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Comments (691)

I totally agree that a Mediterranean diet, focusing on anti-inflammatory foods, is super helpful. I have...

https://connect.mayoclinic.org/comment/934137/

I have taken six rounds of Kevzara so

Discussion: Diet & PMR.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 22, 2023

One would hope PMR patients of the future will have better options than prednisone. I took...

https://connect.mayoclinic.org/comment/892625/

least was Actemra which is similar to Kevzara

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2023

I was on prednisone for almost two years starting at 15 Mg but quickly learned my...

https://connect.mayoclinic.org/comment/1111907/

30lb my rheumatologist put me on kevzera ... Swelling is not a side effect from Kevzara ... inflammationh markers have not gone up on Kevzera ... terrible different pain I am giving Kevzera

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 25 10:13pm

In reply to @jabrown0407 "When I received my first PMR diagnosis I refused steroids long term...

https://connect.mayoclinic.org/comment/1050579/

I've seen re: Actemra, hydrox, Kevzara

Discussion: Shifting from Prednisone to Hydroxychloroquine

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 14 10:58am

There is no tapering strategy that has been researched that will allow you to taper off...

https://connect.mayoclinic.org/comment/1143510/

Only Kevzara is FDA approved to treat

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 18 11:58am

My doctor apparently has no problem writing a prescription for Actemra since I have "presumed GCA...

https://connect.mayoclinic.org/comment/833276/

Apparently Kaiser does not yet offer Kevzara

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 28, 2023

I can understand why an endocrinologist has a different opinion than a rheumatologist regarding 5 mg...

https://connect.mayoclinic.org/comment/895124/

medication that works the same way called Kevzara

Discussion: Trying to determine long term prednisone versus other prescriptions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 13, 2023

I tested HLA-B27 positive almost 40 years ago. I was closer to 30 years of age...

https://connect.mayoclinic.org/comment/1067842/

Kevzara would probably work well for

Discussion: PMR and Undifferentiated Spondyloarthropathies

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 14 12:58pm

I'm blessed too because I receive Actemra infusions at the VA. The VA submits an insurance...

https://connect.mayoclinic.org/comment/954138/

I don't think Kevzara is available

Discussion: Wrist and finger pain while tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 26, 2023

"Would you mind sharing what medication you took to take off the Prednisone? Do you still...

https://connect.mayoclinic.org/comment/1040764/

you are interested, a biologic call Kevzara ... Kevzara and Actemra aren't the same

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 26 6:25pm

Be patient and hopefully Kevzara works for you. I didn't really know Actemra was working until...

https://connect.mayoclinic.org/comment/954168/

Be patient and hopefully Kevzara works

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 26, 2023

I wouldn't think Genetech would care about the diagnosis as long as a doctor thinks Actemra...

https://connect.mayoclinic.org/comment/831650/

Otherwise, KEVZARA (sarilumab) is now

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 25, 2023

That was hope my rheumatologist gave me too about Actemra. That was before Kevzara was FDA...

https://connect.mayoclinic.org/comment/886875/

That was before Kevzara was FDA approved

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 28, 2023

Hello All -- the official publication of the ACR is the "Rheumatologist" and has very recent...

https://connect.mayoclinic.org/comment/1012486/

strategy and /or when to resort to Kevzara

Discussion: ACR Convergence 2023 Nov -Program abstracts are available for view

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 9 10:14am

I will try to answer your questions but I don't have any experience with Kevzara. My...

https://connect.mayoclinic.org/comment/889954/

don't have any experience with Kevzara ... your daily dose of prednisone before Kevzara

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 4, 2023

It is very interesting to read these varied medication stories. I might as well add mine...

https://connect.mayoclinic.org/comment/974780/

I have also been on Kevzara for four

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 4, 2023

It is a pity the Kevzara is not an option for you. The same warning about...

https://connect.mayoclinic.org/comment/962332/

It is a pity the Kevzara is not an option

Discussion: What a ride it has been ...for me at least!

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 10, 2023

Reactive arthritis was diagnosed 20 years before PMR was diagnosed. The main reason PMR was diagnosed...

https://connect.mayoclinic.org/comment/1010434/

you might be treated with Actemra or Kevzara

Discussion: How do I get my Rheumatologist to listen ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 5 10:46pm

I haven't tried Cymbalta. I have fibromyalgia and it's FDA approved for fibromyaliga; it might help...

https://connect.mayoclinic.org/comment/894153/

help them reduce their prednisone (Kevzara

Discussion: A low place tonight

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 12, 2023

I only have my experience with Actemra but Kevzara should work roughly the same if it...

https://connect.mayoclinic.org/comment/947173/

have my experience with Actemra but Kevzara

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 13, 2023