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Comments (10,000+)

Hi @jennywren, GCA can cause stroke or blindness if untreated and a higher dosage of prednisone...

https://connect.mayoclinic.org/comment/933916/

dosage of prednisone than that for PMR ... I had PMR untreated a year, then symptoms

Discussion: Does GCA ever present with mild symptoms ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 21, 2023

Welcome @grammy82, I'm happy to hear you found Connect also and it's great to hear your...

https://connect.mayoclinic.org/comment/856661/

The PMR and GCA discussions came in ... handy during my second flare of PMR

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 8, 2023

I am not normal, atypical, non classic…..lots of other words like that. My rheumatologist uses these...

https://connect.mayoclinic.org/comment/850628/

uses these terms to indicate that my PMR ... There really isn’t a garden variety PMR

Discussion: How did your PMR begin?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 28, 2023

Hi, dmoonchild, Sounds totally awful what you're going through. I certainly hope you can get some...

https://connect.mayoclinic.org/comment/755805/

The PMR people would know about that ... But headaches are not usually a PMR

Discussion: Do I really have PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 1, 2022

I was diagnosed with PMR two and a half years ago at age 71. Started out...

https://connect.mayoclinic.org/comment/286800/

I was diagnosed with PMR two and a half ... I have very mild pmr symptoms in the

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 18, 2021

@phoenix0509, I did start both occurrences of PMR with 20 mg prednisone. My rheumatologist suggested I...

https://connect.mayoclinic.org/comment/145037/

phoenix0509, I did start both occurrences of PMR ... month mark my first time around with PMR

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 25, 2020

Thanks for sharing your story, Peanuts. My Doctor, like yours, told me that I would be...

https://connect.mayoclinic.org/comment/137863/

Slowly and steadily though, my PMR symptoms ... arm (not one of my usual symptoms of PMR

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7, 2019

I have had Dupuytren palmar bands for years before I developed PMR and then carpal tunnel...

https://connect.mayoclinic.org/comment/1230056/

bands for years before I developed PMR

Discussion: Dupuytren's Contracture?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 5 11:44am

I am not sure that PMR causes that much emotional distress? It is painful but can...

https://connect.mayoclinic.org/comment/1184222/

I am not sure that PMR causes that much

Discussion: Emotional Roller Coaster and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 4, 2024

I have had AFib for 10 years and have been on blood thinners all that time....

https://connect.mayoclinic.org/comment/1179624/

I was diagnosed with pmr 9 months ago

Discussion: Any of you with PMR also have afib and on blood thinners?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 25, 2024

I’ve continued to get vaccines and no flares or bad side effects. I’m guessing the suppressed...

https://connect.mayoclinic.org/comment/1264819/

getting one of those illnesses with pmr

Discussion: Safe to get vaccines after diagnosis?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 23 10:51am

i was diagnosed with PMR last april, 2024. Was on Preg. 15 mg until Feb, 2025...

https://connect.mayoclinic.org/comment/1294288/

i was diagnosed with PMR last april,

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 1 11:58am

I have had PMR for 7 years and have been at 3mg. daily to get off...

https://connect.mayoclinic.org/comment/1222914/

I have had PMR for 7 years and have

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 27 9:18am

You're not alone. This is a great forum for support and information. I was diagnosed with...

https://connect.mayoclinic.org/comment/1215481/

I was diagnosed with PMR and possible

Discussion: New to this diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 18 9:05am

Great to hear from you! Right now the only thing I’m taking are methotrexate and hydroxychloroquine....

https://connect.mayoclinic.org/comment/1302746/

the medication‘s I’ve been given for PMR

Discussion: Anyone having luck while taking methotrexate?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12 5:07pm

That's just what my rheumatologist told me. I'm reasonably certain I didn't misunderstand him because I...

https://connect.mayoclinic.org/comment/1132177/

checking all of the other boxes for PMR

Discussion: Any Tips For Tapering Off Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 28, 2024

Usually when they give an injection of a steroid, you start your oral dose of steroids...

https://connect.mayoclinic.org/comment/1125766/

Wishing you great pain relief on your PMR

Discussion: Thank you Reminder to PMR group

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 18, 2024

I'm sure I have PMR but also sure I have back and knee issues unrelated. Juggling...

https://connect.mayoclinic.org/comment/1084445/

I'm sure I have PMR but also sure

Discussion: How about knee and lower leg pain?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 10, 2024

I am down to 1 mg of prednisone after 3 years. I am also experiencing grip...

https://connect.mayoclinic.org/comment/1075619/

symptoms before being diagnosed with PMR

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 27, 2024

I developed PMR while taking Hydroxychloroquine for ax-SpA (spondylo-arthropathy). Was this a co-incidence or drug inter-action?...

https://connect.mayoclinic.org/comment/1052280/

I developed PMR while taking Hydroxychloroquine

Discussion: Shifting from Prednisone to Hydroxychloroquine

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 17, 2024