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Comments (3,129)
Hi @ vellen….I just noticed that you have fibromyalgia as well as PMR. I’m thinking I...
that you have fibromyalgia as well as PMR ... Rate, but she gave me the one week prednisone ... script which tapers naturally by the ... changed my dosage to 8 mg regular prednisone ... your dr know you had both fibro and pmr
One would hope PMR patients of the future will have better options than prednisone. I took...
One would hope PMR patients of the future ... for PMR and never could taper off. ... the only option for PMR and GCA. ... I was able to taper off prednisone in ... getting Actemra approved for me to treat PMR
Posted: Jul 9, 2023
You wrote: "How are you doing with Actemra?" Actemra seems to be working well for me,...
working well for me, and had helped me tapered ... down to 8 mg/day of Prednisone. ... Assuming no relapses, I should be off Prednisone ... My sleep returned once the Prednisone ... My blood tests are very near my pre-PMR
Posted: Jul 6, 2023
Hi @johnbishop, Thanks so much for sharing your story with me. I have to say I...
It just seemed like a life time of tapering ... Having only been on prednisone for only ... I understand this process of tapering ... log of the pain level and my dose of prednisone ... increasing dose to half of previous taper
I will try to answer your questions but I don't have any experience with Kevzara. My...
What was your prednisone tapering schedule ... What is your tapering schedule now that ... After Actemra was started, I tapered ... Then I tapered by 1 mg per week down ... restarted and Humira was stopped, I tapered
Hi @bruce1951vet, It took me 3 and half years to taper off of prednisone my first...
off of prednisone my first time with ... PMR. ... My second time with PMR six years after ... level when I woke up and my dose of prednisone ... pain flared, I sometimes increased my prednisone
Thanks, this is very helpful. You mentioned that Actemra can be stopped at any time (unlike...
can be stopped at any time (unlike Prednisone ... Actemra would increase the risk of a PMR ... Otherwise it would have no advantage over tapering ... Prednisone alone.
Posted: Jul 1, 2023
That was hope my rheumatologist gave me too about Actemra. That was before Kevzara was FDA...
before Kevzara was FDA approved for PMR ... PMR flares haven't happened as long ... I was just fortunate to be able to taper ... 12 years to treat PMR. ... I had to taper down to 3 mg of prednisone
Posted: Jun 28, 2023
Hi, I have been dealing with PMR for a while. Started on Prednisone 15 mg last...
Started on Prednisone 15 mg last July ... I am tapering off the prednisone as ... my diet, those types of things) The prednisone ... Tapering more than that can cause other ... issues so you must taper SLOWLY and
I finally saw a rheumatologist last week!! Been waiting since February! So, it’s officially PMR -...
So, it’s officially PMR - my primary ... amazing and after being on 40mg of prednisone ... I now start decreasing prednisone by ... until I hit 20mg then wait 2 weeks and taper
@vellen I'm guessing 2 weeks was too soon to taper down. I've had 2 occurrences of...
I've had 2 occurrences of PMR and ... I was started on 20 mg prednisone for ... the morning along with my dose of prednisone ... and 1-1/2 years the second time with PMR ... a prescription for 1 mg and 2.5 mg prednisone
Posted: Jun 24, 2023
Hi. It’s so nice to hear a more positive story! If your symptoms just started in...
Rheumy initially gave me the one week tapering ... of Methylprednisolone rather than Prednisone ... I just tapered to 5 mg yesterday and ... morning pain, but I had all the other PMR ... ‘Hope you continue to taper easily!
Interesting that you say that about regulating your own prednisone that’s kind of what I am...
say that about regulating your own prednisone ... interesting that said working with this prednisone ... and tapering. ... I have PMR/GCA. ... I carry a a bottle of prednisone with
Hi, my name is Leslie and I have recently started on my PMR journey with bilateral...
and I have recently started on my PMR ... rheumatologist gave me a one week high but tapering ... course of prednisone which immediately ... been experimenting with taking my prednisone ... is not pleased with the addition of prednisone
I really believe mine came about because of extreme stress. I was already totally stressed from...
I was aching all over and then the PMR ... I was put on 10 mgs of prednisone and ... 20 months I was able to get off of prednisone ... by tapering very slowly and have been
Posted: Jun 18, 2023
I'm currently doing Actemra infusions. It was somewhat difficult for my rheumatologist to get Actemra authorized...
since it isn't FDA approved for PMR ... Injections every 2 weeks worked well and I tapered ... I had better luck tapering off prednisone ... to treat PMR. ... 12 years after being diagnosed with PMR
I was diagnosed with PMR a year ago. I was initially put on 30 mg prednisone...
I was diagnosed with PMR a year ago. ... I was initially put on 30 mg prednisone ... with a taper for one year. ... Took me gradually off all prednisone
Everyone is different, but since you mentioned it’s only your first month with PMR, I’m wondering...
mentioned it’s only your first month with PMR ... , I’m wondering if you may be tapering ... The one thing we all share with PMR ... that in most cases, slow-slow-slow taper ... and she told me they used to call prednisone