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702 total results
Comments (682)
My first dose of Actemra was January 1st, 2019. I started with injections every 2 weeks....
years of prednisone treatment for PMR ... insufficiency can also cause pain that mimics PMR ... I had PMR relapses when Actemra was ... My rheumatologist thinks PMR might be ... Actemra was used to treat PMR only but
@curtvapor How long have you taken Actemra? My adrenals recovered in spite of 12 years of...
curtvapor How long have you taken Actemra ... spite of 12 years of prednisone for PMR ... My symptoms were controlled on Actemra ... Now I have been on Actemra for almost ... thinks I'm better off being on Actemra
Posted: Nov 4, 2023
I'm happy Actemra works for you. I'm going in the opposite direction with Actemra. I started...
I'm happy Actemra works for you. ... going in the opposite direction with Actemra ... PMR was under control but a low cortisol ... off prednisone while on Humira when PMR ... Weekly injections of Actemra worked
Posted: Nov 5, 2023
I was on prednisone for 12 years primarily for the treatment of PMR. I have multiple...
years primarily for the treatment of PMR ... Four years ago, I started doing Actemra ... I'm currently doing monthly Actemra ... I have stopped Actemra twice but my ... One advantage of Actemra is that you
Posted: Jun 22, 2023
I hope you have good luck with Kevzara. I'm on Actemra which my rheumatologist wanted me...
try 4 years ago to treat refractory PMR ... Actemra works well for me. ... pathway that is implicated in both PMR ... Kevzara is FDA approved for PMR. ... To the extent that PMR and GCA are &
Posted: Jun 7, 2023
@dadcue You asked "Have you ever been diagnosed with anything more specific or is it still...
is it still "presumptive" PMR ... regimen used in the 2017 tocilizumab (Actemra ... 5 weeks, then started me on weekly Actemra ... The Actemra will likely continue for ... now, coupled with weekly shots of Actemra
"Great Debate: Should PMR and GCA Be Treated with Advanced Therapies at Disease Onset?" This should...
"Great Debate: Should PMR and GCA ... I was diagnosed with PMR about 17 years ... ago but I was only offered Actemra ... It was that Actemra wasn't an option ... It wasn't very easy to get Actemra
I can relate to much of it ... I was diagnosed with ax-SpA about 35 years...
Prednisone followed by a fast taper before PMR ... doctor or a rheumatologist until after PMR ... PMR diagnosed over 15 years ago --- ... Humira didn't seem to work well for PMR ... I switched back to Actemra --- good
@joycj Our doctor said not to take Advil for pain, only Tylenol, because of the potential...
husband was initially diagnosed with PMR ... in the AM and 30 mg in the PM) with Actemra ... tapered down to 60 mg and still the Actemra
Many things can cause an enlarged spleen including autoimmune diseases. Chronic inflammatory conditions can cause an...
I wasn't sure Actemra was working ... secondary adrenal insufficiency can mimic PMR ... it becomes very dificult to know if PMR ... Sometimes it is a combination of both PMR
Posted: Oct 5, 2023
"My shoulders are killing me. But and this is a big but the right-side hurts more...
criteria that I'm aware of says PMR ... an absolute criteria ... just that PMR ... being normal except for after starting Actemra ... longer reliable because of being on Actemra
Hi @emer, I see that you have already connected with another new member @curtvapor. I would...
helpful. --- Actemra (Tocilizumab) ... to treat PMR?? ... /connect.mayoclinic.org/discussion/actemra-tocilizumab-to-treat-pmr ... (Tocilizumab) with PMR? ... discussion/how-hard-is-it-to-get-on-actemra-tocilizumab-with-pmr
Posted: Oct 20, 2023
I just wanted to suggest that finding a "stable dose" of prednisone that works was more...
prednisone when I was newly diagnosed with PMR ... I was diagnosed with PMR at the age ... intermittently for 20 years prior to PMR ... was sought for the treatment for PMR ... for the treatment of PMR.
Posted: Oct 5, 2023
Charlotte. I had PMR somewhere back around 2011 when I finally got off prednisone 2014 I...
I had PMR somewhere back around 2011 ... He too knew very little about PMR and ... However, I am still on prednisone and Actemra
Posted: Nov 26, 2023
Thank you for your words, which have given me hope. I am so glad to hear...
to hear about your experience with Actemra ... whole journey in October 2018 with PMR ... continue to feel like this when (if) on Actemra ... that she thinks I'd need to be on Actemra
Discussion: GCA conserns
Posted: Nov 30, 2023
"The pathway forward is to get pred down below 10 and then off ..." That sounds...
inflammation pathway implicated with PMR ... I took Actemra but no reason to believe ... 10 mg to zero was easy when I took Actemra ... Actemra is preventing PMR flares from
Be patient and hopefully Kevzara works for you. I didn't really know Actemra was working until...
I didn't really know Actemra was ... having a flare or any increase in PMR ... prednisone, my rheumatologist said PMR ... I still take Actemra and my rheumatologist ... thinks being off prednisone and on Actemra
Yes ... she is very accurate and straight forward in the way she explains PMR. My...
straight forward in the way she explains PMR ... constant explanations when I still had PMR ... I'm glad she mentioned Actemra ( ... Progress has been made for PMR. ... FDA approved for difficult cases of PMR
Posted: Mar 18 11:36am