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695 total results
Comments (663)
I recently started Kevzara 11/23 I was diagnosed with PMR 7/22 my Pred dose was 20mg...
Kevzara 11/23 I was diagnosed with PMR ... However I still am experiencing joint pain ... I am still experiencing pain in my shoulders ... about the taper due to my current pain ... level on both meds we shall see how
I had difficulty coming off prednisone after starting Actemra. It took me an entire year to...
My cortisol level was checked when I ... A low cortisol level was indicative ... symptoms because of muscle and joint pain ... thought my symptoms were caused by PMR ... Your PMR/GCA symptoms may gradually
@pb50, @dadcue, and all...I also have a trigger finger issue. My right ring finger had a...
COVID-19, followed by bronchitis, PMR ... ve been taking prednisone since the PMR ... beginning at age 40, now 77, at varying levels ... On a small dose for PMR and GCA, I have ... , a low dose of Prednisone for the PMR
Posted: Dec 20, 2023
Sorry to read about your experience. I'm just 52 and was diagnosed about 7 months ago....
level recently, with the lower temperatures ... in past years (before the PMR diagnosis ... , but nothing quite at the current level ... I asked if the prednisone or PMR could ... past March, I woke up feeling initial PMR
Hi Mary @marymckeith, I'm sorry to hear you are struggling with additional pain. You mentioned in...
you are struggling with additional pain ... wondering if they no longer think you have PMR ... If it were me and the pain started when ... to the previous dose to see if my pain ... dose you are taking along with your level
Posted: Dec 14, 2023
I'm happy Actemra works for you. I'm going in the opposite direction with Actemra. I started...
PMR was under control but a low cortisol ... level was a problem. ... off prednisone while on Humira when PMR ... All my lower back pain stopped and I
Posted: Nov 5, 2023
Welcome @papasrockyworld, It is definitely a great feeling when that first dose of prednisone kicks in...
I'm hoping the pain will stay away ... discussions you might find helpful in your PMR ... journey: --- PMR Dosages and Managing ... help is to keep a daily log with your level ... of pain/aches when you get up in the
Posted: Oct 29, 2023
Be patient and hopefully Kevzara works for you. I didn't really know Actemra was working until...
having a flare or any increase in PMR ... I had some pain but it was tolerable ... but it wasn't like I was "pain ... prednisone, my rheumatologist said PMR ... My cortisol level is normal again but
I would get in with your PCP ASAP. One of the things I learned personally and...
personally and in this group, is that PMR ... my ortho, on June 7th, it was for pain ... by the 21st I was back up to a 4/10 level ... my PCP on the 26th and was at 5/10 level ... what I've read/researched, is PMR
Posted: Oct 19, 2023
The fates have conspired for me to try this. I am taking Rinvoq for Crohn's and...
s neuropathy and had a flare of my PMR ... Rinvoq and it does seem to moderate the PMR ... pain. ... Waiting for the build up pf blood levels
Posted: Sep 22, 2023
Very productive visit. I once asked my rheumatologist if the prednisone goal was 'no' pain or...
or 'tolerable' pain. ... He said "no pain". ... exceptions to the rule' apply in pmr ... If I had known my pmr journey was going ... level.
Welcome @wilmingtonemperor, You are not alone. Nobody wants to take prednisone but it is the defining...
it is the defining drug that if the pain ... methods used to diagnose that you have PMR ... I've had two occurrences of PMR. ... rheumatologist had me keep a daily log with my level ... of pain when I woke up along with my
Support Group: Autoimmune Diseases
Posted: Sep 2, 2023
My first dose of Actemra was January 1st, 2019. I started with injections every 2 weeks....
adrenal insufficiency can also cause pain ... that mimics PMR. ... stay on 3 mg when my a.m. cortisol level ... for about 6 months until my cortisol level ... my endocrinologist said my cortisol level
@southtexas I have forgotten to take other meds but never the prednisone when my PMR was...
meds but never the prednisone when my PMR ... dose and you weren't in a lot of pain ... How is your pain level after you forgot
Posted: Aug 29, 2023
Hi @mpm, You definitely need to advocate for yourself. My Mayo rheumatologist started me on 20...
prednisone for both occurrences of PMR ... the-productive-rheumatology-appointment-guide/ --- GCA & PMR ... rheumy had me keep a daily log with the level ... of pain when I woke up and the dose
Posted: Aug 20, 2023
Hello @chzuck, I see that you have already met another new member @kipster and I would...
top of the discussion: --- New to PMR ... I've had 2 occurrences of PMR but ... The first occurrence of PMR in 2007 ... found keeping a daily log with my level ... of pain when I woke up along with my
Hello @marymckeith, It sounds like you may be tapering too fast. I started at 20 mg...
20 mg prednisone both times when my PMR ... to my body and only taper when the pain ... He had me keep a daily log with my level ... of pain when waking up and the amount ... with your doctor. --- GCA & PMR
Hi all, I am new to the group and grateful to have found it. My symptoms...
I had rapid onset of bilateral pain ... I showed no elevated blood levels, PMR ... This time I showed elevated CRP levels
My PMR/GCA symptoms became apparent on January 14, 2023 and I was diagnosed with PMR on...
My PMR/GCA symptoms became apparent ... 14, 2023 and I was diagnosed with PMR ... Before treatment, the body pain was ... My CRP levels were measured as high ... The body pain was further reduced to