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Comments (3,129)
Everyone is different, but since you mentioned it’s only your first month with PMR, I’m wondering...
mentioned it’s only your first month with PMR ... , I’m wondering if you may be tapering ... The one thing we all share with PMR ... that in most cases, slow-slow-slow taper ... and she told me they used to call prednisone
@pkalkstein I'm writing just to say how important and clear I think your post is.....it is...
PMR/GCA...we don't get cured, and ... prednisone allows us to manage the ... pain, taper slowly and stave off GCA ... diagnosed with the flu...probably PMR
Discussion: Breakthrough Pain?
Posted: Jun 11, 2023
Hi @lanieg, I'm sorry to hear that the prednisone is messing with your blood glucose. That...
lanieg, I'm sorry to hear that the prednisone ... do anything to treat the cause of PMR ... helpful when you are struggling to taper ... off of prednisone or need alternatives ... to Prednisone?
Hi @jholland ... What do you mean by experimental stages of inflammatory arthritis? The biologic that...
I was always able to taper off in a ... It became impossible to taper off prednisone ... tociliumab) was started I was able to taper ... I couldn't taper off because Actemra ... I tapered off prednisone in 3 months
Posted: Jun 10, 2023
Hello @livingwithpmr, Tapering off of prednisone while managing the PMR symptoms can be difficult at times....
Hello @livingwithpmr, Tapering off of ... prednisone while managing the PMR symptoms ... — PMR Dosages and Managing Symptoms ... helped me was keeping a daily log of my prednisone ... had in the morning before taking the prednisone
Posted: Jun 4, 2023
Thanks Grammy for your fast reply! My blood inflammation markers are normal and initially elevated but...
I know you can have PMR with normal ... don’t know where I’d be without the prednisone ... treatment I am much better until this last taper
Wishing you luck... I don't know if GCA could pop up again as a problem, but...
But on the prednisone dose, if this ... helps, if tapering by 5 milligrams feels ... his caregiver; he is the one with PMR ... never diagnosed with GCA; his highest prednisone ... his rheumatologist suggested to try tapering
Me too with low grade headaches and/or/whooshing/ringing. Am stuck in my tapering down from 20 MG...
Am stuck in my tapering down from 20 ... MG prednisone plus LDN to a divided ... He said that since I have been on prednisone ... or the pmr or something else giving ... from a doctor who seems to know about PMR
Thank-you but when I looked to find information I found the following: "What Is Not Eligible...
to take daily for PMR. ... and encouraged me to keep trying to taper ... that was recently FDA approved for PMR ... been tried sooner because it made tapering ... who thought Actemra should work for PMR
Posted: May 30, 2023
Hello @gmanurse, Great advice, I wished more primary care docs understood PMR a little better and...
more primary care docs understood PMR ... and not focusing on getting off of prednisone ... I saw the following tapering plan on ... known about with my first round with PMR ... slow and nearly stop reduction plan (Tapering
I'm currently off prednisone but I took it for more than 12 years for PMR. I...
I'm currently off prednisone but ... took it for more than 12 years for PMR ... ;depends how I feel" method of tapering ... The effects of prednisone did wear off ... , I would take less prednisone.
Posted: May 28, 2023
Hello @freeme, Welcome to Connect. It's good that you are advocating for your health and learning...
learning as much as you can about PMR ... I've had 2 occurrences of PMR but ... What helped me when I was tapering off ... of prednisone was keeping a daily log ... with my prednisone dose for the day
I received Actemra for PMR 4 years ago.. Actemra was requested and approved. Actemra works very...
minimal side effects and was able to taper ... off prednisone relatively quickly. ... I was unable to taper off prednisone ... young" (64 years old) to take prednisone ... GCA), most notably the inability to taper
Thanks for your comments. My Prednisone tapering schedule goes down to 10 mg in 2 weeks,...
My Prednisone tapering schedule goes ... Due to the high dosage of Prednisone ... As I taper off Prednisone, there are ... was about 10x higher than most with PMR ... My Actemra & Prednisone treatment
I was an underachiever when it came to tapering off quickly. It took me more than...
I was dealing with in addition to PMR ... for me after PMR was diagnosed. ... autoimmune conditions that preceded PMR ... PMR was responsive to prednisone but ... possible for me but did document that PMR
First, I wish to say that it takes fortitude to come off prednisone like that. On...
that it takes fortitude to come off prednisone ... hand, it isn't entirely safe to taper ... biologic I tried didn't work for PMR ... pain came back and I was unable to taper ... insufficiency and encouraged me to taper
Mayo I am a 72 year old woman of Scandinavia/English descent. I began experiencing pain a...
work, I was finally diagnosed with PMR ... I was prescribed prednisone beginning ... with 40mg and tapered down pretty quickly ... I don’t like prednisone side effects ... lifestyle changes and deal with the PMR
Way to fast on the taper. Enough Prednisone to eliminate pain then reduce 1 mg at...
Way to fast on the taper. ... Enough Prednisone to eliminate pain ... Have had PMR for two years am 83,covid
Posted: May 14, 2023
Hello... Was diagnosed with PMR May 2022. Have had trouble tapering of Prednisone at 6 and...
Was diagnosed with PMR May 2022. ... Have had trouble tapering of Prednisone ... And I am still having trouble tampering ... gardening or exercise can increase PMR
I had been feeling stiff for about two month and then, over a period of about...
mirror pain" to be a hallmark of PMR ... (I was told the tapering schedule is ... Leflunomide was added to the prednisone ... and I was off prednisone within 9 months ... at 10mg with a taper from that over