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2,013 total results
Comments (1,922)
@jeff97 thank you! I don’t have GCA. I know Actemra is primarily used for GCA and...
https://connect.mayoclinic.org/comment/1405249/
I don’t have GCA. ... know Actemra is primarily used for GCA ... and off label for PMR.
Discussion: Reducing Pednisone
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Sep 30, 2025
What dose of steroids are you currently on? You can't actually just stop taking them outright...
https://connect.mayoclinic.org/comment/1397560/
of the other autoimmune diseases, PMR ... It happens more frequently with PMR ... always needs to be taken that your PMR ... doesn't come with development of GCA ... GCA or PMR/GCA does require a high dose
Discussion: If I choose to take no meds. What is the worst that can happen?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Sep 20, 2025
Ropnrose, I agree with everything you said. Havana, I will add I had no pain at...
https://connect.mayoclinic.org/comment/1392296/
Ropnrose, do you have GCA? ... Someone mentioned that is only given for GCA ... not for PMR alone.
Discussion: I am afraid the pain will never end.
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Sep 12, 2025
Yes it was Actemra (tocilizumab). It isn't so new anymore and many people are on Actemra...
https://connect.mayoclinic.org/comment/1368814/
many people are on Actemra for mostly GCA ... had been recently FDA approved for GCA ... I wasn't diagnosed with GCA ... ... only PMR among other things. ... was the "only option" for PMR
Discussion: Better to be in some pain or better to up the dose of prednisone?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Aug 12, 2025
Thank you, folks, for your replies. Tomorrow they (the practice where I have been going for...
https://connect.mayoclinic.org/comment/1358599/
practice where I have been going for PMR ... (80 mg) to help with the pain for GCA ... the possible outcomes for untreated GCA
Discussion: Giant Cell Arteritis Diagnosis
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Jul 28, 2025
Speaking of Dr. Megan ... she posted another great video recently. This one isn't specifically about...
https://connect.mayoclinic.org/comment/1357439/
This one isn't specifically about PMR ... she has made several videos about PMR ... /GCA based on information she received ... experts from Harvard in the field of PMR ... /GCA.
Discussion: Anyone successfully treating PMR without Prednisone?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Jul 27, 2025
It was a long 12 year journey but now PMR is being treated without prednisone. I...
https://connect.mayoclinic.org/comment/1357186/
was a long 12 year journey but now PMR ... I started out with Prednisone when PMR ... had to realize that not all pain was PMR ... That face pain had nothing to do with GCA ... almost 5 years with no relapses of PMR
Discussion: Anyone successfully treating PMR without Prednisone?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Jul 26, 2025
My Abs Lymph value is consistently low. I've read that the value can be low due...
https://connect.mayoclinic.org/comment/1356872/
prednisone and Actemra for a year to treat GCA ... and PMR, and both of those drugs are ... high when I was first diagnosed with GCA ... and PMR, but it improved quickly once
Discussion: Abnormal Abs Neut Abs Lymph lab values
Support Group: Autoimmune Diseases
Posted: Jul 26, 2025
Our stories are very similar. Along with PMR I also have GCA. I got down to...
https://connect.mayoclinic.org/comment/1355506/
Along with PMR I also have GCA. ... I went to 2mg and had no PMR symptoms ... but the GCA symptoms came on fast.
Discussion: Polymyalgia rheumatica: Any thoughts on my taper plan?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Jul 24, 2025