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Comments (2,480)
Hi @isc, I would like to add my welcome to Connect along with @fam8284 and others....
https://connect.mayoclinic.org/comment/926469/
took me about 3 and half years to taper ... off of prednisone and I stayed in remission ... around took me 1 and half years to taper ... off thanks to learning how to better ... manage the PMR and tapering here on
Hi @gcaunder50, terrible fatigue is one of the symptoms of PMR/GCA. It can be caused by...
https://connect.mayoclinic.org/comment/925392/
Did 40 mg of prednisone (prednisolone ... elevated and I had to increase the prednisone ... couple of weeks before resuming the taper ... I was able to get off prednisone after ... and a half, and it will be one year off
I was diagnosed with PMR in 2007. I was on moderately high doses of prednisone for...
https://connect.mayoclinic.org/comment/924693/
I was on moderately high doses of prednisone ... #34;best chance" of ever getting off ... prednisone. ... I was able to taper off prednisone in ... Prednisone was good in the beginning
I'm trying to figure out how much exercise/activity is too much. I've had PMR for about...
https://connect.mayoclinic.org/comment/924654/
PMR for about 3 months and been on Prednisone ... Working on tapering the dosages and ... will do another taper staring today. ... zero for all activities, but when the prednisone ... at the ceiling until the alarm goes off
I don't know how avid of a golfer you are but you might want to cut...
https://connect.mayoclinic.org/comment/923676/
Prednisone can make you feel like you ... When you take 20 mg of prednisone it ... Prednisone isn't a good substitute ... learn more about this when you try to taper ... off prednisone.
Thanks for your reply @samara66 My a.m. cortisol level was tested and found to be low....
https://connect.mayoclinic.org/comment/920038/
I was encouraged to taper down to the ... I was able to taper off prednisone when ... I tapered my prednisone dose down to ... I did a quick taper down to zero over ... couple of days and I was suddenly off
Has anyone in remission noticed a lingering muscle weakness from PMR? After 18 months of taking...
https://connect.mayoclinic.org/comment/916569/
After 18 months of taking Prednisone ... , I was happily able to taper off four ... #39;m so glad to be out of pain and off ... Prednisone, but just wondering if
You may be interested the Treat-to-target link given by John in his post above. Having searched...
https://connect.mayoclinic.org/comment/910993/
durations and don't push for getting off ... prednisone at any cost. ... Tapering off treatment should always
I think a person's weight should be considered. I'm not sure how often weight is considered....
https://connect.mayoclinic.org/comment/910935/
for a month or two before trying to taper ... Plus, I took prednisone for years at ... had some tolerance for high doses of prednisone ... was diagnosed, I was always able to taper ... off quickly.
My very first injection of Actemra was January 1st, 2019. I started with injections every 2...
https://connect.mayoclinic.org/comment/910262/
I got off prednisone for the first time ... It took me 9 months to taper off prednisone ... off prednisone again because of PMR ... I wanted to be off prednisone. ... off prednisone even faster the second
Hi @pmrsuzie, Welcome to Connect. I'm sorry to hear that you have been dealing with PMR...
https://connect.mayoclinic.org/comment/906271/
What helped me reduce my time on prednisone ... Some people that have struggled to taper ... off of prednisone have been successful ... using the following tapering plan found ... slow and nearly stop reduction plan (Tapering
Welcome, and glad you found the group while you’re going through this. @johnbishop provided some great...
https://connect.mayoclinic.org/comment/903462/
what’s likely to be a long and slow taper ... to get off the prednisone. ... His highest prednisone dose was 30 mg ... pack or low-moderate dose of prednisone ... right back if you speed through the taper
@gaylerenee Age might be a factor. I omit part of what my rheumatologist told me when...
https://connect.mayoclinic.org/comment/900826/
I took prednisone for PMR for roughly ... doing much better than I ever did with tapering ... off! ... #39;t think I would ever be able to taper ... off prednisone so I wasn't even
My doses of prednisone were 10 mg or more for 12 years. I talked to my...
https://connect.mayoclinic.org/comment/900666/
My doses of prednisone were 10 mg or ... suggest anything else besides a slow taper ... I was told to stop tapering until I ... normal range and I was able to get off ... Maybe you have taken prednisone too
fatigue and weakness for me too, I had to increase the prednisone dose from 5 to...
https://connect.mayoclinic.org/comment/899488/
for me too, I had to increase the prednisone ... I think I was tapering too quickly in ... an effort to get off the stuff. ... Switching now to .25mg taper per month
Hello @gerryandnancydupont, Welcome to Connect. What you are describing doesn't sound like the typical onset of...
https://connect.mayoclinic.org/comment/896964/
occurrences both were treated with 20 mg prednisone ... Then it was a struggle to begin the tapering ... process to get off of prednisone once ... listen to my body when I start to taper ... off of prednisone and to do it slowly
How is it going with Kevzara? I am self-injecting weekly with Actemra, which is also a...
https://connect.mayoclinic.org/comment/895854/
reducing my PMR/GCA symptoms as I taper ... off Prednisone (now at 7.5 mg/day,
One would hope PMR patients of the future will have better options than prednisone. I took...
https://connect.mayoclinic.org/comment/892625/
for PMR and never could taper off. ... trying to find a way for me to get me off ... prednisone. ... I was able to taper off prednisone in ... Now that I'm off prednisone, I'
You wrote: "How are you doing with Actemra?" Actemra seems to be working well for me,...
https://connect.mayoclinic.org/comment/891301/
working well for me, and had helped me tapered ... down to 8 mg/day of Prednisone. ... Assuming no relapses, I should be off ... Prednisone by October '23. ... My sleep returned once the Prednisone
I will try to answer your questions but I don't have any experience with Kevzara. My...
https://connect.mayoclinic.org/comment/889954/
What was your prednisone tapering schedule ... ----I have been off prednisone for the ... After Actemra was started, I tapered ... Now that I'm off prednisone, I was ... I was off Actemra when the synovial
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