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Comments (696)

My hubs was diagnosed in 2019 with an intestinal blockage. Surgery revealed he had the NET...

https://connect.mayoclinic.org/comment/899657/

He was stable with the Octreatide (Sandostatin

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21, 2023

Ok. My hubs is on octrotide (sandostatin) injections. Maybe that's why it's not an issue.

https://connect.mayoclinic.org/comment/879432/

My hubs is on octrotide (sandostatin

Discussion: Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2023

I went on to Ocreotide The first 3 injections I had side effects that weren’t so...

https://connect.mayoclinic.org/comment/868253/

I went on to Ocreotide The first 3 ... which is a different effect from the Ocreotide

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2023

I am so sorry for you and your husband I am on 10mg of Ocreotide and...

https://connect.mayoclinic.org/comment/832950/

and your husband I am on 10mg of Ocreotide

Discussion: Stage 4 Carcinoid tumor: What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 27, 2023

I also have stage 4 metastasized from small intestine to the liver. On Ocreotide injections for...

https://connect.mayoclinic.org/comment/1408667/

On Ocreotide injections for a little

Discussion: 2nd 3 month follow up

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 5, 2025

After being on Ocreotide for almost 2 years a few of my tumors were still growing,...

https://connect.mayoclinic.org/comment/1346238/

After being on Ocreotide for almost

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 12, 2025

I do not have a stent, the PRRT treatment I received was called Lutathera, all 4...

https://connect.mayoclinic.org/comment/1313017/

hour after the treatment I receive my Ocreotide

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2025

All forms of nets are still pretty rare but more cases are being diagnosed all the...

https://connect.mayoclinic.org/comment/1296399/

a reason for the delay in starting octrotide

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2025

The treatments are induced by IV, it takes about 5 hours total. Starts with an amino...

https://connect.mayoclinic.org/comment/1283718/

about 3 hours , after this I have my Ocreotide

Discussion: NET in jejunum spread to liver: Treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17, 2025

PRRT ( peptide receptor radionuclide therapy) is a radiation treatment.. I was on Ocreotide injections for...

https://connect.mayoclinic.org/comment/1258508/

I was on Ocreotide injections for over

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15, 2025

If the injection is Lanreotide every 28! I did 3 injections and had to switch to...

https://connect.mayoclinic.org/comment/1197109/

3 injections and had to switch to ocreotide

Discussion: Stage 4 Carcinoid tumor: What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 25, 2024

Thank you very much! Well it was partial resection around 50 cm with ileocecal valve. I...

https://connect.mayoclinic.org/comment/1194019/

After that my oncologist told to try Orctreotide

Discussion: Still have symptoms after surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 20, 2024

I have had Scans read wrong I think private places don’t really know what they are...

https://connect.mayoclinic.org/comment/1184710/

another NET oncologist that put me on Ocreotide

Discussion: What causes differences in reading of CAT Scan and MRI imaging?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 5, 2024

I have seen octriotide lessons symptoms and can reduce tumor growth. Mom wll be getting another...

https://connect.mayoclinic.org/comment/1162009/

I have seen octriotide lessons symptoms

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2024

Thank you for your quick response I took 3 infusions of Lanreotide in 2022 had to...

https://connect.mayoclinic.org/comment/1128751/

effects were severe I was switched to Ocreotide

Discussion: Short acting Ocreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2024

I had all tests octreatide scan for carcinoid tumor, 24 urine test , blood test, abdominal...

https://connect.mayoclinic.org/comment/263693/

I had all tests octreatide scan for

Discussion: Chronic upper abdominal pain

Support Group: Inflammatory Bowel Disease (IBD)

Posted: Sep 29, 2019