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372 total results
Comments (357)
Testing for protein in the CSF is key for diagnosing GBS and CIDP. So the spinal...
for protein in the CSF is key for diagnosing ... GBS and CIDP. ... one of the first indicators of my diagnosis ... years later those tests confirmed CIDP ... find additional help with the GBS CIDP
Support Group: Autoimmune Diseases
Posted: Feb 23, 2024
Hi, I have a neuromuscular doctor. I had nerve conduction studies. All four extremities were tested...
the one who asked me if I’d heard of CIDP ... get to far with her, if she does not diagnose ... Is or can CIDP (poly radiculopathy)
Support Group: Autoimmune Diseases
Posted: Feb 23, 2024
If you have muscle weakness and/or muscle atrophy be sure CIDP has been considered. It stands...
weakness and/or muscle atrophy be sure CIDP ... symptoms of this for over a decade before diagnosis
Support Group: Neuropathy
Posted: Jan 19, 2024
I have had systemic lupus for 40 years and RA for about 12. I now have...
I now have CIDP (chronic inflammatory ... There’s no specific test for CIDP but ... protein in spinal fluid supports the diagnosis ... I would check out CIDP on the internet
Support Group: Autoimmune Diseases
Posted: Sep 22, 2023
Actually I have 4 AI diseases, systemic lupus, which took 10 years to diagnose, RA, relapsing...
systemic lupus, which took 10 years to diagnose ... polychondritis, and just this month have been diagnosed ... with CIDP (chronic inflammatory demyelinating
Support Group: Autoimmune Diseases
Posted: Sep 16, 2023
After 12 years of chasing the root cause of my symptoms, I was finally diagnosed with...
cause of my symptoms, I was finally diagnosed ... with CIDP two weeks ago. ... Right now, at least I have a diagnosis
Welcome @sherylynn, You will notice that we moved your post to an existing discussion on the...
same topic here: --- Anyone been diagnosed ... with CIDP? ... discussion/has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare
Support Group: Autoimmune Diseases
Posted: Mar 31, 2023
Mitchsfm@mitchsfm Hello Mitch So sorry to hear you are having difficulties with Medicare approval for IgG...
approval for IgG infusion therapy for CIDP ... I was diagnosed with CIDP in 2021 and ... there was no definitive test for the diagnosis ... test that will say yes you have CIDP ... are criteria they use to make the diagnosis
My husband, age 71, was told he had CIDP and given infusions which didn't seem to...
husband, age 71, was told he had CIDP ... He went to another neurologist who diagnosed ... Finally, a fourth neurologist diagnosed
Support Group: Autoimmune Diseases
Posted: Mar 1, 2023
@kim1234: iv/ig has helped to keep my disease relatively stable. I get two infusions every three...
It was incorrectly diagnosed in the ... I got a correct diagnosis close to three ... immunotherapy and I believe caused the CIDP ... just aren't equipped to deal with CIDP
Support Group: Autoimmune Diseases
Posted: Feb 4, 2023
Hello Glenn @cgrogers, Welcome to Connect. You will find members talking about CIDP in the Autoimmune...
found with search: -- Anyone been diagnosed ... discussion/has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare ... / -- Searching For Diagnosis. ... CIDP? ... connect.mayoclinic.org/discussion/searching-for-diagnosis-please-help-me
Discussion: CIDP Support Group
Support Group: Autoimmune Diseases
Posted: Dec 18, 2022