wondering how old most of you are with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 4 9:24am

Hi, Can just share my experience as over time I had quite serious prednisone side effects....

https://connect.mayoclinic.org/comment/911744/

Kevzara has been a game changer for

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 12, 2023

I do not keep a daily log but even off prednisone entirely, I able to function...

https://connect.mayoclinic.org/comment/923094/

Have you heard of Kevzara just approved

Discussion: Off Prednisone for PMR

Support Group: Autoimmune Diseases

Posted: Sep 2, 2023

Hi @rocksology . I just looked at your profile and other posts. Seems that you have...

https://connect.mayoclinic.org/comment/1365064/

encourage the Methotrexate or the Kevzara ... I hope to start Kevzara soon (this month

Discussion: Prednisone and Osteoperosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 6 1:19pm

In 1998 I was diagnosed with Palindromic Rheumatism and I started taking Plaquinol. My rheumatologist said...

https://connect.mayoclinic.org/comment/1077474/

She then started me on Kevzara because ... cholesterol and one of the side effects of Kevzara

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2024

I'm been on the same combination for 5 months and am not able to go lower...

https://connect.mayoclinic.org/comment/1003708/

my last appointment he brought up Kevzara

Discussion: Methotrexate / Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 25, 2024

I am happy that Kevzara is working for you! May I ask how long it took...

https://connect.mayoclinic.org/comment/925631/

I am happy that Kevzara is working for

Discussion: Leflunomide, Kevzara for PMR, who knows about them?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 7, 2023

I’ve had RA for over 25 years and PMR for the last 3 years. Lots of...

https://connect.mayoclinic.org/comment/1160903/

and sleeping good now…Also now on Kevzara

Discussion: Anyone try earthing/grounding for pain relief?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 22, 2024

I can’t speak to Kevzara but I hear good things about it as a PMR treatment....

https://connect.mayoclinic.org/comment/1003755/

I can’t speak to Kevzara but I hear

Discussion: Temporal Arteritis, PMR, RA

Support Group: Autoimmune Diseases

Posted: Jan 25, 2024

I assume they didn't test cytokines because there weren't many good alternatives to Actemra and Kevzara....

https://connect.mayoclinic.org/comment/1313113/

many good alternatives to Actemra and Kevzara

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 26 8:21am

I’ve had PMR for 15 years, on prednisone for 5 years now. Prednisone never got rid...

https://connect.mayoclinic.org/comment/1122382/

I was prescribed Kevzara about 2.5 months ... For me Kevzara is a wonder drug and

Discussion: Does Kevzara put PMR in to remission?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 12, 2024