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2,073 total results
Comments (2,008)
Mayo Connect is a good resource. There are many people in the USA being started on...
https://connect.mayoclinic.org/comment/1329973/
I had a fantastic response to Actemra ... rheumatologist said to me before starting Actemra ... year to taper off Prednisone after Actemra
Discussion: Any experiences with Kevzara (sarilumab)?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Jun 18 1:49pm
@dadcue I'm not sure if I've responded to this before but in case I haven't. Thank...
https://connect.mayoclinic.org/comment/1058457/
And so glad they put you on Actemra ... Prednisone should be given a chance with Actemra ... improvements since he's been on Actemra ... Can they give you the Actemra injection
Discussion: New PMR patient, wondering if mornings will become pain free someday
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Apr 27, 2024
@dadcue You asked "Have you ever been diagnosed with anything more specific or is it still...
https://connect.mayoclinic.org/comment/939589/
regimen used in the 2017 tocilizumab (Actemra ... 5 weeks, then started me on weekly Actemra ... The Actemra will likely continue for ... now, coupled with weekly shots of Actemra
Discussion: Corticosteroid injections for polymyalgia rheumatica
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Sep 30, 2023
I think you are right about the costs. Perhaps the pharmacy is assuming an injection once/month...
https://connect.mayoclinic.org/comment/832210/
attached pdf is from the Kaiser, and the Actemra ... understanding, costs look more like Actemra ... not go far, about 3.2 months with Actemra ... New England J of Medicine study on Actemra
Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Mar 26, 2023
I'm in the same boat. I was diagnosed with spondylitis about 30 years ago. I also...
https://connect.mayoclinic.org/comment/804341/
off prednisone, a biologic called Actemra ... now everything is being managed with Actemra ... I have taken Actemra for 4 years and ... serious side effects while taking Actemra
Discussion: Biologics side affects
Support Group: Autoimmune Diseases
Posted: Jan 31, 2023
"Endo I saw said she could not test my adrenals until I was completely off steroids...
https://connect.mayoclinic.org/comment/1143882/
rheumatologist asked me if I wanted to try Actemra ... He talked about new research about Actemra ... needed to seek approval for me to try Actemra ... Now Actemra is FDA approved for GCA ... Actemra worked for me but not immediately
Discussion: If you have tapering problems below 5 mg this might explain why.
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Sep 19, 2024
Inflammatory arthritis and PMR are a bad combination. I took high doses of prednisone intermittently for...
https://connect.mayoclinic.org/comment/807109/
prednisone until a biologic called Actemra ... I think Actemra allowed me to reduce ... prednisone free but I still need to take Actemra ... Actemra (tocilizumab) might be another ... If you ask me, Actemra works very well
Discussion: PMR Dosages and Managing Symptoms
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Feb 6, 2023
Some people would say Kevzara does nothing to directly improve your cortisol level if you have...
https://connect.mayoclinic.org/comment/1379484/
Hopefully, Actemra or Kevzara will ... without a flare of PMR because of Actemra ... Without Actemra, I would never have ... stopped Prednisone and remained on Actemra ... The advantage that Actemra and Kevzara
Discussion: If you have tapering problems below 5 mg this might explain why.
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Aug 26 5:53am
Just be aware of the symptoms of secondary adrenal insufficiency from long term prednisone use. Interestingly,...
https://connect.mayoclinic.org/comment/975420/
rheumatologist seems very reluctant to stop Actemra ... seem to have any side effects from Actemra ... If and when Actemra stops working, my ... prednisone, it is relatively easy to stop Actemra
Discussion: PMR Dosages and Managing Symptoms
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Dec 5, 2023