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Comments (2,757)
I have GCA and PMR. I got relief immediately from prednisone, but I started at 60...
https://connect.mayoclinic.org/comment/1379042/
I have GCA and PMR. ... I got relief immediately from prednisone ... Prednisone causes higher blood pressure ... You can stop taking prednisone after ... you taper the prednisone too quickly
I was diagnosed with PMR/GCA July 2024. Began 60 mg. of Prednisone. I quit drinking completely,...
https://connect.mayoclinic.org/comment/1382530/
I was diagnosed with PMR/GCA July 2024 ... Began 60 mg. of Prednisone. ... I've tapered to 3 mg. of Prednisone
I had the same experience with Actemra. I was instructed to stay on 3 mg when...
https://connect.mayoclinic.org/comment/1380969/
endocrinologist took control of my Prednisone ... I stayed on 3 mg of prednisone for 6 ... Actemra made tapering easier. ... cortisol level was adequate with no PMR ... pain so I took the plunge to zero Prednisone
Some people would say Kevzara does nothing to directly improve your cortisol level if you have...
https://connect.mayoclinic.org/comment/1379484/
Actemra or Kevzara will allow you to taper ... prevent a flare of PMR. ... without a flare of PMR because of ... usually happens, is that patients taper ... have a flare of PMR.
Glad You are doing better….be selective with the statins. I had been on rosuvastatin (Crestor) 5...
https://connect.mayoclinic.org/comment/1383329/
pain I was told I probably developed PMR ... Put on 15 mg prednisone and in 3-4 days ... Now I am slowly tapering ( down to 3
Actemra and hydroxychloroquine are options.Go slow on taper down from prednisone as you are likely to...
https://connect.mayoclinic.org/comment/1371046/
hydroxychloroquine are options.Go slow on taper ... down from
prednisone as you are likely ... should be part of disease management in PMR
When I was diagnosed with PMR/GCA in July 2024, I started with 60 mg. of prednisone...
https://connect.mayoclinic.org/comment/1372890/
When I was diagnosed with PMR/GCA in ... July 2024, I started with 60 mg. of prednisone ... for 6 weeks and then started my taper ... sugar issues until I started taking prednisone ... The Actemra has allowed me to taper,
I just wish to add a couple of things. Your taper from 20 mg to 8...
https://connect.mayoclinic.org/comment/1386500/
Your taper from 20 mg to 8 mg in 8 months ... successful with their first attempt at tapering ... off prednisone. ... Hopefully, Kevzara will make it easier to taper ... from Kevzara for the treatment of PMR
What were your symptoms of withdrawal? I am at the point of tapering Prednisone from 5mg(...
https://connect.mayoclinic.org/comment/1386524/
I am at the point of tapering Prednisone ... My Rheumatologist said most likely PMR ... using Kezvara as efffectively as with Prednisone
I think you are the first to report that you are taking Rinvoq for GCA since...
https://connect.mayoclinic.org/comment/1387274/
for PMR/GCA? ... Long term prednisone as the only option ... for PMR/GCA is becoming a thing of ... new beginning when I successfully tapered ... off Prednisone after 12 years.
Welcome @mycare18, I've had 2 occurrences of PMR and started treatment at 20 mg prednisone. I...
https://connect.mayoclinic.org/comment/1389246/
mycare18, I've had 2 occurrences of PMR ... and started treatment at 20 mg prednisone ... It took me 3 and half years to taper ... off of prednisone the first time and ... Do you get any pain relief from the prednisone
Pushing through "increasing pain" while continuing a taper probably isn't a good idea. I believe what...
https://connect.mayoclinic.org/comment/1391032/
investigated because it might not be PMR ... to my rheumatoloist that I thought PMR ... 12 years for PMR. ... I had before PMR was diagnosed was ... that I could routinely taper off prednisone
"I need to figure out the difference between a PMR flare and adrenal insufficiency pain." ---------------------...
https://connect.mayoclinic.org/comment/1390907/
figure out the difference between a PMR ... PMR pain and adrenal insufficiency pain ... when I was taking Actemra to keep PMR ... was when Actemra was restarted, I tapered ... set my Prednisone taper back many months
Hang in there . The Kevzara has been very good for me. My guess, It took...
https://connect.mayoclinic.org/comment/1386060/
I was at 8mg prednisone when I started ... Was able to taper to “o” by 4 months ... Remember, a PMR flare may not be the ... same as prednisone withdrawal.
I too had my BP drop while on prednisone for PMR. It happened within a couple...
https://connect.mayoclinic.org/comment/1393329/
I too had my BP drop while on prednisone ... for PMR. ... lisinopril completely but was also tapering ... prednisone at that time (still early ... in PMR diagnosis, now down to 15mg
Hello @havana, Welcome to Connect. PMR can definitely be a challenge doing some of the things...
https://connect.mayoclinic.org/comment/1372897/
PMR can definitely be a challenge doing ... discussion you might find helpful for tapering ... and Safely Taper Off Prednisone but ... discussion/how-to-slowly-and-safely-taper-off-prednisone-but-no-set-rules ... and currently at 15 mg tapering to
I believe the taper is the most important. For me a 1 mg taper was too...
https://connect.mayoclinic.org/comment/1387153/
For me a 1 mg taper was too much and ... I need tapering in 1/2 to 1/4 of mg ... For me that taper had the pain still ... the whole process and not just the PMR ... I exercise all the way through PMR.
I don't want to sound shallow, but I am concerned that Prednisone is making my weight...
https://connect.mayoclinic.org/comment/1388616/
'm 77, received a diagnosis of PMR ... It worked beautifully, and I slowly taped ... I embarked on a taper that was 6 mg ... I have been on Prednisone since 2022 ... so perhaps I must do a much slower taper
There are tools that could diagnosed GCA. An ultrasound or temporal artery biopsy. As @jeff97 suggested,...
https://connect.mayoclinic.org/comment/1388930/
I acquired PMR and suspected GCA in ... Then, I began tapering. ... the prolonged use of high doses of Prednisone ... My vision is worse now, than pre-PMR ... Now, I am down to 3 mg. of Prednisone
I'm not sure what Zyenne is unless you mean Tyenne which is a biosimilar to Actemra....
https://connect.mayoclinic.org/comment/1389826/
A taper with these biologics is nothing ... remotely like tapering off prednisone ... Getting stuck on 5 mg of Prednisone ... 't seem too unusual to me when tapering ... about your vision especially with PMR
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