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Comments (10,000+)

There's a lot to like about this video. He discusses exact body areas that are affected...

https://connect.mayoclinic.org/comment/1112281/

exact body areas that are affected by PMR ... I've had PMR for so long, over 3

Discussion: History of PMR -- Interesting video presentation from past to present.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 26, 2024

Good morning. I just had my 2d injection of Kevzara this morning, Nov 7. Administered by...

https://connect.mayoclinic.org/comment/960413/

diagnosed about Kevzara in trials for PMR ... for RA since 2017 and approved for PMR

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 7, 2023

Everyone is different, but since you mentioned it’s only your first month with PMR, I’m wondering...

https://connect.mayoclinic.org/comment/876583/

mentioned it’s only your first month with PMR ... The one thing we all share with PMR

Discussion: Have you been able to taper prednisone with long lasting success?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 11, 2023

Hello @bruce1951vet, Welcome to Connect. I also have PMR but it's currently in remission. Both times...

https://connect.mayoclinic.org/comment/862921/

I also have PMR but it's currently ... Hopefully others with PMR who have also

Discussion: I have PMR, as well as a high PTH level of 117, anyone else have this?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 19, 2023

@christi48 When was PMR diagnosed? @johnbishop is correct, 5 mg isn't the standard starting dose that...

https://connect.mayoclinic.org/comment/821413/

@christi48 When was PMR diagnosed ... dose that doctors usually use for PMR

Discussion: How does one know when it is OK to start a slow taper?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 5, 2023

First symptoms of PMR (although I just thought it was sore neck and shoulders), began the...

https://connect.mayoclinic.org/comment/813701/

First symptoms of PMR (although I just ... Neurologist here in Halifax, who diagnosed PMR

Discussion: When in PMR remission: What's your experience with covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 19, 2023

I had 3 Pfizer vaccines and on my 4th vaccine, I decided to “mix it up”...

https://connect.mayoclinic.org/comment/745221/

He diagnosed PMR and started me on 40 ... to get another vaccine until this PMR

Discussion: Anyone with PMR have experience with 4th COVID vax jab?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 3, 2022

So I'm reading all these posts with some trepidation, because I've been put on 40mg prednisone...

https://connect.mayoclinic.org/comment/734964/

down), but when I got below 20mg, the PMR ... seeing my neurologist--who treats PMR

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 7, 2022

I am an avid golfer and skier I am 73 got pmr last June started on...

https://connect.mayoclinic.org/comment/695969/

avid golfer and skier I am 73 got pmr ... agree but we are all different and pmr

Discussion: Golf and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2022

Hi @mzamyl, my rheumatologist told me that tapering is a fine balancing act. A doctor friend...

https://connect.mayoclinic.org/comment/694930/

me that prednisone is needed - with PMR ... Eventually PMR and GCA go away.

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 31, 2022

Hi @opus640, Welcome to Connect. My PMR is currently in remission. I've had 2 occurrences of...

https://connect.mayoclinic.org/comment/645685/

My PMR is currently in remission. ... I've had 2 occurrences of PMR and

Discussion: PMR Anyone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 16, 2021

Sounds like you are already on top of the healthy eating. I do take some supplements...

https://connect.mayoclinic.org/comment/636037/

also included in the ones listed for PMR ... diet-and-supplements-polymyalgia-rheumatica-pmr

Discussion: PMR Anyone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 16, 2021

I was diagnosed 2016. 15 mgs took all the pain away but I did reduce too...

https://connect.mayoclinic.org/comment/286818/

PMR lasts an average of 5.9 years. ... google the 2017 Mayo/Mathison study on PMR

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 22, 2021

PMR often coexists with GCA. I have not been able to find another person with GCA...

https://connect.mayoclinic.org/comment/211411/

PMR often coexists with GCA. ... with GCA so I started reading the PMR

Discussion: New Diagnosis of Polymyalgia Rheumatica (Husband)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 25, 2018

Feeling defeated, it is truly frustrating when ur diagnosed with PMR. I woke up one morning...

https://connect.mayoclinic.org/comment/1215986/

frustrating when ur diagnosed with PMR ... Good luck on your journey out of PMR

Discussion: Feeling defeated

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 18 7:16pm

@vanns, @johnbishop, @megz, and all... My goodness! What wonderful help from you all for those of...

https://connect.mayoclinic.org/comment/979078/

all for those of us who are new to PMR ... I was diagnosed a week ago with PMR ... ..that's when my PCP diagnosed PMR ... It seems it was PMR. ... Do you see your PMR symptoms lessen

Discussion: Sugar and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 12, 2023

You can probably find a rheumatologist that would be happy to prescribe low dose Prednisone to...

https://connect.mayoclinic.org/comment/1128050/

#34;short term" medication for PMR ... alternative to Prednisone to treat PMR ... People with PMR need to advocate for ... When Prednisone was initiated for PMR

Discussion: Grouped Into 3 Buckets

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 21, 2024

Congratulations on finding a dose of prednisone that works although 35 mg is a bit on...

https://connect.mayoclinic.org/comment/944986/

35 mg is a bit on the high side for PMR ... mg when I was first diagnosed with PMR ... was on higher doses for 12 years for PMR ... taper off prednisone when they have PMR

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 9, 2023

I just responded to someone who asked how long some of us have had PMR. But,...

https://connect.mayoclinic.org/comment/761243/

asked how long some of us have had PMR ... I am positive my PMR came after the ... Rheumatologist 4 months later I was told I had PMR ... decided I felt so vulnerable after the PMR

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 14, 2022

PMR patients and anyone else treated with long term prednisone are at risk of Prednisone induced...

https://connect.mayoclinic.org/comment/1264293/

PMR patients and anyone else treated ... of prednisone for 12 years to treat PMR ... down to 3 mg while controlling my PMR ... Actemra controlled my PMR symptoms so

Discussion: Adrenal Insufficiency caused by long term Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 22 3:25pm