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Comments (1,580)

Just FYI ... I was doing injections every 2 weeks at the start on Actemra. I...

https://connect.mayoclinic.org/comment/996102/

This may not apply to folks on Kevzara ... I don't even know if Kevzara injections

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 12, 2024

The problem is that Actemra is only FDA approved for GCA and not always authorized for...

https://connect.mayoclinic.org/comment/1290237/

Kevzara is FDA approved for PMR but ... I would think Kevzara will have an infusible ... FDA for an infusible formulation of Kevzara

Discussion: Insurance coverage for Actemra infusion with straight Medicare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 26, 2025

@dadcue I am 79 and diagnosed with PMR 1 year ago, 15 mg Pregnesone helped my...

https://connect.mayoclinic.org/comment/1476862/

Now on Kevzara, lost 20 lbs., tapered

Discussion: Wegovy to counteract prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 7 3:35pm

@cwbf 12.5 mg is a high dose for adrenal insufficiency to start. It is more typical...

https://connect.mayoclinic.org/comment/1483508/

I just googled how long it takes Kevzara

Discussion: Using Kevzara to taper down from prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 16 4:49am

I was able to get Kevzara paid for. When I contacted Kevzara Connect I asked about...

https://connect.mayoclinic.org/comment/1096889/

I was able to get Kevzara paid for. ... When I contacted Kevzara Connect I asked

Discussion: I keep relapsing when I try to get off prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 30, 2024

I was getting Kevzara for free from the drug company but was just cut off. A...

https://connect.mayoclinic.org/comment/1188471/

I was getting Kevzara for free from ... documentation" but Medicare has approved Kevzara

Discussion: Newly diagnosed with PMR taking prednisone 15 mg. Working well. Dr wan

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 11, 2024

@tyl411 I have now been off of Prednisone for 2 years (on Kevzara now) but also...

https://connect.mayoclinic.org/comment/1485700/

off of Prednisone for 2 years (on Kevzara

Discussion: Prednisone and bone loss. I was diagnosed with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 18 1:28pm

I need to ask how long you took prednisone before Kevzara was started. Research studies usually...

https://connect.mayoclinic.org/comment/1079883/

how long you took prednisone before Kevzara ... Kevzara allowed a significant number ... within a few months after starting Kevzara ... takes about a year of treatment with Kevzara ... wonder what experience people have with Kevzara

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3, 2024

Thanks for this. I have not heard of Kevzara, but it is so comforting to know...

https://connect.mayoclinic.org/comment/1029235/

I have not heard of Kevzara, but it

Discussion: Start Methotrexate with Prednisone right away or wait?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7, 2024

Thanks everyone. I start Kevzara on 6/23/23. Also look forward to leaving the severe side effects...

https://connect.mayoclinic.org/comment/874140/

I start Kevzara on 6/23/23.

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 7, 2023

Yes. I’ve been on Kevzara for 4 months and am off prednisone for my PMR. Besides...

https://connect.mayoclinic.org/comment/1335239/

I’ve been on Kevzara for 4 months and

Discussion: Anyone tried Kevzara for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25, 2025

I'd never heard of it and this is the only place anyone knew anything - other...

https://connect.mayoclinic.org/comment/1462595/

I'm off prednisone and on Kevzara

Discussion: Why Does the PMR discussion have so many posts Compared to others

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 17, 2025

@stonewheel I do the same ... "I pinched an inch of belly fat, 4 inches away...

https://connect.mayoclinic.org/comment/1489312/

."I feel localized pain as the kevzara

Discussion: Painful Kevzara Injection

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 23 9:22am

I have bee treated with Kevzara for several months. It has allowed me to reduce my...

https://connect.mayoclinic.org/comment/761057/

I have bee treated with Kevzara for ... Doctor does not want me to restart the Kevzara

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 14, 2022

So I am an 83 year old male diagnosed in Jan 23 and on gradually smaller...

https://connect.mayoclinic.org/comment/1126316/

In October my PCP added a biologic, Kevzara ... On Kevzara until February of this year

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 18, 2024

I was diagnosed with PMR about 35 years ago and have been on and off prednisone...

https://connect.mayoclinic.org/comment/1272822/

hydroxychloroquine and then sulfasalazine I started Kevzara ... happened the last time I injected Kevzara

Discussion: Anyone tried Kevzara for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 2, 2025

I do think that Actemra and Kevzara are dangerous. I mentioned recently on this forum that...

https://connect.mayoclinic.org/comment/1379820/

I do think that Actemra and Kevzara ... have to assess the risk of Actemra or Kevzara

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 26, 2025

@tweetypie13 This is what kevzara does...it ties up IL6, an immune protein that is responsible for...

https://connect.mayoclinic.org/comment/1432544/

@tweetypie13 This is what kevzara does ... to preserving one's life... so kevzara

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 6, 2025

To Stevieb; I am very happy to be in the fishbowl as you refer to it....

https://connect.mayoclinic.org/comment/1057819/

I found out about Kevzara and shortly ... I was on Kevzara and 2.5 prednisone ... Kevzara only until Feb 24 and now off

Discussion: Clinical Information or Fishbowl?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 26, 2024

I'm wondering about tapering off prednisone when I'm on Kevzara. I've been on Kevzara for 5...

https://connect.mayoclinic.org/comment/1379907/

tapering off prednisone when I'm on Kevzara ... I've been on Kevzara for 5 months ... glads) and he said since I'm on Kevzara

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 26, 2025