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Comments (1,058)

@southtexas @sandiw77 @pointer134 @johnbishop Good afternoon all - the weather is beautiful today in Boston area!...

https://connect.mayoclinic.org/comment/868753/

you who have said they are starting Kevzara ... or how powerful the anti-iL-6R drug KEVZARA ... those in group who are starting on KEVZARA

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2023

According to Johns Hopkins Rheumatology website, "There is no “safe” dose of prednisone. Prednisone over time...

https://connect.mayoclinic.org/comment/1238474/

I started on Kevzara in early January ... My insurance company approved Kevzara ... I hope that Kevzara's manufacturer ... Currently, prescribing Kevzara before ... allows the plan to exclude payment for Kevzara

Discussion: New to PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 16 3:39pm

I was diagnosed with MGUS 3 years ago, before my PMR diagnosis last year. My oncologist...

https://connect.mayoclinic.org/comment/1081359/

to every six months because I am on Kevzara

Discussion: PMR and MGUS/SSM/MM multiple myeloma

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 5, 2024

Like I posted, it’s patient specific and has no numbers. Your Doctor based on your reaction...

https://connect.mayoclinic.org/comment/1215042/

Doctor based on your reaction to the Kevzara

Discussion: Does Kevzara put PMR in to remission?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 17 2:57pm

Thanks! Yes I did bring it up to my rheumatologist and he suggested putting me on...

https://connect.mayoclinic.org/comment/1089232/

rheumatologist and he suggested putting me on Kevzara

Discussion: Kevzara Side Effects?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 18, 2024

Elayne, I was diagnosed with PMR in Jan 23. Went to Kevzara when I was at...

https://connect.mayoclinic.org/comment/1029227/

Went to Kevzara when I was at 2.5 prednisone

Discussion: Start Methotrexate with Prednisone right away or wait?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7, 2024

I’m 63 and not eligible for Medicare yet. My insurance initially said no to Kevzara but...

https://connect.mayoclinic.org/comment/880313/

My insurance initially said no to Kevzara

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 17, 2023

Just be careful-I assume you have the copay card? They pd for mine Oct, Nov, Jan...

https://connect.mayoclinic.org/comment/1014674/

may I suggest to you that you call Kevzara

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 12, 2024

Hah, I understand that. I saw what insurance paid. Wish I could send you mine since...

https://connect.mayoclinic.org/comment/1188521/

hand pain, either methotrexate or kevzara

Discussion: Newly diagnosed with PMR taking prednisone 15 mg. Working well. Dr wan

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 11, 2024

Similar but different. I began Kevzara injections two weeks ago for treatment of PMR and take...

https://connect.mayoclinic.org/comment/1361286/

I began Kevzara injections two weeks

Discussion: Starting treatment with Kevzara: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: 1 day ago

I can try to help. Just my info from here and google search. I have not...

https://connect.mayoclinic.org/comment/1079496/

I have not taken Kevzara. ... Kevzara and Acterma.

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2024

When your cortisol level is low, the body loses the ability to regulate inflammation. It seems...

https://connect.mayoclinic.org/comment/953745/

Have you decided to try Kevzara? ... Maybe Kevzara will work the same as

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 25, 2023

In my experience the drug companies found a way around the $2000 out of pocket maximum....

https://connect.mayoclinic.org/comment/1241584/

part D plan in my county would cover Kevzara ... I am off Kevzara mainly due to cost

Discussion: New to PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 20 1:47pm

I too have had trouble distinguishing between pmr symptoms and ordinary aches and pains. Long-standing hip...

https://connect.mayoclinic.org/comment/953442/

Regarding kevzara, at the suggestion ... am not entirely sure I want to take kevzara

Discussion: Wrist and finger pain while tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 25, 2023

I am also 72, PMR about 2 years, using Kevzara 1&1/2 years should be off it...

https://connect.mayoclinic.org/comment/1331859/

also 72, PMR about 2 years, using Kevzara

Discussion: Anyone tried Kevzara for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 21 9:47am

I have been taking Prednisone for 12 years for PMR. Down to 3 mgs daily for...

https://connect.mayoclinic.org/comment/1330679/

rheumatologist has recommended Rx Kevzara

Discussion: Long term Statin use and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 19 1:45pm

I started Kevzara 6 weeks ago and I love it. I was able to drop from...

https://connect.mayoclinic.org/comment/1330500/

I started Kevzara 6 weeks ago and I ... I might have been needing Kevzara my

Discussion: Kevzara Experiences

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 19 10:16am

Yes! Get the grounding mattress pad from Amazon. Absolutely love it has a silky feel on...

https://connect.mayoclinic.org/comment/1268282/

I am on 4mg with Kevzara.

Discussion: Anyone try earthing/grounding for pain relief?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 27 8:53pm

I totally understand, I actually took one injection of Kevzara and it gave me fever and...

https://connect.mayoclinic.org/comment/1116350/

, I actually took one injection of Kevzara

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2, 2024

A biologic called Actemra (tocilizumab) was prescribed to me for PMR. However it isn't FDA approved...

https://connect.mayoclinic.org/comment/911994/

A similar biologic called Kevzara (sarilumab

Discussion: The lowest effective dose, how is it defined?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 12, 2023