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Comments (1,165)

Kevzara and Actemra are new biologics that insurance may cover. Usually if you have tried methotrexate...

https://connect.mayoclinic.org/comment/1116358/

Kevzara and Actemra are new biologics ... prednisone you can generally stop taking Kevzara ... So the Kevzara may not help.

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2, 2024

Diagnosed with PMR in 2011. Many flares. Started KEVZARA in December. With prednisone at 10mg/day. I’ve...

https://connect.mayoclinic.org/comment/1331280/

Started KEVZARA in December.

Discussion: Any experiences with Kevzara (sarilumab)?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 20 11:39am

I was told it was palendromic pmr. Can happen in the feet and/or hands. My hands...

https://connect.mayoclinic.org/comment/1175899/

Better now after methotrexate, then Kevzara

Discussion: Tingling fingers part of PMR symptom?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 18, 2024

I also took the Pfizer Covid vaccine and booster in 2020 as a work requirement. In...

https://connect.mayoclinic.org/comment/1076521/

then in 2022 developed PMR and now on kevzara

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 28, 2024

I started Kevzara mid December and I had infections in both eye lids soon after. Very...

https://connect.mayoclinic.org/comment/1044195/

I started Kevzara mid December and I

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 2, 2024

Have been on prednisone 20 since Jan and unable to reduce beyond 15 . Labs were...

https://connect.mayoclinic.org/comment/868934/

Took first dose of Kevzara a few days

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2023

I would strongly advise you to get the shingles shot before you start Kevzara. According to...

https://connect.mayoclinic.org/comment/1374589/

the shingles shot before you start Kevzara ... Good luck to you and hopefully Kevzara

Discussion: PMR and Kevzara- Shingles

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 19 7:38pm

My schedule has been very similar but my legs continue to hurt and and ache pain...

https://connect.mayoclinic.org/comment/1117846/

I am on Kevzara 18 weeks. ... Swelling is not a common side effect on Kevzara

Discussion: Prednisone to Kevzara back to Prednisone. ( Hope not )

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 4, 2024

Have had PMR since November. Pain and stiffness started in hips. Next involved shoulders. That was...

https://connect.mayoclinic.org/comment/1307047/

mg prednisone per day and week 9 of Kevzara

Discussion: Where have you experienced pain due to PMR?H

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18 3:00pm

I feel for you, you are not alone. This is one frustrating disease. I am down...

https://connect.mayoclinic.org/comment/1226689/

I started Kevzara then backed out after

Discussion: Can PMR present in the clavicle too?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 1 7:46am

It would be too fast if you were only taking prednisone and following a standard reduction...

https://connect.mayoclinic.org/comment/1090316/

But taking methotrexate and Kevzara

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 20, 2024

Remember Kevzara is trying to control the PMR restart or flare caused by the taper of...

https://connect.mayoclinic.org/comment/1080674/

Remember Kevzara is trying to control

Discussion: Prednisone to Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4, 2024

CORRECTION: I will probably go with Actemra in either case. Unless tapering is successful in less...

https://connect.mayoclinic.org/comment/832159/

Kevzara gets very expensive quickly

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 26, 2023

I was on Prednisone for over a year prior. I had a lot of side effects...

https://connect.mayoclinic.org/comment/1080135/

started to taper before I started the Kevzara

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3, 2024

I've been on Kevzara about 8 months. I haven't noticed any negative side effects as far...

https://connect.mayoclinic.org/comment/1193167/

I've been on Kevzara about 8 months ... free drugs runs out I will go off Kevzara

Discussion: Starting KEVZARA: Anyone experience side effects?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 18, 2024

How did you know you had GCA? I had a negative right temporal artery biopsy. My...

https://connect.mayoclinic.org/comment/1295644/

Prednisone currently and will start Kevzara

Discussion: PMR/GCA patient asking about headaches

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 3 10:18am

Three mg is the lowest dose I have taken since starting prednisone almost exactly a year...

https://connect.mayoclinic.org/comment/975382/

up the decrease when I started the Kevzara

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 5, 2023

If you still have pain in the morning i think you should consult with your Rheumatologist...

https://connect.mayoclinic.org/comment/930093/

- perhaps you are a candidate for Kevzara

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 14, 2023

Welcome to the forum. My rheumatologist would say you have a complicated set of conditions. I...

https://connect.mayoclinic.org/comment/1083256/

Kevzara (sarilumab) is also an IL-6 ... PMR https://www.drugs.com/tips/kevzara-patient-tips ... #:~:text=Kevzara%20is%20a%20brand%20

Discussion: PMR pain management with medical cannabis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 8, 2024

@southtexas @sandiw77 @pointer134 @johnbishop Good afternoon all - the weather is beautiful today in Boston area!...

https://connect.mayoclinic.org/comment/868753/

you who have said they are starting Kevzara ... or how powerful the anti-iL-6R drug KEVZARA ... those in group who are starting on KEVZARA

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2023