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Comments (1,292)
In reply to @jabrown0407 "When I received my first PMR diagnosis I refused steroids long term...
jabrown0407 "When I received my first PMR ... happy with what I've seen re: Actemra ... if just untreated inflammation from PMR
Posted: Apr 14, 2024
@glinda47 Thank you! We got his inflammation levels back today (CRP and ESR) and they are...
lowest it's been since he got PMR ... I feel the Actemra is helping him and ... stress headaches (even though he had PMR
I'm doing monthly infusions of Actemra (tocilizumab) for refractory PMR. Actemra is FDA approved for GCA...
I'm doing monthly infusions of Actemra ... (tocilizumab) for refractory PMR. ... Actemra is FDA approved for GCA but ... Kevzara is FDA approved for PMR. ... cytokine implicated in both GCA and PMR
Posted: Apr 6, 2024
Actemra (tocilizumab) got me off prednisone. There was a waiver granted because of my "inability" to...
prednisone which was being used to treat PMR ... Actemra was FDA approved for GCA at ... the time but not FDA approved for PMR ... ;should work" for PMR but he didn ... were "looking promising" for PMR
Posted: Mar 13, 2024
@pb50 I'm curious about how you use prednisone for flares of RA. I used prednisone for...
A PMR diagnosis was a late addition ... I blamed PMR on a lack of Prednisone ... other times I blamed Prednisone for PMR ... After PMR was diagnosed, a rheumatologist ... prednisone daily for 12 years until Actemra
Discussion: Rheumatoid Drs
Posted: Mar 9, 2024
I used to think the 10% rule made a difference. That was before an endocrinologist told...
aspect of this is whether or not the PMR ... I was pretty sure Actemra had that part ... Actemra allowed me to taper quickly
Posted: Mar 3, 2024
I was told the same about taking more than one biologic --- no can do! Inflixamab,...
t been shown to be efficacious for PMR ... ophthalmologist insisted on stopping Actemra ... I was reluctant to stop Actemra because ... it worked so well for PMR. ... Humira wasn't working well for PMR
@krueg and @julie4868 Being on Actemra infusions for 17 and 14 months respectively seems like a...
Actemra won't work for everyone. ... I haven't had any flares of PMR ... while on Actemra. ... sparing effects" for people with PMR ... enough but taking three medications for PMR
Posted: Feb 26, 2024
Just so you know ... I was on prednisone for 12 years for PMR. Prednisone suppressed...
was on prednisone for 12 years for PMR ... Both PMR flares and adrenal insufficiency ... prednisone because a biologic called Actemra ... to get off prednisone while taking Actemra ... Actemra doesn't suppress adrenal
Discussion: Post prednisone
Posted: Feb 25, 2024
Hi @bitsygirl, I don’t think I would start using steroids if you can manage without them....
I was diagnosed with PMR in March 2022 ... I am hoping to try Actemera as soon ... helpful to you and good luck with your PMR
Posted: Feb 10, 2024
I think much was learned from people in the past who had RA and were treated...
treatment options for people with PMR ... taking prednisone and waiting until PMR ... PMR seems exactly like what I was told ... work for me and for now at least, Actemra ... Either that, or many people with PMR
Posted: Feb 6, 2024
Reactive arthritis was diagnosed 20 years before PMR was diagnosed. The main reason PMR was diagnosed...
arthritis was diagnosed 20 years before PMR ... The main reason PMR was diagnosed was ... She said I had both PMR and reactive ... felt strongly that I had developed PMR ... any luck you might be treated with Actemra
Posted: Feb 5, 2024
I was diagnosed with PMR and GCA at the same time when I was 54. PMR...
I was diagnosed with PMR and GCA at ... PMR went away almost immediately after ... for 8 months and then switched to Actemra
Posted: Feb 5, 2024
In the first week after PMR diagnosis, I have needed to increase prednisone from 10 to...
In the first week after PMR diagnosis ... Actemra is not an option for me because ... anyone have experience with Humira for PMR
Posted: Feb 1, 2024
My rheumatologist seemed to think there was a risk of me developing antibodies to Actemra. I...
risk of me developing antibodies to Actemra ... were talking about alternatives to Actemra ... Actemra isn't supposed to work for ... uveitis but it didn't work for PMR ... I think PMR is still in the dark ages
Posted: Jan 25, 2024
I was on 60 mg/day of Prednisone due to very high levels of inflammation due to...
high levels of inflammation due to PMR ... I began weekly injections of Actemra ... physically obvious side effects of Actemra ... Overall, for me the side effects of Actemra ... told the main issue of concern with Actemra
Posted: Jan 20, 2024
I think a prednisone burst for RA is okay as long as you are able to...
term basis like it was prescribed for PMR ... When PMR was diagnosed, it was the first ... #34; Have you been diagnosed with PMR ... diagnosis of inflammatory arthritis and PMR ... The reason why Actema seem to be an
That is a good outlook to have, I really hope prednisone is now in your past....
My rheumatologist said Actemra was my ... prednisone for chronic and refractory PMR ... My understanding is that PMR is only ... My rheumatologist says PMR isn't ... Now I'm symptom free of PMR.