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Comments (2,761)
My GCA started Oct 2023 with headaches, swollen temporal arteries, and scalp sensitivity. I never get...
https://connect.mayoclinic.org/comment/1242918/
of body pain and was diagnosed with PMR ... We started a slow taper in December. ... Prednisone controlled both my GCA and ... PMR and the inflammatory markers results ... I tapered down 0 mg of prednisone June
“Anyone have pain when tapering…?” Of course you will. My rheumy told me in my first...
https://connect.mayoclinic.org/comment/1144535/
“Anyone have pain when tapering…?” ... if we do this right, it will not be PMR ... Stick with the taper schedule, and do ... levels along the way that were not PMR ... do not automatically reach for the prednisone
@lori62yb Hello Lori, I don’t know why your doctor would say that PMR doesn’t normally present...
https://connect.mayoclinic.org/comment/1231440/
know why your doctor would say that PMR ... I’m on my 2nd round of PMR and have ... tapered down to 5 mg prednisone. ... Actemra and I would like to get off prednisone ... best on this continued journey with PMR
How soon was Kevzara started after you were diagnosed with PMR? My response to Actemra was...
https://connect.mayoclinic.org/comment/1237281/
started after you were diagnosed with PMR ... Actemra was dramatic but I was on Prednisone ... cortisol level to improve before I could taper ... off Prednisone.
I agree with Dadcue. Its great that Kevzara works. I think it should be tried as...
https://connect.mayoclinic.org/comment/1141882/
be tried as soon as possible in the PMR ... The idea being it keeps the PMR controlled ... taper. ... insufficiency is almost identical to PMR ... I think its worth it to be off the prednisone
I agree with those who have posted so far. I ran into a similar problem with...
https://connect.mayoclinic.org/comment/1246203/
who refused to continue prescribing prednisone ... Stated I did not have PMR, although ... within hours of a single 20 mg dose of prednisone ... knowledgeable and prescribed enough prednisone ... I have been tapering for a year without
Hi @phogan0609, Welcome to Connect. Sorry to hear Mr. Ugly (PMR) has invaded your personal space....
https://connect.mayoclinic.org/comment/1248263/
Ugly (PMR) has invaded your personal ... Took 3 and half years to taper off of ... I'm not sure if you are on a tapering ... discussion:
-- How to Slowly and Safely Taper ... discussion/how-to-slowly-and-safely-taper-off-prednisone-but-no-set-rules
"Others in this forum seem to have had good success with it." --------------------------- Now that more...
https://connect.mayoclinic.org/comment/1289020/
I was on another PMR forum at the time ... was a backlash from the patient "PMR ... entitled" to know things about PMR ... In the short term, prednisone wasn' ... I tapered off prednisone within a year
My experience has been very similar to yours. I was diagnosed with GCA and PMR in...
https://connect.mayoclinic.org/comment/1288758/
I was diagnosed with GCA and PMR in ... I started with 60 mg prednisone, and ... I'm at 5 mg prednisone now, and ... appointment tomorrow to discuss further tapering ... 't had any pain or symptoms of PMR
I agree with @johnbishop and I don't think there is a gaping hole in the medical...
https://connect.mayoclinic.org/comment/1289041/
treat PMR, I learned many things that ... same was true for my knowledge about PMR ... biologics and their role in treating PMR ... there is a gaping hole about treating PMR ... and my inability to taper off Prednisone
I am 78 and was diagnosed with PMR Almost 3 yrs ago. I was able to...
https://connect.mayoclinic.org/comment/1290488/
I am 78 and was diagnosed with PMR ... I was able to taper off and was doing ... I relapsed and have again been on prednisone ... I have tapered off to 3 mgs but as allergy
"Perhaps if we had tapered much more slowly at the beginning things would have gone better."...
https://connect.mayoclinic.org/comment/1280830/
off prednisone. ... quickly at the start of PMR. ... I have been off Prednisone for nearly ... I feel infinitely better being off prednisone ... endocrinologist who is helping me overcome my Prednisone
In theory, it shouldn't be a question of one or the other but for each person...
https://connect.mayoclinic.org/comment/1277389/
If the pain comes from general prednisone ... the short answer is that the prednisone ... indication that the amount you last tapered ... have both at the same time if the taper ... biologics are very expensive, and prednisone
The same thing applies to adrenal insufficiency from long term prednisone use. It wasn't the pain...
https://connect.mayoclinic.org/comment/1278031/
The reason for a slow taper is more ... Poor adrenal function and PMR flares ... For me, it was the combination of PMR ... suppression that explained why I could not taper ... off prednisone very quickly,
I
I was 52 when PMR was diagnosed and treated with Prednisone for 12 years. PMR never...
https://connect.mayoclinic.org/comment/1290105/
I was 52 when PMR was diagnosed and ... treated with Prednisone for 12 years ... PMR never went into remission during ... and that was when I tapered off prednisone ... instead of Prednisone.
I’m 78-diagnosed at 77. Started prednisone at 15 mg and now tapering back and forth between...
https://connect.mayoclinic.org/comment/1290232/
Started prednisone at 15 mg and now ... tapering back and forth between 7 & ... PMR gives me good days and painful days
You have asked an interesting question. Nobody really knows how long PMR lasts except that prolonged...
https://connect.mayoclinic.org/comment/1283501/
Nobody really knows how long PMR lasts ... followed by a fast taper. ... and taper off within 4 weeks. ... tried to taper off prednisone in 4 weeks ... A fast taper didn't work and that
I've been injecting Actemra weekly for almost 10 months, and I also take prednisone. I have...
https://connect.mayoclinic.org/comment/1302675/
almost 10 months, and I also take prednisone ... I have GCA and PMR. ... I started at 60 mg prednisone a day, ... My rheumatologist wants me to taper
X-Rays have shown I have cppd arthropathy in my hands and knee. Calcium pyrophosphate crystals. Another...
https://connect.mayoclinic.org/comment/1305225/
the issue of whether it's the pmr ... ;weather' through a flare when tapering ... effective dose and tried a slower taper ... Pmr, cppd, OA, they are all painful ... Still hoping to get to get to 0 prednisone
Actually the treatments for PMR and GCA are not the same. The biologic drug Actemra is...
https://connect.mayoclinic.org/comment/1307925/
Actually the treatments for PMR and ... drug Kevzara is approved to treat PMR ... The biologic drugs allow you to taper ... off of prednisone faster and help prevent
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