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1,327 total results
Comments (1,291)
@irene6754 It is a very long story! Yes ... I eventually managed to get off Prednisone....
Actemra allowed me to taper down to ... Actemra didn't suppress my adrenal ... pains but nothing that seemed like PMR ... controlled PMR at the time. ... I now do monthly Actemra infusions but
I have been on Actemra for 5 years. I started with injections every 2 weeks. I...
I have been on Actemra for 5 years. ... in 1 year after starting with the Actemra ... PMR was diagnosed more than 15 years ... on prednisone for 12 years to treat PMR ... When I do Actemra infusions every 4
Posted: Jun 30, 2024
@graydude I have been on Actemra for PMR ... not for GCA. My rheumatologist needed to...
@graydude I have been on Actemra ... for PMR ... not for GCA. ... Once Actemra was approved for me ... ... for PMR ... some doctors are willing ... Kevzara is FDA approved for PMR.
I don't have any experience with Kevzara. I have taken Actemra for PMR for a long...
I have taken Actemra for PMR for a long ... Kevzara and Actemra are similar and ... Both Kevzara and Actemra are both IL ... insufficiency and also whether or not PMR ... once my cortisol level improved and PMR
Posted: Oct 2, 2024
I'm currently doing Actemra infusions primarily for PMR. I started with Actemra injections and progressed to...
primarily for PMR. ... prednisone for 12 years waiting for PMR ... PMR never did go into remission. ... It wasn't just PMR because I have ... was the "only option" for PMR
Discussion: Actemra
Support Group: Autoimmune Diseases
Posted: Dec 9, 2023
I'm over it now but I still get riled up sometimes ... sorry. Your post triggered...
expert knew more about how to treat PMR ... for PMR after she told me doctors in ... breaking the rules" for treating PMR ... Actemra isn't FDA approved for PMR ... Now Kevzara is FDA approved for PMR
@kare1 Without giving you any medical advice ... I don't think you should force a lower...
I was on a biologic called Actemra which ... controlled PMR. ... said as long as I could tolerate my PMR ... , my cortisol level improved while Actemra ... controlled PMR.
Posted: Dec 30, 2025
@csimmonds "You answered some questions I have had about why doctors talk about hormone levels but...
sure I didn't need Prednisone for PMR ... because Actemra had PMR covered. ... sure I didn't need Prednisone for PMR
Posted: Dec 5, 2025
@tedmbrady My husband developed PMR 5/2023 and then GCA (giant cell arteritis) in 2/2024. It's been...
@tedmbrady My husband developed PMR ... began on 30 mg prednisone for his PMR ... He's also getting Actemra injections ... the other day that someone received Actemra ... for PMR.
@pmrsuzie "I saw my rheumatologist last week and he thinks my adrenals should be working." -----------------------...
controlled PMR "reasonably well ... Everything about PMR and being treated ... didn't seem to work as well for PMR ... as Actemra did. ... function all the while that PMR was
I was diagnosed with PMR in May 2016 & didn't want to take a corticosteroid like...
I was diagnosed with PMR in May 2016 ... preliminary successes in treating PMR ... methylprednisolone, and of course the PMR ... taking the full half dose course, the PMR ... , the PMR disappear, however (1) year
I agree that it would be nice to have PMR/GCA support groups in the USA. I...
when I was seeking information about Actemra ... moderator said my experience with Actemra ... who actually lived in Italy started Actemra ... for PMR. ... love to know what her experience with Actemra
Posted: Dec 29, 2024
"Endo I saw said she could not test my adrenals until I was completely off steroids...
any of this is hard for people with PMR ... for PMR. ... Now Actemra is FDA approved for GCA ... and Kevzara is FDA approved for PMR. ... Actemra worked for me but not immediately
I was down to 3 mg and told to stay on that dose for an extended...
because I was taking injections of Actemra ... Actemra kept PMR flares in check. ... that I wouldn't have a flare of PMR ... prednisone again with increasing amounts of PMR ... When Actemra was restarted with weekly
Same thing with me. My side effects from prednisone were awful but I got used to...
prednisone for more than 12 years for PMR ... for PMR. ... with Actemra. ... than simply managing the symptoms of PMR ... autoimmune problems in addition to PMR
I'm assuming your "off label" use of Actemra is for PMR since it isn't FDA approved...
for PMR. ... There is no guarantee that Actemra will ... work for everyone with PMR. ... for PMR. ... Maybe you do have PMR but Actemra doesn
@superfly999 For insurance covering Actemra for PMR---the answer is yes and no. I'm on Medicare so...
superfly999 For insurance covering Actemra ... for PMR---the answer is yes and no. ... needed because I was diagnosed with PMR ... and Actemra isn't FDA approved ... for PMR.
Posted: Oct 20, 2025
@caroljeand I'm familiar with spondylolisthesis. It is a spinal condition where one vertebra slips forward over...
I don't think of PMR as an " ... PMR was my primary diagnosis and Actemra ... targeted PMR. ... inflammation." Fortunately, Actemra ... After PMR was diagnosed, prednisone
Discussion: Knee pain and PMR?
Posted: Dec 4, 2025
"I read the other day that someone received Actemra for PMR. According to our rheumatologist, it's...
for PMR. ... and it was used for "refractory PMR ... with GCA but I was diagnosed with PMR ... I had 12 years of PMR before Actemra ... Actemra is not FDA approved for PMR