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Comments (10,000+)

Hello, It’s very confusing isn’t it? First, you won’t be symptom free for some time after...

https://connect.mayoclinic.org/comment/1088818/

symptoms are totally different to full on PMR ... prednisone if you don’t have full on PMR

Discussion: Symptoms after you stop prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 17, 2024

Hmm. I don’t know that there is an academic medical center that “specializes” in PMR. First...

https://connect.mayoclinic.org/comment/1074997/

medical center that “specializes” in PMR ... My dad has PMR and we are similarly

Discussion: Where to go for comprehensive evaluation?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 26, 2024

Thank you for sharing that. I feel fortunate that I was able to figure out he...

https://connect.mayoclinic.org/comment/1045559/

months after he was diagnosed with PMR ... I argued with her that he had PMR for

Discussion: What to tell adult kids? Dad diagnosed with giant cell arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2024

It is a challenge to exercise just enough without overdoing it and which exercise is tolerated...

https://connect.mayoclinic.org/comment/1039014/

nearly impossible, my doctor suspected PMR ... My point is that PMR can cause pain

Discussion: PMR and exercise: What helps you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 23, 2024

@charlotte61 My husband was diagnosed with PMR a few years ago and was put on a...

https://connect.mayoclinic.org/comment/964438/

charlotte61 My husband was diagnosed with PMR ... His PMR seems to be in remission except

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 14, 2023

I was originally diagnosed with PMR in Dec 2019. After taking my first 15mg of Prednisone...

https://connect.mayoclinic.org/comment/932973/

I was originally diagnosed with PMR ... down to 5mg then up I go again as PMR

Discussion: Does GCA ever present with mild symptoms ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 20, 2023

Hello! My name is Debbie, and I am so glad to meet everyone who is suffering...

https://connect.mayoclinic.org/comment/903428/

meet everyone who is suffering from PMR ... to a doctor, and they told me I had PMR

Discussion: Do I have polymyalgia rheumatica?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 28, 2023

Welcome to the forum and the PMR/GCA---prednisone world. I was a neurosurgery nurse for the majority...

https://connect.mayoclinic.org/comment/900408/

Welcome to the forum and the PMR/GCA ... I'm on a biologic now to treat PMR

Discussion: Associated migratory primarily thoracic back pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 22, 2023

Hi @bruce1951vet, It took me 3 and half years to taper off of prednisone my first...

https://connect.mayoclinic.org/comment/889839/

off of prednisone my first time with PMR ... My second time with PMR six years after

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 4, 2023

Mayo I am a 72 year old woman of Scandinavia/English descent. I began experiencing pain a...

https://connect.mayoclinic.org/comment/860754/

work, I was finally diagnosed with PMR ... lifestyle changes and deal with the PMR

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 16, 2023

Did you have any injections of any description before your PMR began? Flu vaccine maybe or...

https://connect.mayoclinic.org/comment/855219/

injections of any description before your PMR ... the fact that I have to live with PMR

Discussion: Diet & PMR.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 6, 2023

Hello- I was diagnosed with PMR 12/2021 by my Primary care provider. She started me on...

https://connect.mayoclinic.org/comment/841801/

Hello- I was diagnosed with PMR 12/2021 ... rheumatologist is not convinced I have PMR

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 11, 2023

Hi @redboat, I think the answer to your question may be different depending on who you...

https://connect.mayoclinic.org/comment/818285/

prednisone for both my occurrences of PMR ... condition of GCA which can accompany PMR

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 27, 2023

I was taking prednisone daily for 13 years before Actemra was tried. It takes time for...

https://connect.mayoclinic.org/comment/728430/

also have aches and pains similar to PMR ... injections every 10 days to treat PMR

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 19, 2022

Hi @jfannarbor, Thanks for starting this discussion. I've done the Mayo Clinic GeneGuide which is no...

https://connect.mayoclinic.org/comment/706589/

My PMR is currently in remission. ... wake up but it's nothing like the PMR

Discussion: Genetic Sequencing and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 9, 2022

I had wrist and hand pains develop while tapering when I got down to about 7....

https://connect.mayoclinic.org/comment/1297243/

been kept in check (no pain) before PMR

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 5 9:40am

I started with PMR symptoms in 6/2020. I finally was weaned totally off Prednisone in 8/2024....

https://connect.mayoclinic.org/comment/1309981/

I started with PMR symptoms in 6/2020

Discussion: Helpful morning routines

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 22 5:45am

I’m 76. Soon to be 77. I went through pulmonary rehab to be sure I could...

https://connect.mayoclinic.org/comment/1317846/

PMR still there but we can let it stop

Discussion: Vigorous exercise and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1 10:28am

Congratulations for tapering off Prednisone. I hope you can stay off Prednisone. I was on Prednisone...

https://connect.mayoclinic.org/comment/1331305/

on Prednisone for 12 years to treat PMR

Discussion: Kevzara Experiences

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 20 12:11pm

My quick take: If you and your husband aren’t comfortable with adding a statin while he’s...

https://connect.mayoclinic.org/comment/1075030/

he’s continuing to manage the GCA/PMR ... lot already with him recovering from PMR ... had bad side effects that masked the PMR

Discussion: Statins - side-effects, PMR, Giant Cell Arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 26, 2024